All Diseases

A Forest of Fun

"A Forest of Fun" was created in August, 1994 by 9 youngsters, at a children's art workshop at the Scripps Insittution of Oceanography in San Diego, California.

MDA Fly Out 2011 Focuses on Transitions

Would you like meet with your congressman to talk about issues important to families facing neuromuscular disease?

Please join us for the MDA Fly Out.

For the third year in a row, MDA families and advocates are gearing up for the MDA Fly Out— annual meetings with congressional representatives held in their home districts throughout the August congressional recess.

MDA Wants Your Photos

This summer, MDA is inviting everyone to participate in its new "Make a Muscle, Make a Difference" public awareness campaign by submitting photos of friends and family flexing their muscles for MDA.

MDA also is seeking photos for its "Accessible Spaces Gallery" debuting in August on the MDA Transitions Resource Center, a website designed to help young people with muscle diseases make the transition to adulthood and independence.

WWE and MDA to Recognize Youth Volunteers

Do you know an exceptional kid between the age of 6 and 17 who has volunteered for MDA or supported someone with a neuromuscular disease? Here’s your chance to nominate him or her for some well-deserved recognition.

WWE (World Wrestling Entertainment) and MDA are looking for two Community Champions this summer: young people who have demonstrated “exceptional commitment” to supporting MDA or who have made a “significant contribution” to an individual with muscle disease within the last two years.

Government Health Insurance Access Made Easier

In hopes of attracting more enrollees, the U.S. government is lowering premiums and easing eligibility requirements for its Pre-Existing Condition Insurance Plan (PCIP).

MDA Presents Housing Rights Webinar May 24

Are owners of apartment buildings required to have accessible units? Can they charge higher rent for them? And can they refuse to rent to a person with a service dog?

These are just some of many questions about housing rights that will be answered Tuesday, May 24, 2011, during an MDA-sponsored webinar titled "Know Your Rights — The Fair Housing Act," beginning at 4 p.m. EDT, 2 p.m. MDT and 1 p.m. PDT.

MDA Launches Transitions Resource Center for Young Adults

Navigating the transition from childhood to adulthood can be complicated. Young people confront numerous important changes at this time, including going off to college, moving away from home, starting a career, establishing friendships and falling in love.

Young adults with disabilities may find it particularly challenging to find and utilize all available resources to help manage and coordinate these changes.

Leaving Nursing Homes Behind: New Funds, Strategies

The federal government is moving ahead with plans to expand access to home and community based services for individuals who receive Medicare and Medicaid benefits.

HHS Secretary Kathleen Sebelius announced in April that $3.7 billion in federal funds will be made available to implement the Community First Choice Option, a provision of the new health care law (the Affordable Care Act) which provides incentives for states to offer services enabling people to stay in their homes and communities, rather than in institutions.

FCC Surveying People with Disabilities about Calling 911

The Federal Communications Commission (FCC) is conducting an online national survey of individuals with disabilities to determine the most effective and efficient methods to access emergency services.

According to the FCC, a new emergency-access system is being developed that will allow people to reach 911 not only by using voice telephones, but text, video and other devices, some of which use the Internet.

FCC Surveying People with Disabilities about Calling 911

The Federal Communications Commission (FCC) is conducting an online national survey of individuals with disabilities to determine the most effective and efficient methods to access emergency services.

According to the FCC, a new emergency-access system is being developed that will allow people to reach 911 not only by using voice telephones, but text, video and other devices, some of which use the Internet.

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