All Diseases

MDA Scientific Conference To Focus on Therapy Development for Neuromuscular Diseases

MDA Scientific Conference Blog: Stirring the Pot

Joan Jett And The Blackhearts To Headline MDA Ride For Life XXVI

Free Eye Exams for Service Animals: Now Scheduling May Appointments

Registration is now open for the 6th Annual ACVO/Merial Service Dog Eye Exam Event, which offers free eye exams for service animals during the month of May.

MDA Board Chair Honored for Pioneering Work in Newborn Screening

R. Rodney Howell — respected geneticist, pediatrician and chairman of the MDA Board of Directors — has been honored by the March of Dimes for playing a key role in developing the uniform panel of serious disorders for which nearly every baby in the United States now is tested.

One Simple Thing You Can Do for Rare Disease Day 2013

In the United States, a disease or disorder is defined as “rare” when it affects fewer than 200,000 Americans at any given time; in Europe, when it affects less than one in 2,000 people.

Clearly, we’re talking about very small numbers of people. But put them all together, and the numbers tell a different story. More than 6,000 rare diseases affect more than 60 million people in Europe and the U.S. alone — some 100 million people worldwide.

Walk Like a Penguin: Anti-Slip Tips for People with Muscle Disease

Winter can be a beautiful time of year — especially when you're inside under a warm blanket, drinking hot cocoa and looking out the window at the glistening white and the snow-coated branches. Unfortunately, most people have to carry out their daily lives regardless of slippery conditions.

Slipping and falling are hazards for everyone in winter weather, but for people with neuromuscular diseases, it's crucial to be extra careful around snow and ice.

Summer International Affairs Internships Available in Washington

If you are a college student or recent graduate with a disability and are interested in a career in international affairs, there’s a new internship program launching this summer in Washington, D.C.  However, if you want to be considered, you’ll need to hurry — the online deadline is February 18.

How to Obtain Durable Medical Equipment Via Medicare

Durable medical equipment (DME), such as wheelchairs, walkers, portable oxygen devices and hospital beds, can be very expensive — and the process for obtaining them from Medicare can be very confusing. 

Learn about Medicare coverage of DME and get the latest information on obtaining such equipment in a webinar Tuesday, Jan. 29, from 2 to 3 p.m. Eastern time.  

“Medicare Coverage of Durable Medical Equipment” is presented by the Medicare Rights Center and costs $40 to attend. It will cover:

MDA Observes National Family Caregivers Month

Society hasn't always appreciated the vital role fulfilled by family caregivers. It’s only been in the past 20 years that family caregivers — now more than 65 million strong — have been officially acknowledged. Every November, National Family Caregivers Month is observed in America as a time to thank, support, educate and empower these hardworking, creative and loving individuals.

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