All Diseases

MDA Chairman of the Board Honored with ACMG Lifetime Achievement Award

It’s about the children, their health and their futures.

That’s long been the philosophy of R. Rodney Howell, M.D., renowned pediatrician and geneticist, and current chairman of the Board of Directors for the Muscular Dystrophy Association.

Conference Provides Updates for MDA Clinic Team Members

The 2012 MDA Clinical Conference, held in Las Vegas March 4 -7, gave more than 500 attendees an opportunity to learn from top experts about the latest advances in diagnosis, medical management and emerging therapies for neuromuscular diseases.

Money for Mice: MDA Funds Drug Testing Facility

The Muscular Dystrophy Association has given a $300,000 grant to the Center for Genetic Medicine Research (CGMR) at Children’s National Medical Center in Washington, D.C., to continue standardized and reliable preclinical studies of neuromuscular diseases.

MDA 2012 Clinical Conference to Take Place March 4-7

Current trends and practices in the treatment of neuromuscular disease, and exciting new therapeutic developments will be the focus of MDA’s 2012 Clinical Conference March 4-7, at the South Point Hotel in Las Vegas.

Although not open to the general public, the conference agenda and daily blogs about the proceedings will be available on the 2012 Clinical Conference website.

Bryson Foster Named MDA's 2012 National Goodwill Ambassador

If he inspires at least one person, Bryson Foster says it all will be worth it. If he amuses or amazes, that too will bring a nice inner satisfaction.

They all will be part of his role — and much, much more — as the Muscular Dystrophy Association's 2012 National Goodwill Ambassador.

Just Go for It: Dating Webinar Offers Tips, Encouragement

If you have limited movement, how do you make the first move on a date? Is it OK to bring a personal care attendant on a date? At what point would you let a "significant other" provide personal care for you?

'TSA Cares' To Aid Air Travelers with Disabilities

The U.S. Transportation Security Administration (TSA) recently launched a new program designed to help people with disabilities and medical conditions fly on commercial airlines with a minimum of hassle.

TSA is the arm of the U.S. Department of Homeland Security, and is best known for its uniformed officers who staff security checkpoints at airports and inspect travelers, their baggage and credentials.

ABLE Act Would Help Families Plan for Child's Financial Future

MDA Transitions Summit: Breaking Down the Barriers

When Angela Wrigglesworth, who has spinal muscular atrophy and uses a power chair, first started college at Texas A&M, she planned to be a business major. 

Getting to the business school, however, involved crossing a set of train tracks, and one day, Wrigglesworth’s chair got struck on the tracks.

Wrigglesworth received help from bystanders to free her 300-pound chair before a train came along, but after that harrowing experience, she decided to change majors.

Travis: I Got Lots of Neat Stuff (bilingual)

Dear Parents:

As the mother of a child with muscular dystrophy, I know very well the concerns and hopes you have for your child. I'm happy to share with you this version of Travis: I Got Lots of Neat Stuff, written in Spanish and English.

I was inspired to write this book by my son, Travis. I hope that reading about his joy in living will be meaningful for you and your child.

My family and I are deeply grateful to the Muscular Dystrophy Association for all the support and hope it provides as we live with dystrophy every day.

Last Updated: 
Sat, 08/01/2009 - 15:30

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