All Diseases

How to Obtain Durable Medical Equipment Via Medicare

Durable medical equipment (DME), such as wheelchairs, walkers, portable oxygen devices and hospital beds, can be very expensive — and the process for obtaining them from Medicare can be very confusing. 

Learn about Medicare coverage of DME and get the latest information on obtaining such equipment in a webinar Tuesday, Jan. 29, from 2 to 3 p.m. Eastern time.  

“Medicare Coverage of Durable Medical Equipment” is presented by the Medicare Rights Center and costs $40 to attend. It will cover:

MDA Observes National Family Caregivers Month

Society hasn't always appreciated the vital role fulfilled by family caregivers. It’s only been in the past 20 years that family caregivers — now more than 65 million strong — have been officially acknowledged. Every November, National Family Caregivers Month is observed in America as a time to thank, support, educate and empower these hardworking, creative and loving individuals.

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All Diseases

Grants for In-Home Care Available from Philanthropist with LGMD

A small nonprofit organization is offering limited grants for in-home care to people with physical disabilities. The next quality-of-life grant application deadline is November 1, 2012.

AbleGamers Grant for Kids with Disabilities Who Play Video Games

The AbleGamers Foundation (AFG) — a volunteer-run nonprofit organization dedicated to making video gaming more accessible for people with disabilities — has launched its 2012 Children’s Grant Program that will provide one piece of assistive technology (AT) gaming equipment to a child age 15 or younger who has a disability that makes playing digital games difficult.

How To Get Personal Care Assistance in Emergency Shelters

Wildfires, windstorms and floods have been in the news regularly this year. What if such a disaster suddenly hit your neighborhood? Would you be prepared? 

Planning ahead for emergency situations is especially important for people who have disabilities that affect mobility and self-care. You are in the best position to plan for your own safety and well-being since you know your functional abilities and needs best. But where do you begin?

MDA Hosting Four Webinars in August Aimed at Young Adults

Update (Aug. 22, 2012)  Links have been added to the archived versions of each webinar.

MDA’s public webinar series has a host of offerings in August for young adults with neuromuscular diseases who are interested in higher education and employment.

Muscle Physiology — Kristen Nowak, Ph.D.

MDA awarded a research grant totaling $329,091 over two years to Kristen Nowak, an associate professor at the University of Western Australia in Perth, and the Western Australian Institute for Medical Research. The funds will support Nowak's study of diseases caused by defects in the skeletal muscle actin gene, which include "essentially any genetic neuromuscular disease that tends to be severe in some patients and mild in others." 

MD — Xiaohua Wu, M.D., Ph.D.

MDA has awarded a research grant totaling $224,863 over three years to Xiaohua Wu, research faculty for the drug discovery group at the McColl-Lockwood Laboratory for Muscular Dystrophy Research at Carolinas Medical Center in Charlotte, N.C. The new funds will help support Wu’s research into effective therapies for various types of muscular dystrophy (MD).

Symposium Looks at Overcoming Immunologic Obstacles to Gene Therapy

Overcoming barriers to gene therapy — the delivery of therapeutic genes — to treat neuromuscular diseases was the topic of a symposium jointly sponsored by MDA and the Association Française Contre les Myopathies (French Association Against Myopathies, or AFM) at the 15th annual meeting of the American Society of Gene & Cell Therapy (ASGCT).