Myotonic Chat Group

vdoman (Jun 25, 2008 8:43:58 PM)
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vdoman (Jun 25, 2008 8:44:14 PM)
Hi Ray

PaRay (Jun 25, 2008 8:44:36 PM)
Hey Corey.

PaRay (Jun 25, 2008 8:44:44 PM)
How goes it?

vdoman (Jun 25, 2008 8:45:38 PM)
Doin Ok that poemwas very relevant. I forward it to Marcia

PaRay (Jun 25, 2008 8:46:16 PM)
I liked the poem too.

PaRay (Jun 25, 2008 8:46:37 PM)
Have you heard from Marci a?

Buddy (Jun 25, 2008 8:46:47 PM)
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fluffy (Jun 25, 2008 8:46:51 PM)
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vdoman (Jun 25, 2008 8:46:56 PM)
Where is everyone. Yes talked to her

Buddy (Jun 25, 2008 8:47:09 PM)
Hi PaRay

PaRay (Jun 25, 2008 8:47:12 PM)
Hey Buddy and Fluffy

vdoman (Jun 25, 2008 8:47:21 PM)
She is still hving a hard time

fluffy (Jun 25, 2008 8:47:30 PM)
hi paray buddy and vdoman

vdoman (Jun 25, 2008 8:47:51 PM)
Hi Buddy and Fluffy

Buddy (Jun 25, 2008 8:47:53 PM)
Hi flufft

PaRay (Jun 25, 2008 8:47:56 PM)
What's happening tonight?

vdoman (Jun 25, 2008 8:49:17 PM)
Fresno State Baseball series against Georgia Bulldogs and Fresno is winning Yea!!!!!

Buddy (Jun 25, 2008 8:49:17 PM)
I have an allgery headache, anybody else?

fluffy (Jun 25, 2008 8:49:58 PM)
my husbands son husband's uncle and I are going to Hamiltom Lake this weekehd for a familtyget together

PaRay (Jun 25, 2008 8:50:38 PM)
Have a good time Fluffy.

fluffy (Jun 25, 2008 8:50:44 PM)
luckily I don't have allergies so no

vdoman (Jun 25, 2008 8:50:44 PM)
Sounds like a blast

fluffy (Jun 25, 2008 8:51:37 PM)
I.m looking forward to it

PaRay (Jun 25, 2008 8:52:32 PM)
Where is Hamilton lake?

vdoman (Jun 25, 2008 8:53:00 PM)
How is everyone feeling tonight?

PaRay (Jun 25, 2008 8:53:37 PM)
I am feeling with my fingers.

vdoman (Jun 25, 2008 8:54:04 PM)
Sounds kinky Ray

fluffy (Jun 25, 2008 8:54:43 PM)
Near Goshen Indiana

fluffy (Jun 25, 2008 8:55:39 PM)
I am a little sore from my fall knee is still a little swollen

PaRay (Jun 25, 2008 8:55:47 PM)
Is that northern Indiana?

vdoman (Jun 25, 2008 8:56:04 PM)
How are the Rivers in Indiana? Are they staying below food stage

fluffy (Jun 25, 2008 8:56:11 PM)
Yes

vdoman (Jun 25, 2008 8:56:14 PM)
flood

fluffy (Jun 25, 2008 8:56:24 PM)
Yes

Buddy (Jun 25, 2008 8:56:34 PM)
I introduced 2 people to the chat room hope they log on

fluffy (Jun 25, 2008 8:57:14 PM)
that is neat the more the merrier

vdoman (Jun 25, 2008 8:58:05 PM)
With 6 of us we can party! He Haw

vdoman (Jun 25, 2008 8:59:39 PM)
Fresno State is winning the national championship 6-0 in the 6th inning

shelly (Jun 25, 2008 8:59:42 PM)
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vdoman (Jun 25, 2008 8:59:51 PM)
Hi Shelly

shelly (Jun 25, 2008 8:59:53 PM)
hi guys

Buddy (Jun 25, 2008 9:00:02 PM)
Hi Shelly

fluffy (Jun 25, 2008 9:00:04 PM)
hi shelly

shelly (Jun 25, 2008 9:00:13 PM)
how's everyone doing?

shelly (Jun 25, 2008 9:00:22 PM)
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vdoman (Jun 25, 2008 9:00:27 PM)
Doing good

fluffy (Jun 25, 2008 9:00:39 PM)
little sore

Buddy (Jun 25, 2008 9:00:53 PM)
allgery headache

shelly (Jun 25, 2008 9:01:44 PM)
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shelly (Jun 25, 2008 9:01:48 PM)
oops

PaRay (Jun 25, 2008 9:01:59 PM)
Hey Shelly

shelly (Jun 25, 2008 9:02:06 PM)
Ray Ray!

shelly (Jun 25, 2008 9:02:09 PM)
wassup?

vdoman (Jun 25, 2008 9:02:13 PM)
Wb Shelly

shelly (Jun 25, 2008 9:02:26 PM)
I had a blonde moment

PaRay (Jun 25, 2008 9:02:28 PM)
The sky!!!

PaRay (Jun 25, 2008 9:02:55 PM)
That's better than a senior moment.

shelly (Jun 25, 2008 9:02:57 PM)
you could say blood pressure RAY

vdoman (Jun 25, 2008 9:03:09 PM)
Not a senior moment

shelly (Jun 25, 2008 9:03:15 PM)
I am only 35 and I have CRAFT

fluffy (Jun 25, 2008 9:04:01 PM)
What is CRAFT?

shelly (Jun 25, 2008 9:04:08 PM)
Can't Remeber a f Thing

Buddy (Jun 25, 2008 9:04:49 PM)
I have CRS

fluffy (Jun 25, 2008 9:05:10 PM)
I know what that is

vdoman (Jun 25, 2008 9:05:14 PM)
I am afraid to ask what is CRS

Buddy (Jun 25, 2008 9:05:51 PM)
Cann't remember s--t

vdoman (Jun 25, 2008 9:06:28 PM)
Yes I just got it

PaRay (Jun 25, 2008 9:06:29 PM)
I can't remember were this all started.

Buddy (Jun 25, 2008 9:07:46 PM)
O you know SFB?

fluffy (Jun 25, 2008 9:08:11 PM)
we had a cookout this weekend for m birthday which was yesterday 46

PaRay (Jun 25, 2008 9:08:47 PM)
Happy Birthday Fluff

Buddy (Jun 25, 2008 9:08:59 PM)
Happy birthday fluffy

vdoman (Jun 25, 2008 9:09:18 PM)
You are a party animal Fluffy, Happy Birthday to you!!!!

barryc (Jun 25, 2008 9:09:33 PM)
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momma (Jun 25, 2008 9:09:34 PM)
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fluffy (Jun 25, 2008 9:09:39 PM)
thank you all

vdoman (Jun 25, 2008 9:09:45 PM)
Hi Momma

momma (Jun 25, 2008 9:09:50 PM)
hello

barryc (Jun 25, 2008 9:09:58 PM)
howdy guys

fluffy (Jun 25, 2008 9:10:07 PM)
hi barry and momma

Buddy (Jun 25, 2008 9:10:13 PM)
Hi Barry

PaRay (Jun 25, 2008 9:10:17 PM)
Hi Barry and Momma.

shelly (Jun 25, 2008 9:10:19 PM)
Hi Barry

momma (Jun 25, 2008 9:10:20 PM)
just dropped in my group hasnt arrived so i thought id bug ya'll

vdoman (Jun 25, 2008 9:10:24 PM)
Well hello stranger Mr Barry

barryc (Jun 25, 2008 9:10:49 PM)
corey.... rays are beating Marlins 14-0 and it is only the 6th inning.... went to a ray game this weekend

fluffy (Jun 25, 2008 9:10:50 PM)
barry long time

barryc (Jun 25, 2008 9:11:38 PM)
corey.... lots happening... watching my grandson this week at the condo... wendy and family are in nyc playing and then going to a stuttering conference (my other grandson, Even, is a stutterer)

Buddy (Jun 25, 2008 9:11:41 PM)
All right Barry I love baseball

barryc (Jun 25, 2008 9:11:49 PM)
hi fluffy...miss you, too

shelly (Jun 25, 2008 9:12:18 PM)
I went to the pulmonologist today. I only have like 65% lung capacity from their test

vdoman (Jun 25, 2008 9:12:19 PM)
Barry Fresno State is beating Georgia 6-0 in the 6th inning

shelly (Jun 25, 2008 9:12:34 PM)
Now I have to go sleep over a a sllep study place

barryc (Jun 25, 2008 9:12:39 PM)
rays, buddy, are almost in first place, and battling for that place with Boston (incredible team)... it is like the mets coming into first place years ago when they were losers.

StevesDad (Jun 25, 2008 9:12:42 PM)
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momma (Jun 25, 2008 9:12:54 PM)
tc to all :)

fluffy (Jun 25, 2008 9:12:55 PM)
good luck shelly

StevesDad (Jun 25, 2008 9:12:56 PM)
hey all!

momma (Jun 25, 2008 9:13:00 PM)
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shelly (Jun 25, 2008 9:13:14 PM)
My neoro doc wants me on bipap, but I have to do the sleep study first

Buddy (Jun 25, 2008 9:13:22 PM)
HI Steves dad long time

barryc (Jun 25, 2008 9:13:27 PM)
go Fresno State... maybe some day they will play the clearwater phillies

StevesDad (Jun 25, 2008 9:13:53 PM)
hi buddy.. yeah, bene a long time.. spending more time outdoors in the summer

barryc (Jun 25, 2008 9:14:01 PM)
shelly, when are you getting down to clearwater and visiting your uncle?

StevesDad (Jun 25, 2008 9:14:01 PM)
but it is raining out now...

shelly (Jun 25, 2008 9:14:03 PM)
I am not too pleased about going somewhere and being hooked up like 50x and then having someone watch me sleep

fluffy (Jun 25, 2008 9:14:15 PM)
I have a bi=pap and can't sleep alnight with it\

shelly (Jun 25, 2008 9:14:23 PM)
why not?

vdoman (Jun 25, 2008 9:14:28 PM)
Hi Steve

StevesDad (Jun 25, 2008 9:14:38 PM)
hi V...

barryc (Jun 25, 2008 9:15:07 PM)
corey, did you get the photos I emailed you for the album you are preparing for the MMD conference?

shelly (Jun 25, 2008 9:15:10 PM)
is it uncomfortable fluffy

beth (Jun 25, 2008 9:16:17 PM)
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shelly (Jun 25, 2008 9:16:29 PM)
Barry- I'm not sure-If we have some time this summer- I'm between jobs right now-when that gets squared away, I may go visit the family

Buddy (Jun 25, 2008 9:16:29 PM)
Hi Beth

shelly (Jun 25, 2008 9:16:38 PM)
Have you spoken to him again?

barryc (Jun 25, 2008 9:16:41 PM)
shelly,,,, why are you doing a sleep study? Julie refuses to do one, even through she sleeps most mornings and her day starts about noon.

fluffy (Jun 25, 2008 9:16:44 PM)
I don't know I put it on at 11:00 wake up about 3:00 and can't get back to sleep with it on

vdoman (Jun 25, 2008 9:16:45 PM)
Steve have you decided which conference you will go to the Calif conference is about the child with mmd

penwarf (Jun 25, 2008 9:16:57 PM)
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vdoman (Jun 25, 2008 9:16:59 PM)
Yes Bary I got it

barryc (Jun 25, 2008 9:17:01 PM)
no shelly

vdoman (Jun 25, 2008 9:17:10 PM)
Hi Penny

penwarf (Jun 25, 2008 9:17:24 PM)
hi everyone .. long time

barryc (Jun 25, 2008 9:17:26 PM)
.shelly, I asked your uncle to call after he read Terry's book...but have not heard from him

shelly (Jun 25, 2008 9:17:42 PM)
Because I am waking up tired and my neurologist I would feel much much better in the morning.

barryc (Jun 25, 2008 9:17:43 PM)
welcome back penny

StevesDad (Jun 25, 2008 9:17:49 PM)
V - I'm leavning towards Chicago since it will be more cost effective.. flights are very expensive

penwarf (Jun 25, 2008 9:17:52 PM)
thanks

vdoman (Jun 25, 2008 9:18:04 PM)
Penny how is your granddaugher

shelly (Jun 25, 2008 9:18:08 PM)
Those with MMD have weak trunk muscles which stresses our lungs and I'm sure our heart

fluffy (Jun 25, 2008 9:18:15 PM)
Shelly I don't think it is

barryc (Jun 25, 2008 9:18:16 PM)
let us know what you learn shelly

beth (Jun 25, 2008 9:18:34 PM)
hi everyone

fluffy (Jun 25, 2008 9:18:36 PM)
I don't

shelly (Jun 25, 2008 9:18:42 PM)
The first part of the 3 pat component is a monitor attached to your finger overnight

barryc (Jun 25, 2008 9:18:49 PM)
Terry

Buddy (Jun 25, 2008 9:18:51 PM)
Hi Beth

penwarf (Jun 25, 2008 9:19:10 PM)
sorry .. my husband was on the phone just now so i was distracted. kali's doing well

beth (Jun 25, 2008 9:19:12 PM)
how is every one

shelly (Jun 25, 2008 9:19:17 PM)
Then you see the pulmonologist if there is anything abnormal which I had

fluffy (Jun 25, 2008 9:19:21 PM)
didn't have that

shelly (Jun 25, 2008 9:19:25 PM)
then the sleep study

StevesDad (Jun 25, 2008 9:19:32 PM)
V - how is Kevin doing?

barryc (Jun 25, 2008 9:19:43 PM)
Terry and I are off to Canadian Rockies in about a week... should be a blast... our tour guide is a national park ranger and we used him last year.... he specializes on booking trips for people with disabilities...

vdoman (Jun 25, 2008 9:19:55 PM)
Doing Well Thank you Steve

beth (Jun 25, 2008 9:19:57 PM)
has any one talked to marcia

shelly (Jun 25, 2008 9:20:16 PM)
barry- my uncle-poor guy- is so hard to understand

shelly (Jun 25, 2008 9:20:22 PM)
on the telephone

beth (Jun 25, 2008 9:20:43 PM)
i been to the rockies in colorasd

barryc (Jun 25, 2008 9:21:04 PM)
corey...wendy and family are moving to Tampa end of July... soooo the kiddies will be close by and maybe I will go to more Yankee spring training games in Tampa

vdoman (Jun 25, 2008 9:21:13 PM)
MM is having a very rough time. She has bee seeing a counselor

suziern (Jun 25, 2008 9:21:19 PM)
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beth (Jun 25, 2008 9:21:37 PM)
hi suzie

fluffy (Jun 25, 2008 9:21:38 PM)
hi suzette

suziern (Jun 25, 2008 9:21:43 PM)
Hey everybody

vdoman (Jun 25, 2008 9:21:53 PM)
Awesme Barry Julie will like that

vdoman (Jun 25, 2008 9:22:03 PM)
H Suzette

suziern (Jun 25, 2008 9:22:07 PM)
Has Robyn been on tonight?

suziern (Jun 25, 2008 9:22:10 PM)
Hey

beth (Jun 25, 2008 9:22:10 PM)
barry hoe long willl you and tery be gone

vdoman (Jun 25, 2008 9:22:18 PM)
Not yet

barryc (Jun 25, 2008 9:22:22 PM)
I emailed marcia... agree she is having a hard time of it... hope we all can support her in LA conference...

suziern (Jun 25, 2008 9:22:27 PM)
has anyone been able to make reservations yet for the conference hotel?

shelly (Jun 25, 2008 9:22:43 PM)
How are you doing Ray?

barryc (Jun 25, 2008 9:22:50 PM)
suziern.... how are things going to you and the little guy?

Buddy (Jun 25, 2008 9:22:56 PM)
Anyone heard from Ace?

fluffy (Jun 25, 2008 9:23:00 PM)
long time it seems we get on when the other one is not on

shelly (Jun 25, 2008 9:23:07 PM)
he was on last week

vdoman (Jun 25, 2008 9:23:10 PM)
The block of rooms are not avaiable yet Sz

beth (Jun 25, 2008 9:23:12 PM)
i wish i coud go but can;t afford it and i hsave some drs appt besides

suziern (Jun 25, 2008 9:23:13 PM)
Okay Barry, he went to MDA camp and had a great time

PaRay (Jun 25, 2008 9:23:26 PM)
Shelly...Just trying to be nice. Hard for me to do!!!

barryc (Jun 25, 2008 9:23:31 PM)
Ray.... understand you left home (displaced) by a storm... are you back home now?

StevesDad (Jun 25, 2008 9:23:45 PM)
are the conference materials for both conferences going to be shared with everyone? I know the chicago one is going to provide it to the attendees

shelly (Jun 25, 2008 9:23:51 PM)
nah- Raay you are such a nice guy

barryc (Jun 25, 2008 9:24:14 PM)
I flunked admission to MDA camp counselor job... local MDA office said they wanted young people (age discrimination, right?)

PaRay (Jun 25, 2008 9:24:15 PM)
Utitlies back on. Missing a couple of trees.

shelly (Jun 25, 2008 9:24:28 PM)
they turned me down

penwarf (Jun 25, 2008 9:24:37 PM)
has anyone talked to robyn g lately?

vdoman (Jun 25, 2008 9:24:45 PM)
Steve we will wbcast MMD Conference

suziern (Jun 25, 2008 9:24:45 PM)
I still just can't belive that they are having that one in Chicago on the exact same day as ours. These are the only two I know of and now I can only attend one.

StevesDad (Jun 25, 2008 9:25:07 PM)
V - will the webcast be available for viewing at a later time?

suziern (Jun 25, 2008 9:25:10 PM)
Are you kidding Barry?

StevesDad (Jun 25, 2008 9:25:23 PM)
Suzie - I know, I would like to be able to go to both....

barryc (Jun 25, 2008 9:25:23 PM)
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shelly (Jun 25, 2008 9:25:26 PM)
This was like 9 years ago and I told that that I can tube feed, lift, etc. . . .I teach Special Education. . . they said no because I am affected

vdoman (Jun 25, 2008 9:25:30 PM)
No but I ill have a DVD

barryc (Jun 25, 2008 9:25:33 PM)
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beth (Jun 25, 2008 9:25:37 PM)
when will the web cast be and how do we gew to it

StevesDad (Jun 25, 2008 9:26:02 PM)
V - that would be great if we could obtain copies to share

barryc (Jun 25, 2008 9:26:31 PM)
got kicked off...thought those days were over... but computers never fail to surprise me.

vdoman (Jun 25, 2008 9:26:36 PM)
It will be announced prior to conference

suziern (Jun 25, 2008 9:26:59 PM)
Gee Shelly, I think BillyDean's older brother, Brett, wanted to be a counselor at Victory Junction Nascar Camp in NC, I hope he does not get turned down because he has MMD.

vdoman (Jun 25, 2008 9:27:03 PM)
User era Barry

shelly (Jun 25, 2008 9:27:05 PM)
where can I find a copy of the agenda for the conference?

barryc (Jun 25, 2008 9:27:19 PM)
beth... Terry and I are going to the Calgary Stampede (rodeo) first day we arrive in Canada... do you guys in Texas do rodeos?

StevesDad (Jun 25, 2008 9:27:35 PM)
shelly - I know the Chicago one has a pamphlet you can download.. haven't seen the final one for LA yet.

shelly (Jun 25, 2008 9:27:35 PM)
they were very firm in saying no to me

shelly (Jun 25, 2008 9:27:45 PM)
I was almost offended

beth (Jun 25, 2008 9:28:00 PM)
we have rodeos but i just go to watch

shelly (Jun 25, 2008 9:28:02 PM)
That was when I was presymptomatic

suziern (Jun 25, 2008 9:28:02 PM)
Gee, well that is too bad ,especially with your experience with special kids

shelly (Jun 25, 2008 9:28:20 PM)
well now I'd probably be a liability

vdoman (Jun 25, 2008 9:28:26 PM)
Agenda will be in newsletter

barryc (Jun 25, 2008 9:28:30 PM)
anyone hear from LISA? been a while since she as been on line

shelly (Jun 25, 2008 9:28:35 PM)
Reaching Out?

beth (Jun 25, 2008 9:28:39 PM)
we had a live stock show and rodeo in houston

shelly (Jun 25, 2008 9:28:45 PM)
Where is my copy Ray?

suziern (Jun 25, 2008 9:28:49 PM)
She posts now and then in our CMMD yahoo chat group

vdoman (Jun 25, 2008 9:28:56 PM)
I saw Jeff ad Her 2 weeks ago

penwarf (Jun 25, 2008 9:29:12 PM)
barry - lisa v? just talked to her an hour ago. she's swamped the poor thing.

PaRay (Jun 25, 2008 9:29:26 PM)
Shelly....On hold.

shelly (Jun 25, 2008 9:29:52 PM)
are you back in your house? What the heck happened?

vdoman (Jun 25, 2008 9:30:20 PM)
Got to go to Kevs Piano lesson Bye eeryone

suziern (Jun 25, 2008 9:30:24 PM)
Barry, is Terry still working on his new book?

shelly (Jun 25, 2008 9:30:27 PM)
night

suziern (Jun 25, 2008 9:30:31 PM)
Bye

barryc (Jun 25, 2008 9:30:33 PM)
lisa is so talented... I hope she can keep up the pace and also do some things for herself...

StevesDad (Jun 25, 2008 9:30:37 PM)
bye V

fluffy (Jun 25, 2008 9:30:38 PM)
nye

PaRay (Jun 25, 2008 9:30:43 PM)
Shelly...Had a little wind storm. House was OK.

beth (Jun 25, 2008 9:30:49 PM)
barry we go to the MDA rodeoevery year

vdoman (Jun 25, 2008 9:30:51 PM)
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shelly (Jun 25, 2008 9:30:59 PM)
good- power got knocked out?

shelly (Jun 25, 2008 9:31:13 PM)
what were the winds

shelly (Jun 25, 2008 9:31:15 PM)
?

shelly (Jun 25, 2008 9:31:28 PM)
mph

suziern (Jun 25, 2008 9:31:38 PM)
Fluffy, remember out next MMD meeting in July is at the Southside location, not PIke library

PaRay (Jun 25, 2008 9:31:41 PM)
No power and no phone for 28 hours.

suziern (Jun 25, 2008 9:31:59 PM)
what did you do Ray?

shelly (Jun 25, 2008 9:32:07 PM)
Hope it wasn't too bad for you

beth (Jun 25, 2008 9:32:10 PM)
that why you need a call phone

fluffy (Jun 25, 2008 9:32:12 PM)
where I forgot?

suziern (Jun 25, 2008 9:32:13 PM)
I just read the book "A new earth".

beth (Jun 25, 2008 9:32:26 PM)
cell

StevesDad (Jun 25, 2008 9:32:26 PM)
Ray - We had some bad storms here in Michigan 2 weeks.. half million people without power.. my parents were without power and phone for 4 days

suziern (Jun 25, 2008 9:32:36 PM)
White River Library, south side

PaRay (Jun 25, 2008 9:32:41 PM)
Stayed in the dark and went to Starbucks for coffee. LOL

barryc (Jun 25, 2008 9:32:45 PM)
suziern... funny that you ask... terry is working on the book, but it has been hard to find time...lots happening... daughter moving to Tampa... Terry on a special med to lose weight and he is, along with fighting high blood sugar and dealing with a lot of friends... but all this means we need to focus more and terry told me that... soooo I think while we are in Canada, we are going to talk about more dedicated time for the book... in between all this, terry is getting sales from his first book and doing well.

suziern (Jun 25, 2008 9:32:45 PM)
Address will be in the reminder flyer you will get

suziern (Jun 25, 2008 9:32:58 PM)
speaker is coming to talk about denial in families

shelly (Jun 25, 2008 9:33:41 PM)
barry- can I ask what Terry is taking to lose weight?

suziern (Jun 25, 2008 9:34:16 PM)
Wow, I would guess he will continue to have sales from his first book till we ever finally wipe out MMD

suziern (Jun 25, 2008 9:34:44 PM)
I am constantly searching for the latest publication, book, or study/trial results about MMD to read

shelly (Jun 25, 2008 9:34:54 PM)
where is iris?

beth (Jun 25, 2008 9:35:37 PM)
there is always something in the Quest magazine

shelly (Jun 25, 2008 9:35:56 PM)
suzie- will I get this flyer- I have received Reaching out

beth (Jun 25, 2008 9:36:12 PM)
i hae a bunsh of pen pals from the Quest magazine

suziern (Jun 25, 2008 9:36:16 PM)
I have lost 48 pounds, been doing my elliptical every day for an hour and drinking a gallon of water every day, and also eating right now finally. They told me at Church I look healthy now and I feel much better.

shelly (Jun 25, 2008 9:36:38 PM)
There is always something in Quest, but let's start testing these drugs on people not rats

suziern (Jun 25, 2008 9:36:49 PM)
Shelly, this flyer goes out to the IN MMD members registered with the MDA, for our MMD meetings

suziern (Jun 25, 2008 9:36:57 PM)
I forgot, where are you located?

Buddy (Jun 25, 2008 9:37:18 PM)
I'm with you Shelly

suziern (Jun 25, 2008 9:37:45 PM)
I also try to call and do reminders before our meetings for those without email

shelly (Jun 25, 2008 9:38:06 PM)
I am registeed with MDA

suziern (Jun 25, 2008 9:38:39 PM)
This flyer is just reminders of our meetings, usually goes out a week or two before each one

shelly (Jun 25, 2008 9:39:13 PM)
My uncle goes to Rochester and they do drug trials on him

shelly (Jun 25, 2008 9:39:27 PM)
Barry- not the one you spoke to

Buddy (Jun 25, 2008 9:39:40 PM)
How often does Quet come out I hardly ever get iy

suziern (Jun 25, 2008 9:39:41 PM)
Well, I am going to check on BillyDean and see if he is asleep yet. I have been putting on his Bipap AFTER he is well asleep here lately.

fluffy (Jun 25, 2008 9:40:17 PM)
does it work better?

suziern (Jun 25, 2008 9:40:17 PM)
I will talk to you all next week hopefully. Goodnight all.

shelly (Jun 25, 2008 9:40:18 PM)
I wish I could do some, but I can't take off work

beth (Jun 25, 2008 9:40:18 PM)
there is a triel going on on IPEX drug i got some paper work but don't under stand waht they want on ot

suziern (Jun 25, 2008 9:40:30 PM)
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StevesDad (Jun 25, 2008 9:40:33 PM)
i need to head out too.. steve has his 9 month check up first thing tomorrow morning, so need to get some sleep.. have a g'night everyone

shelly (Jun 25, 2008 9:40:46 PM)
he's on disablility

StevesDad (Jun 25, 2008 9:41:10 PM)
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fluffy (Jun 25, 2008 9:41:24 PM)
I"ll talk to you all later, Goodnight

beth (Jun 25, 2008 9:41:34 PM)
bye fluffy

penwarf (Jun 25, 2008 9:41:41 PM)
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fluffy (Jun 25, 2008 9:41:54 PM)
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penwarf (Jun 25, 2008 9:41:56 PM)
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shelly (Jun 25, 2008 9:41:57 PM)
night you all-peace

beth (Jun 25, 2008 9:42:10 PM)
bye shelly

shelly (Jun 25, 2008 9:42:14 PM)
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barryc (Jun 25, 2008 9:43:09 PM)
duh,... sorry I am back... just got a call and was distracted...

beth (Jun 25, 2008 9:43:18 PM)
well everyone seemed to get realquiet

penwarf (Jun 25, 2008 9:43:26 PM)
do any of you know how robyn g is doing?

beth (Jun 25, 2008 9:43:46 PM)
she was here last week

penwarf (Jun 25, 2008 9:43:55 PM)
where's here?

beth (Jun 25, 2008 9:44:04 PM)
on the chat

penwarf (Jun 25, 2008 9:44:34 PM)
oh duh .. i was thinking you meant a physical location.

beth (Jun 25, 2008 9:44:42 PM)
no

beth (Jun 25, 2008 9:45:25 PM)
actually have not met any one from the chat in person

barryc (Jun 25, 2008 9:45:36 PM)
well, time to say good night... take care all

barryc (Jun 25, 2008 9:45:42 PM)
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penwarf (Jun 25, 2008 9:45:51 PM)
well ... bye all i need to go finish making dinner .. this 6:00 o c'lock chat time is tough for me

penwarf (Jun 25, 2008 9:46:10 PM)
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beth (Jun 25, 2008 9:46:16 PM)
i need to go to goodnight

beth (Jun 25, 2008 9:46:39 PM)
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Buddy (Jun 25, 2008 9:47:20 PM)
PaRay what state are you in

Buddy (Jun 25, 2008 9:49:32 PM)
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PaRay (Jun 25, 2008 10:06:59 PM)
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