Task Force Member Profiles
Rob Roozeboom
Sheldon, Iowa
Rob Roozeboom, 30, is founder and president
of RISE Ministries, an organization
that teaches teens and adults how to overcome
adversity in their lives.
Roozeboom travels the country giving motivational
speeches to a variety of audiences.
He speaks from experience, drawing from
his own journey through depression, loneliness,
substance abuse and suicidal despair.
He also shares his insights on a daily radio program called “Rise Above
Radio.” His minute-long segments, designed to motivate and inspire
young people, are heard on more than 300 stations worldwide.
Roozeboom is also the co-founder of the annual Rise Above Festival, a
family event that combines speakers, comedians, skateboarders, BMX
riders and bands. Thousands come each summer to enjoy the activities
and spend time with their families and friends.
Roozeboom was found to have limb-girdle muscular dystrophy in his
teens – around the time he was hoping to realize his dreams of becoming
a farmer and an athlete. The progressive disease causes weakness and
muscle wasting, initially affecting the shoulder and pelvic girdle muscles.
As of now, Roozeboom is ambulatory.
Roozeboom and his wife, Sharla, often speak on behalf of MDA and
represent the Association at fund-raisers and sponsor events across the
country. In 2001 and 2002, he was profiled on the national broadcasts of
the Jerry Lewis MDA Telethon.
The Roozebooms, their young son, Jager, and daughter, Riley, look forward
with enthusiasm each fall to participating in the harvest of their
family's crops.
Christopher Rosa, Ph.D.
Flushing, N.Y.
Chris Rosa, 40, is University Director for
Student Affairs, City University of New
York (CUNY). Rosa earned a doctorate
in sociology at the CUNY Graduate
Center; his dissertation is on "Disability
Rites: The Construction of Disability
Culture." Each year since 1997, Rosa has
authored chapters advising students with
disabilities on how to choose colleges,
graduate and professional schools in a published series for the Kaplan
Interactive Division of Simon & Schuster.
Rosa, who lives in Flushing, N.Y., graduated Phi Beta Kappa from
Queens College with a double major in sociology and philosophy. His
activities include coaching basketball for Catholic Youth Organization
and teaching at City University.
Rosa served as chairperson of the Subcommittee
on Employee Disability Concerns of the President's
Committee on Employment of People with Disabilities.
As a member of the New York State Independent
Living Council, Rosa is involved in making
policies that ensure that state agencies providing
services to consumers with disabilities do
so in ways that empower these individuals
and foster their independence.
A member of the national task force steering committee, Rosa was
profiled on the 1993 national broadcast of the MDA Telethon. He was
named an MDA national vice president in 1994 and elected to MDA's
Board of Directors in 1997. Rosa was the recipient of MDA's 1997
National Personal Achievement Award.
Rosa has Becker muscular dystrophy, a slowly progressing muscle-wasting
disease. His condition was diagnosed when he was 9; his brother,
Gian, a 37-year-old higher education professional, also has Becker muscular
dystrophy.
Matthew Schuman
Greeley, Colo.
Matt Schuman of Greeley, Colo., works as
a sports reporter for the Greeley Tribune,
covering Greeley High School sports and
the Denver Broncos.
A former MDA Colorado State Goodwill
Ambassador for six years, Schuman fought
for several years to be mainstreamed in the
public schools, achieving his goal before
his high school graduation. He holds a degree in journalism from the
University of Northern Colorado in Greeley.
Schuman, 43, is a board member for the Northern Colorado Center on
Deafness and Disabilities. An active speaker for MDA, Schuman was
MDA's 1992 Personal Achievement Award recipient for Colorado. He
was the subject of a profile featured on the national broadcast of the
1992 MDA Telethon.
Schuman has type 1 spinal muscular atrophy, which was diagnosed
when he was an infant. The progressive condition leads to generalized
muscle weakness and paralysis of the limbs.
David A. Sheffield, Esq.
Silsbee, Texas
David Sheffield, the elected County Attorney
for Hardin County, Texas, lives in Silsbee
with his wife, Dr. Joyce Reed, and daughter,
Erin. Sheffield was first elected in 1993
and is serving his fourth term in office.
In the past, he's served as first assistant
district attorney for the county, as well
as chief legal counsel of the Southeast Texas
Regional Planning Commission.
Currently he's chairman of the four-county Big Thicket District of the
Boy Scouts of America, and also serves as an officer and director of
Goodwill Industries of Southeast Texas and Southwest Louisiana. At 16,
Sheffield became an advanced-class amateur radio operator (KB5UY)
and still enjoys the hobby today.
Sheffield, 44, earned his undergraduate degree
at Lamar University in Beaumont, Texas. Determined
to be self-supporting, he transported his
iron lung to the University of Mississippi
and slept in it every night while studying
for his law degree.
Sheffield was profiled on the 1991 and 1992
national broadcasts of the MDA Telethon and
has served as an MDA national vice president.
In 2004, David was the state recipient of
the MDA Personal Achievment Award and was
a finalist for the national award.
Sheffield has a neuromuscular disorder similar to SMA, which involves
weakness and wasting of the voluntary and respiratory muscles.
Angela Wrigglesworth
Houston, Texas
Angela Wrigglesworth's advocacy for people
with disabilities is illustrated by the personal
example she sets and by her extensive volunteer
and community involvement.
Wrigglesworth, 29, teaches third grade in
the Houston area. She graduated in 1999
from Texas A&M University with a bachelor's
degree in elementary education.
As the college's first student using a wheelchair to take part in sorority
rush, she spurred changes that have made all sorority houses on campus
wheelchair-accessible. She was involved in numerous campus organizations,
student government and community projects. As a member of the
Parking and Transit Student Advisory Board, she worked to improve
accessibility on the Texas A&M campus.
Involved in her community as well, she works at a camp for children
with disabilities, is active in her church, and helps local charities.
Wrigglesworth has held many leadership roles
with MDA, starting as a child when she served
as Texas MDA Goodwill Ambassador in 1985 and
1986. She's appeared on local broadcasts of
the MDA Telethon since she was 6 years old,
and has personally raised $70,000 for the
Association. Wrigglesworth has been involved
with MDA summer camp since she was a youngster.
She was the 1997 recipient of the Association's
Personal Achievement Award for Texas and frequently
speaks on behalf of MDA. Wrigglesworth was
named Ms. Wheelchair Texas 2004 and now serves
as the executive director of the Ms. Wheelchair
Texas Foundation.
As an infant, Wrigglesworth received a diagnosis of spinal muscular
atrophy, a progressive motor neuron disease that causes weakness in the
arms, legs and torso.
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