All Diseases

How To Get Personal Care Assistance in Emergency Shelters

Wildfires, windstorms and floods have been in the news regularly this year. What if such a disaster suddenly hit your neighborhood? Would you be prepared? 

Planning ahead for emergency situations is especially important for people who have disabilities that affect mobility and self-care. You are in the best position to plan for your own safety and well-being since you know your functional abilities and needs best. But where do you begin?

MDA Hosting Four Webinars in August Aimed at Young Adults

Update (Aug. 22, 2012)  Links have been added to the archived versions of each webinar.

MDA’s public webinar series has a host of offerings in August for young adults with neuromuscular diseases who are interested in higher education and employment.

Muscle Physiology — Kristen Nowak, Ph.D.

MDA awarded a research grant totaling $329,091 over two years to Kristen Nowak, an associate professor at the University of Western Australia in Perth, and the Western Australian Institute for Medical Research. The funds will support Nowak's study of diseases caused by defects in the skeletal muscle actin gene, which include "essentially any genetic neuromuscular disease that tends to be severe in some patients and mild in others." 

MD — Xiaohua Wu, M.D., Ph.D.

MDA has awarded a research grant totaling $224,863 over three years to Xiaohua Wu, research faculty for the drug discovery group at the McColl-Lockwood Laboratory for Muscular Dystrophy Research at Carolinas Medical Center in Charlotte, N.C. The new funds will help support Wu’s research into effective therapies for various types of muscular dystrophy (MD).

Symposium Looks at Overcoming Immunologic Obstacles to Gene Therapy

Overcoming barriers to gene therapy — the delivery of therapeutic genes — to treat neuromuscular diseases was the topic of a symposium jointly sponsored by MDA and the Association Française Contre les Myopathies (French Association Against Myopathies, or AFM) at the 15th annual meeting of the American Society of Gene & Cell Therapy (ASGCT).

Free Eye Exams for Service Dogs in May

Update (June 22, 2012) — The American College of Veterinary Ophthalmologists (AVCO) announced today that, with the help of 250 volunteer board-certified veterinary ophthalmologists, nearly 5,000 service animals were examined in the May 2012 event. Guide dogs, handicapped assistance dogs, detection dogs, search-and-rescue dogs and other service animals, including horses and a donkey, received free exams. ACVO plans to hold the event again in 2013.

MDA Chairman of the Board Honored with ACMG Lifetime Achievement Award

It’s about the children, their health and their futures.

That’s long been the philosophy of R. Rodney Howell, M.D., renowned pediatrician and geneticist, and current chairman of the Board of Directors for the Muscular Dystrophy Association.

Conference Provides Updates for MDA Clinic Team Members

The 2012 MDA Clinical Conference, held in Las Vegas March 4 -7, gave more than 500 attendees an opportunity to learn from top experts about the latest advances in diagnosis, medical management and emerging therapies for neuromuscular diseases.

Money for Mice: MDA Funds Drug Testing Facility

The Muscular Dystrophy Association has given a $300,000 grant to the Center for Genetic Medicine Research (CGMR) at Children’s National Medical Center in Washington, D.C., to continue standardized and reliable preclinical studies of neuromuscular diseases.

MDA 2012 Clinical Conference to Take Place March 4-7

Current trends and practices in the treatment of neuromuscular disease, and exciting new therapeutic developments will be the focus of MDA’s 2012 Clinical Conference March 4-7, at the South Point Hotel in Las Vegas.

Although not open to the general public, the conference agenda and daily blogs about the proceedings will be available on the 2012 Clinical Conference website.

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