LGMD Chat
paper (Nov 13, 2009 7:54:07 PM)
PompesMom (Nov 13, 2009 7:56:01 PM)
(This user has entered LGMD Chat)
paper (Nov 13, 2009 7:56:10 PM)
hi
PompesMom (Nov 13, 2009 7:56:22 PM)
HI there
paper (Nov 13, 2009 7:56:30 PM)
are you new to chat
PompesMom (Nov 13, 2009 7:56:46 PM)
Yes, very first time here.
paper (Nov 13, 2009 7:56:53 PM)
welcome
PompesMom (Nov 13, 2009 7:56:57 PM)
ty
paper (Nov 13, 2009 7:57:08 PM)
can you tell me about you
paper (Nov 13, 2009 7:57:17 PM)
i am 35 with central core md
paper (Nov 13, 2009 7:57:34 PM)
mom with 2 kids and i am in indiana
PompesMom (Nov 13, 2009 7:58:48 PM)
I am here for my Step Daughter. She is 22 and has Pompes. She just found out she is pregnet. She is deterating fast and I am scared. We live in Indiana as well. Before they found out she had pompes they thought she had LG
paper (Nov 13, 2009 7:59:26 PM)
ok great to know you sorry about her
paper (Nov 13, 2009 7:59:54 PM)
pregancy seams to make things worse
PompesMom (Nov 13, 2009 8:00:28 PM)
She is very sick. The pregnancy is a kick in the head. Her respitory is at 35% --we married her 2 weeks ago becuase we are afraid of what is to come.
paper (Nov 13, 2009 8:00:31 PM)
have you signed up for mymda online comunity yet
PompesMom (Nov 13, 2009 8:00:58 PM)
no i have not
paper (Nov 13, 2009 8:01:11 PM)
would you like the url to it
PompesMom (Nov 13, 2009 8:01:18 PM)
sure
paper (Nov 13, 2009 8:01:26 PM)
ok hold on ill get it for u
paper (Nov 13, 2009 8:01:52 PM)
http://mymda.mda.org/service/displayHomePageExperience.kickAction?page=Homepage&as=84464
paper (Nov 13, 2009 8:02:16 PM)
it is nice cause you cant blog and get answers to qus
paper (Nov 13, 2009 8:02:28 PM)
lot of great info on there
paper (Nov 13, 2009 8:03:29 PM)
howis her obgyn taking care of her
paper (Nov 13, 2009 8:03:47 PM)
how far along is she
budmello (Nov 13, 2009 8:04:16 PM)
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paper (Nov 13, 2009 8:04:22 PM)
hey bud
paper (Nov 13, 2009 8:04:44 PM)
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pete46 (Nov 13, 2009 8:05:00 PM)
(This user has entered LGMD Chat)
paper (Nov 13, 2009 8:05:05 PM)
(This user has entered LGMD Chat)
pete46 (Nov 13, 2009 8:05:13 PM)
hello
budmello (Nov 13, 2009 8:05:38 PM)
hello Paper ! Where 's Pen ?
paper (Nov 13, 2009 8:05:39 PM)
oops lol
paper (Nov 13, 2009 8:05:48 PM)
?
budmello (Nov 13, 2009 8:05:53 PM)
lol
pete46 (Nov 13, 2009 8:06:01 PM)
iwith teller
paper (Nov 13, 2009 8:06:08 PM)
lol pete
pete46 (Nov 13, 2009 8:06:11 PM)
lol
budmello (Nov 13, 2009 8:06:15 PM)
hello pete
pete46 (Nov 13, 2009 8:06:21 PM)
hio bud
paper (Nov 13, 2009 8:06:31 PM)
pompe needs our help guys
PompesMom (Nov 13, 2009 8:06:38 PM)
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paper (Nov 13, 2009 8:06:52 PM)
ok well i hope she comes bk
budmello (Nov 13, 2009 8:06:58 PM)
What's up ?
pete46 (Nov 13, 2009 8:07:21 PM)
another friday night
paper (Nov 13, 2009 8:07:26 PM)
her girl has pompe and she is pregers and not very good
paper (Nov 13, 2009 8:07:36 PM)
real sich
paper (Nov 13, 2009 8:07:39 PM)
sick
pete46 (Nov 13, 2009 8:07:45 PM)
sorry to hear that
paper (Nov 13, 2009 8:07:54 PM)
i hope she comes bk
budmello (Nov 13, 2009 8:08:03 PM)
sorry to hear that :(
paper (Nov 13, 2009 8:08:09 PM)
ya me to
paper (Nov 13, 2009 8:08:12 PM)
brb
pete46 (Nov 13, 2009 8:08:16 PM)
k
pete46 (Nov 13, 2009 8:08:25 PM)
slow night bud?
budmello (Nov 13, 2009 8:08:41 PM)
slow day
pete46 (Nov 13, 2009 8:08:51 PM)
where are you from
budmello (Nov 13, 2009 8:08:54 PM)
&night
budmello (Nov 13, 2009 8:09:08 PM)
Tenn. here
pete46 (Nov 13, 2009 8:09:16 PM)
mass here
pete46 (Nov 13, 2009 8:09:27 PM)
did you get any rain from hurricane?
budmello (Nov 13, 2009 8:09:41 PM)
I'm chat ...l have becker's mdjust crashing
budmello (Nov 13, 2009 8:09:59 PM)
bye
pete46 (Nov 13, 2009 8:10:03 PM)
bye
budmello (Nov 13, 2009 8:10:32 PM)
Have A Good Night :)
pete46 (Nov 13, 2009 8:10:41 PM)
you too
paper (Nov 13, 2009 8:10:44 PM)
hey where u going
paper (Nov 13, 2009 8:10:48 PM)
stay
pete46 (Nov 13, 2009 8:12:08 PM)
paper, you ready to see colts get beat this sunday?
paper (Nov 13, 2009 8:12:19 PM)
in your dreams pete
budmello (Nov 13, 2009 8:12:21 PM)
If you see CRIS tell her l said ''Howdy ''
pete46 (Nov 13, 2009 8:12:30 PM)
will do
paper (Nov 13, 2009 8:12:30 PM)
k will do bud
budmello (Nov 13, 2009 8:12:41 PM)
Thanks...Good nite :)
budmello (Nov 13, 2009 8:12:45 PM)
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PompesMom (Nov 13, 2009 8:12:49 PM)
(This user has entered LGMD Chat)
paper (Nov 13, 2009 8:12:51 PM)
the pats are going down
PompesMom (Nov 13, 2009 8:12:59 PM)
Sorry, got locked up
paper (Nov 13, 2009 8:13:00 PM)
hey wb pom
paper (Nov 13, 2009 8:13:10 PM)
glad you came bk
PompesMom (Nov 13, 2009 8:13:13 PM)
ty
pete46 (Nov 13, 2009 8:13:17 PM)
down to indianapolis to beat colts
paper (Nov 13, 2009 8:13:26 PM)
ya right
PompesMom (Nov 13, 2009 8:13:33 PM)
Whoa! Must be a Patriots Fan????
paper (Nov 13, 2009 8:13:38 PM)
we are going to stomp the pats
paper (Nov 13, 2009 8:13:46 PM)
ya he is
pete46 (Nov 13, 2009 8:13:59 PM)
i'm a big pats fan
paper (Nov 13, 2009 8:14:01 PM)
COLTS RULE PETE
PompesMom (Nov 13, 2009 8:14:12 PM)
Not good! Our Pastor is a Patriots fan too. Well, and ^&(%$^%( LOL
pete46 (Nov 13, 2009 8:14:16 PM)
pats rule, colts drool
pete46 (Nov 13, 2009 8:14:28 PM)
lol
paper (Nov 13, 2009 8:14:49 PM)
not !
pete46 (Nov 13, 2009 8:14:59 PM)
lol
paper (Nov 13, 2009 8:15:20 PM)
how far along is you girl pom
PompesMom (Nov 13, 2009 8:15:32 PM)
16 weeks
paper (Nov 13, 2009 8:15:56 PM)
have they tryed thiss yet In April 2006, the U.S. Food and Drug Administration approved Myozyme, an enzyme replacement therapy, for the treatment of acid maltase deficiency. This therapy has significantly improved the prognosis for patients.
paper (Nov 13, 2009 8:16:44 PM)
have they sugested stoping the pregancy i know thats hard i dont know if i could
PompesMom (Nov 13, 2009 8:16:49 PM)
Docs told her to terminate but she said she is sick and getting sicker. So she is declining fast on us. No--the treatment is really only availbale to infants that die within the first year of life
paper (Nov 13, 2009 8:17:11 PM)
who is her md dr
PompesMom (Nov 13, 2009 8:17:27 PM)
Dr. Bockin sp* at IU
pete46 (Nov 13, 2009 8:17:44 PM)
brb
paper (Nov 13, 2009 8:17:46 PM)
that is who i see at iu also
paper (Nov 13, 2009 8:18:03 PM)
dr. C. bodkin
PompesMom (Nov 13, 2009 8:18:05 PM)
WoW! that is cool to hear. My daughter really needs some support.
PompesMom (Nov 13, 2009 8:18:09 PM)
Yes.
paper (Nov 13, 2009 8:18:39 PM)
i like bodkin but my md is very rare and there isnt much they can do for me
paper (Nov 13, 2009 8:19:03 PM)
i hate to hear that your girl is so sick
pete46 (Nov 13, 2009 8:19:07 PM)
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paper (Nov 13, 2009 8:19:27 PM)
they have her in the hospital?
PompesMom (Nov 13, 2009 8:19:34 PM)
She is about to lose her mobility and her respitory has gone from 45 percent from the spring to 35 percent now
paper (Nov 13, 2009 8:19:53 PM)
was this late onset
PompesMom (Nov 13, 2009 8:20:08 PM)
Rachael's Pompes is very very rare as well.
paper (Nov 13, 2009 8:21:07 PM)
do they think that the pregancy has speed this up
PompesMom (Nov 13, 2009 8:21:11 PM)
childhood lateset. Was very clumsy as a kid and at 16 we about lost her to her gallbladder and she never recooped very well after that. Then at 219 they told her she has MD and and
PompesMom (Nov 13, 2009 8:21:29 PM)
21
PompesMom (Nov 13, 2009 8:21:50 PM)
19 I mean then at 20 they told her it was pompes with a life expect of 26
PompesMom (Nov 13, 2009 8:22:03 PM)
now she is pregn and is falling apart in front of our eyes
PompesMom (Nov 13, 2009 8:22:48 PM)
Yes, the pregn has speed this up big time...like overnight
paper (Nov 13, 2009 8:23:07 PM)
it is horrible that md can totaly devaste you in a short time with nothing to help
PompesMom (Nov 13, 2009 8:24:02 PM)
We have had a few years to take this in but the pregn changed things big time for us...she is very strong willed and at peace to let God do what he is going to do.....she is teaching us alot right now but she needs help too
paper (Nov 13, 2009 8:24:06 PM)
do they think that if she would term the pregancy it would halt the progressioln
paper (Nov 13, 2009 8:24:44 PM)
sorry about the typing my hands spasm
PompesMom (Nov 13, 2009 8:24:49 PM)
Her sickness is so rare they told her to terminate but they still dont know her outcome now. I/we think she is now on a downward spiral---
PompesMom (Nov 13, 2009 8:25:12 PM)
understood you are fine....and you tell me about you?
paper (Nov 13, 2009 8:25:19 PM)
that sucks you know
paper (Nov 13, 2009 8:25:42 PM)
i have central core md and my kids both have it too
PompesMom (Nov 13, 2009 8:25:46 PM)
yeahhhhh--we are sure she will be on a vent before we know it and her mobilty is going fast.......
paper (Nov 13, 2009 8:25:48 PM)
and my dad has it
PompesMom (Nov 13, 2009 8:25:59 PM)
what is central core?
paper (Nov 13, 2009 8:26:32 PM)
it is where the cells have a core that is not right
paper (Nov 13, 2009 8:27:03 PM)
it causes weakness joint dislocations
paper (Nov 13, 2009 8:27:09 PM)
pain
PompesMom (Nov 13, 2009 8:27:20 PM)
Sounds just like Rachael
paper (Nov 13, 2009 8:28:00 PM)
and a whole bunch of other crap
PompesMom (Nov 13, 2009 8:28:24 PM)
She is in her wheel chair all the time back in the sping she was walking but very slow, falls a lot and always has....now she is falling with a baby in her, cracked her hip and pelvis and her breathing is 0 when laying flat. A ventilator is coming fast....
paper (Nov 13, 2009 8:28:25 PM)
i just wish i knew i had it before i had kids
paper (Nov 13, 2009 8:29:05 PM)
i gave this stupid diease to my babys
paper (Nov 13, 2009 8:29:37 PM)
now i see them hurting and stuff just like me it isnt fair you know
PompesMom (Nov 13, 2009 8:29:40 PM)
I know! She knew to not get pregnent but we feel she is doing a bucket list and is tired...and ready to let it take her over. She never complains and smiles every single second of the day.
paper (Nov 13, 2009 8:30:23 PM)
well if she does have a bucket list help her make it come true
paper (Nov 13, 2009 8:30:30 PM)
thats all you can do\\
PompesMom (Nov 13, 2009 8:30:43 PM)
We have been. Did I tell you we pulled off a wedding in three weeks and it was so special...
paper (Nov 13, 2009 8:31:00 PM)
thats gresat
PompesMom (Nov 13, 2009 8:31:01 PM)
She walked down the isle with her Daddy
paper (Nov 13, 2009 8:31:03 PM)
great
paper (Nov 13, 2009 8:31:08 PM)
awwwwwwwww
PompesMom (Nov 13, 2009 8:31:12 PM)
Yeahhh
paper (Nov 13, 2009 8:31:46 PM)
have you asked the mda for help
paper (Nov 13, 2009 8:32:00 PM)
ashley mills is our rep in indy
paper (Nov 13, 2009 8:32:27 PM)
she may be able to help with a list
paper (Nov 13, 2009 8:32:39 PM)
would you like her number
PompesMom (Nov 13, 2009 8:33:40 PM)
I talked to Ashley this morning..She is trying to help us get inhome care for Rachael. I sent Ashley an email last night begging for help..and she called me at 9 this morning.
paper (Nov 13, 2009 8:34:33 PM)
hey ashley might be able to get like one of the colts to sign something or do a day or saomething like that is rachael likes football
paper (Nov 13, 2009 8:34:55 PM)
great ashley is so sweet
PompesMom (Nov 13, 2009 8:35:11 PM)
Rachael was in Intesive care two weeks ago, and they were supposed to send her home with healthcare--two weeks later noone has called her to set it up so I emailed Ashley and asked that she help us. Rachael has so many docs that there are to many hands in the pot and moving nowhere fast...
CRIS (Nov 13, 2009 8:35:37 PM)
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paper (Nov 13, 2009 8:35:40 PM)
or what ever she wants you know
paper (Nov 13, 2009 8:35:54 PM)
hey cris budmellow said to tell you hey
PompesMom (Nov 13, 2009 8:35:59 PM)
Hi chris
CRIS (Nov 13, 2009 8:36:17 PM)
hi all....was Bud here earlier?
paper (Nov 13, 2009 8:36:22 PM)
yep
CRIS (Nov 13, 2009 8:36:31 PM)
why did he leave?
paper (Nov 13, 2009 8:36:51 PM)
where do you live in indiana pom
paper (Nov 13, 2009 8:36:57 PM)
? cris
paper (Nov 13, 2009 8:37:16 PM)
i am in connersville
PompesMom (Nov 13, 2009 8:37:16 PM)
I have raised Rachael since she was 9 -- Step Mom was the hardest thing I have ever done but she and her brother is my only kids, I never had any. Now with her sickness I am beside myself trying to help her. THe only thing I can do is love her and support her and try to get her help at this point.
PompesMom (Nov 13, 2009 8:37:33 PM)
We are 45 min south of indpls
paper (Nov 13, 2009 8:37:42 PM)
bloom
PompesMom (Nov 13, 2009 8:38:07 PM)
No near Columbus
paper (Nov 13, 2009 8:38:07 PM)
bloomington"?\
paper (Nov 13, 2009 8:38:14 PM)
oh ok
paper (Nov 13, 2009 8:38:40 PM)
are you ok with the bills
PompesMom (Nov 13, 2009 8:39:03 PM)
She does not live with us and her bills are grand...
paper (Nov 13, 2009 8:39:08 PM)
do you need anything
paper (Nov 13, 2009 8:40:16 PM)
have you asked for help from your community like a fundraiser
PompesMom (Nov 13, 2009 8:40:17 PM)
She needs homecare, physical therapy, and a hospital bed. We have a wheel chair and she is on her breathing machine....but I am tryijng to jump in and help wherever I can at this point. She will be permanelty in the hospital before long....
paper (Nov 13, 2009 8:40:55 PM)
does she have insurance
paper (Nov 13, 2009 8:41:28 PM)
you can call home health adgencys?
PompesMom (Nov 13, 2009 8:41:32 PM)
Things have moved so fast, they got ingaged in July, Sept she said she was preg and moved the wedding from april to oct..so we have been running trying to pull this off, now we are grieving and trying to deal with each day
PompesMom (Nov 13, 2009 8:42:10 PM)
That is why I called Ashly to try to stream line and get immed help
paper (Nov 13, 2009 8:42:13 PM)
all you need to get home health is a dr order
paper (Nov 13, 2009 8:42:46 PM)
call one and tell them you need help and they can expidite the orders
PompesMom (Nov 13, 2009 8:42:49 PM)
Which they should have done for her two weeks ago and noone will call her back....I am aggrivated about that. and no she does not have insurance
PompesMom (Nov 13, 2009 8:43:16 PM)
shei is on dis, med etc
paper (Nov 13, 2009 8:43:17 PM)
ok first thing monday you call and get her on medicade
paper (Nov 13, 2009 8:44:06 PM)
tell them the whole story and they should do fast scribe and she should be on it by days end
CRIS (Nov 13, 2009 8:44:11 PM)
brb....going to make myself a baked potato
paper (Nov 13, 2009 8:44:17 PM)
k cris
PompesMom (Nov 13, 2009 8:44:45 PM)
she has been on med for a few years but moving to indy she had to redo it all plus getting preg all in the same months
paper (Nov 13, 2009 8:44:48 PM)
then call bodkin and tell her nurse that you need home care like yesterday and you need a bed
paper (Nov 13, 2009 8:45:20 PM)
a bed the mda might have in their lending closet
PompesMom (Nov 13, 2009 8:45:22 PM)
Ashly called Bodkin today but only got a voice mail. Bodkin knew she needed this two weeks ago...that is why I am so frusterated. To many docs involved
paper (Nov 13, 2009 8:45:40 PM)
ya it happens belive me i know
paper (Nov 13, 2009 8:46:07 PM)
bodkin has clinic monday
paper (Nov 13, 2009 8:46:25 PM)
so it should be easy to get her nurse on the phone
paper (Nov 13, 2009 8:46:45 PM)
if it comes to it dont be nice
paper (Nov 13, 2009 8:47:02 PM)
tell them what you want and like NOW
paper (Nov 13, 2009 8:47:16 PM)
dont take no for an answer
paper (Nov 13, 2009 8:47:47 PM)
ask you church if they can do a fund raiser for her for her bills
PompesMom (Nov 13, 2009 8:47:50 PM)
That is what I told Rachael, to be bold and stop smiling so much--tell them how it is...
paper (Nov 13, 2009 8:48:15 PM)
yep u have to be your own advocate
PompesMom (Nov 13, 2009 8:48:37 PM)
We did a fundraiser over the summer for the walk in champaign ill--but it when to reserch for pompes--we raised 3000.00
paper (Nov 13, 2009 8:49:00 PM)
great now yoiu need to do one just for her
PompesMom (Nov 13, 2009 8:49:58 PM)
May need to but we really dont believe she will be with us much longer. I am raw with you because we feel she is in immed danger. I need her comfy today and tomorrow because we dont know what next week will bring
paper (Nov 13, 2009 8:50:00 PM)
call churches or store that you have seen doing stuff before even like clubs like amvets or moose
paper (Nov 13, 2009 8:50:36 PM)
i understand
PompesMom (Nov 13, 2009 8:50:49 PM)
ty
PompesMom (Nov 13, 2009 8:51:23 PM)
how old are your kids
paper (Nov 13, 2009 8:51:39 PM)
my son is 14 and girl is 13
PompesMom (Nov 13, 2009 8:51:56 PM)
horrible ages. lol
paper (Nov 13, 2009 8:52:06 PM)
u got that right lol
paper (Nov 13, 2009 8:52:31 PM)
my son was expelled from school last week
paper (Nov 13, 2009 8:52:35 PM)
for fighting
paper (Nov 13, 2009 8:52:42 PM)
little butt head
PompesMom (Nov 13, 2009 8:53:22 PM)
Boys.....I tell ya! Sounds like he is filling his oats
paper (Nov 13, 2009 8:53:29 PM)
i dont know what to do with him maybe millatary school lol
paper (Nov 13, 2009 8:53:56 PM)
ya but it isnt going to help him get his dip
PompesMom (Nov 13, 2009 8:54:12 PM)
I feel for you. Rachael was a deal breaker.Broke every rule she could break
paper (Nov 13, 2009 8:54:34 PM)
that sounds like my L
paper (Nov 13, 2009 8:55:04 PM)
they just dont know they are hurting their lives do they
PompesMom (Nov 13, 2009 8:55:35 PM)
Nope! Now she is sick and tells me all the time how much she appreciated me. It is bitter sweet and bites all in one bit....
paper (Nov 13, 2009 8:56:16 PM)
ya i know they dont know how much we love them no matter what they do or dont do
PompesMom (Nov 13, 2009 8:56:39 PM)
Sigh
paper (Nov 13, 2009 8:57:07 PM)
it is hard knowing that someone you love so much will die soon
PompesMom (Nov 13, 2009 8:58:23 PM)
That is where her Dad and I are. We are not grim peopel but we know what we see and see how she is declining. We are strong for her and trying to prepare ourselves whatever that means and tell the family--but noone really sees her they way we do. We know she is getting close and we are numb...
paper (Nov 13, 2009 8:58:59 PM)
bk in june i lost my job that i have had for 7 years because i couldnt do it no more
paper (Nov 13, 2009 8:59:17 PM)
awwwwwwwwww huggles pom
PompesMom (Nov 13, 2009 8:59:38 PM)
I am sorry to hear that. Times are hard for sure. Huggs to you as well.
paper (Nov 13, 2009 8:59:45 PM)
had dr bodkin tell me i needed to start using a walker
paper (Nov 13, 2009 9:00:00 PM)
witch i freaking hate
PompesMom (Nov 13, 2009 9:00:33 PM)
Yeahh. Rachael used a cane and walker in the spring, to a wheel chair now...and getting ready to be completly in bed and ventilated.
paper (Nov 13, 2009 9:01:11 PM)
i hate going out in public with it i hate the looks and the rude hushed talk behind my back
paper (Nov 13, 2009 9:02:00 PM)
i have went to saying to like my my or hubby when out with them boy i am not haveing a good md day today am i
paper (Nov 13, 2009 9:02:12 PM)
mom
PompesMom (Nov 13, 2009 9:02:25 PM)
I hear ya. We get Rach into a wheel chair at Walmart for example. And people look at her like she is playing and dont need it. She smiles from ear to ear but they dont know that she cant walk or breath. I want to scream to them and tell them to move on...
paper (Nov 13, 2009 9:02:49 PM)
ya i know that all to well
paper (Nov 13, 2009 9:03:01 PM)
people need to get a clue dont they
PompesMom (Nov 13, 2009 9:03:08 PM)
You bet!
paper (Nov 13, 2009 9:04:07 PM)
i even had some jack*** come up to me after i got out of my car with walker and say you dont need that parking space do you
paper (Nov 13, 2009 9:04:25 PM)
a handicaped space that i have plates for
paper (Nov 13, 2009 9:04:45 PM)
i in short order told him where to get off
PompesMom (Nov 13, 2009 9:05:07 PM)
Exactly. Rachael has been dis since 20---and people give her the look in a parking spot or a wheel chair and you see in their eyes they are saying hey kid you could let someone else --older--have this stuff, move on kid......but....
paper (Nov 13, 2009 9:05:30 PM)
made a big stink and when i went in to the store a bit later they were asking for me over the loud sopeaker
paper (Nov 13, 2009 9:05:36 PM)
a cop was there
PompesMom (Nov 13, 2009 9:05:42 PM)
ROFL
paper (Nov 13, 2009 9:06:30 PM)
i in short order told an old highschool friend the cop why i have handicapped plates and he left laughing his butt off
PompesMom (Nov 13, 2009 9:07:15 PM)
Funny.....what a waist of time
paper (Nov 13, 2009 9:07:28 PM)
the old man was pissed and didnt say a word
paper (Nov 13, 2009 9:07:31 PM)
lol
paper (Nov 13, 2009 9:07:48 PM)
i bet he wont say nothing to anyone ever again
PompesMom (Nov 13, 2009 9:08:19 PM)
Good. Humility is good for the soul
paper (Nov 13, 2009 9:08:27 PM)
yep i was so mad i forgot to get what i wanted at the store and had to go bk later
paper (Nov 13, 2009 9:08:33 PM)
lol yup
PompesMom (Nov 13, 2009 9:08:42 PM)
lol
paper (Nov 13, 2009 9:09:01 PM)
my hubby thought it was funny
paper (Nov 13, 2009 9:09:27 PM)
you should have seen all the lookie loos
PompesMom (Nov 13, 2009 9:09:39 PM)
Lookie loos are everywhere. lol
paper (Nov 13, 2009 9:09:52 PM)
i think all of them were red in the face when it was over
paper (Nov 13, 2009 9:10:06 PM)
and not at me
paper (Nov 13, 2009 9:10:07 PM)
lol
paper (Nov 13, 2009 9:10:17 PM)
and i live in a really small town
paper (Nov 13, 2009 9:10:20 PM)
lol
PompesMom (Nov 13, 2009 9:10:35 PM)
Just because you look ok on the outside means nothing. Sickness is under the skin in our organs, muscles etc. What the hay?
paper (Nov 13, 2009 9:10:49 PM)
you said it
PompesMom (Nov 13, 2009 9:11:18 PM)
We do too. But, our town is not like that, but Columbus is a zoo anymore and rude folks....
paper (Nov 13, 2009 9:11:23 PM)
and i really dont look ok sometimes i spasm and stuff and fall on my face too
paper (Nov 13, 2009 9:11:59 PM)
i am just waiting for a cop to want me to do a breathalizer
PompesMom (Nov 13, 2009 9:12:07 PM)
Exactly--she falls all the time and always has even before her and her Dad and I met up
PompesMom (Nov 13, 2009 9:12:12 PM)
lol
paper (Nov 13, 2009 9:12:15 PM)
i will be laughing my butt off
PompesMom (Nov 13, 2009 9:12:40 PM)
are you on yahoo messenger?
paper (Nov 13, 2009 9:12:45 PM)
yep
paper (Nov 13, 2009 9:12:56 PM)
laustin316@yahoo.com
PompesMom (Nov 13, 2009 9:13:13 PM)
mzz_kitty_71@yahoo.com
paper (Nov 13, 2009 9:14:18 PM)
ok i just added u
paper (Nov 13, 2009 9:14:58 PM)
mzz kitty lol i like that name lol
gypsy (Nov 13, 2009 9:17:33 PM)
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gypsy (Nov 13, 2009 9:18:43 PM)
hi
paper (Nov 13, 2009 9:18:50 PM)
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PompesMom (Nov 13, 2009 9:19:00 PM)
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gypsy (Nov 13, 2009 9:29:22 PM)
no one about again bye :(
gypsy (Nov 13, 2009 9:29:33 PM)
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CRIS (Nov 13, 2009 9:38:28 PM)
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