FSHD Chat
paper (Oct 26, 2009 7:52:52 PM)
paper (Oct 26, 2009 7:53:42 PM)
ok for all you log readers yes i am here all by my self again plese come in and chat one these days
Stephen0386 (Oct 26, 2009 7:58:20 PM)
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Stephen0386 (Oct 26, 2009 7:58:24 PM)
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Stephen0386 (Oct 26, 2009 7:58:39 PM)
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Stephen0386 (Oct 26, 2009 7:58:45 PM)
Hola
Stephen0386 (Oct 26, 2009 7:59:16 PM)
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Stephen0386 (Oct 26, 2009 7:59:22 PM)
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paper (Oct 26, 2009 7:59:27 PM)
hi
Stephen0386 (Oct 26, 2009 7:59:32 PM)
hi
Stephen0386 (Oct 26, 2009 7:59:44 PM)
spanish?
paper (Oct 26, 2009 7:59:49 PM)
sorry i was in bathroom
Stephen0386 (Oct 26, 2009 7:59:54 PM)
ok
Stephen0386 (Oct 26, 2009 7:59:59 PM)
thank
paper (Oct 26, 2009 7:59:59 PM)
sorry not very well
Stephen0386 (Oct 26, 2009 8:00:08 PM)
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paper (Oct 26, 2009 8:06:22 PM)
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brit (Oct 26, 2009 8:45:15 PM)
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brit (Oct 26, 2009 8:46:27 PM)
Hello and welcome to FSHD Chat!
gypsy (Oct 26, 2009 8:47:14 PM)
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wolflady (Oct 26, 2009 8:47:39 PM)
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froglady (Oct 26, 2009 8:47:50 PM)
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brit (Oct 26, 2009 8:47:58 PM)
Hi there Gypsy and Wolflady
wolflady (Oct 26, 2009 8:48:15 PM)
Hi Brit, Gypsy, and Froglady
brit (Oct 26, 2009 8:48:21 PM)
Welcome to FSHD Chat!
wolflady (Oct 26, 2009 8:48:30 PM)
How is everyone tonight?
brit (Oct 26, 2009 8:48:38 PM)
Hey Froglady!
froglady (Oct 26, 2009 8:48:44 PM)
Hello you three. I was watching the presentation on the home site and am a bit late
froglady (Oct 26, 2009 8:48:56 PM)
How is everyone tonight?
brit (Oct 26, 2009 8:49:03 PM)
I'm fine and dandy!
froglady (Oct 26, 2009 8:49:08 PM)
I am too
wolflady (Oct 26, 2009 8:49:10 PM)
doing fairly good here
brit (Oct 26, 2009 8:49:15 PM)
Good!
brit (Oct 26, 2009 8:49:33 PM)
brb
froglady (Oct 26, 2009 8:49:36 PM)
My hubby only has three weeks to go for his treatment and I am very happy about that
froglady (Oct 26, 2009 8:50:04 PM)
Are you all really cold now?
wolflady (Oct 26, 2009 8:50:19 PM)
i woke up this morning and my right arm was swollen from my shoulder to my fingers , i couldn't see my knuckles when i tried to make a fist
froglady (Oct 26, 2009 8:50:24 PM)
We are expecting a high of 59 on Wednesday. Unheard of
gypsy (Oct 26, 2009 8:50:41 PM)
hi all
froglady (Oct 26, 2009 8:50:43 PM)
Oh my goodness Wolf. What in the world happened to it?
froglady (Oct 26, 2009 8:50:52 PM)
Hey da Gypsy girl
wolflady (Oct 26, 2009 8:50:54 PM)
hey, thats to be close to our high on Weds. too :-)
brit (Oct 26, 2009 8:51:07 PM)
back..wanted to turn on game
gypsy (Oct 26, 2009 8:51:34 PM)
what have youdone to your arm wolflady
brit (Oct 26, 2009 8:51:37 PM)
We're not really too bad for cold right now
wolflady (Oct 26, 2009 8:51:50 PM)
i don't know, froglady, i called the clinic and was told on the phone i probably slept on it wrong
wolflady (Oct 26, 2009 8:52:23 PM)
most of it is gone just a tad puffy now
brit (Oct 26, 2009 8:52:38 PM)
That sounds like a copout Wolflady
froglady (Oct 26, 2009 8:52:49 PM)
Hmmm. I think our bodies are fearfully made
wolflady (Oct 26, 2009 8:52:50 PM)
i didn't hurt, just heavy and numb, tingling feeling
brit (Oct 26, 2009 8:53:09 PM)
Like take an aspirin and call in the morning
froglady (Oct 26, 2009 8:53:27 PM)
Have any of you had the h1n1 shot yet?
froglady (Oct 26, 2009 8:53:37 PM)
They are a bit scarce around here
brit (Oct 26, 2009 8:53:57 PM)
Scarse here too
gypsy (Oct 26, 2009 8:53:59 PM)
what shot is that froglady ?
froglady (Oct 26, 2009 8:54:21 PM)
Gypsy, it is the swine flu shot. Are you all having it down there?
gypsy (Oct 26, 2009 8:54:36 PM)
they are having i don't plan to
froglady (Oct 26, 2009 8:54:40 PM)
We lost one of our muscular patients a couple of weeks ago from it
wolflady (Oct 26, 2009 8:54:41 PM)
exactly Brit, thats more or less what i was told and asked why my right hip is locking up on me, i was told over the phone that it is a muscle problem and pain, use moist heat and ibuprofen
gypsy (Oct 26, 2009 8:54:42 PM)
it
gypsy (Oct 26, 2009 8:55:03 PM)
i don't have flu shots
wolflady (Oct 26, 2009 8:55:11 PM)
i'm not getting the H1N1 shot
froglady (Oct 26, 2009 8:55:17 PM)
Gypsy so you ever get the flu?
froglady (Oct 26, 2009 8:55:27 PM)
Why not Wolf?
gypsy (Oct 26, 2009 8:55:29 PM)
yes a few tiimes i guess not often
wolflady (Oct 26, 2009 8:55:34 PM)
but i did get the regular flu shot
froglady (Oct 26, 2009 8:55:38 PM)
Ic
brit (Oct 26, 2009 8:55:53 PM)
I got the seasonal shot and will get the other one too when available
gypsy (Oct 26, 2009 8:56:09 PM)
i have no health problems
wolflady (Oct 26, 2009 8:56:42 PM)
i don't get colds, ect. very easy i just hurt, lol
froglady (Oct 26, 2009 8:56:49 PM)
At my age and with a pulmonary disease I am going to get it
paper (Oct 26, 2009 8:56:57 PM)
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froglady (Oct 26, 2009 8:57:06 PM)
Hello paper: Welcome aboard
wolflady (Oct 26, 2009 8:57:07 PM)
Hi Paper
paper (Oct 26, 2009 8:57:08 PM)
hey guys whats up
froglady (Oct 26, 2009 8:57:19 PM)
Not much, what's up with you?
gypsy (Oct 26, 2009 8:57:24 PM)
froglady i would guess that would put you in the high rist catagory
brit (Oct 26, 2009 8:57:27 PM)
I'll probably get it too
gypsy (Oct 26, 2009 8:57:31 PM)
hi paper
froglady (Oct 26, 2009 8:57:37 PM)
You are correct Gypsy
brit (Oct 26, 2009 8:57:39 PM)
Hey paper
paper (Oct 26, 2009 8:57:44 PM)
nothing much took my lastest painting to its new home today
froglady (Oct 26, 2009 8:58:01 PM)
All right! That is great
gypsy (Oct 26, 2009 8:58:02 PM)
you got it finished that's good paper
wolflady (Oct 26, 2009 8:58:02 PM)
awesome
brit (Oct 26, 2009 8:58:04 PM)
Great!
paper (Oct 26, 2009 8:58:26 PM)
yep right in time too
paper (Oct 26, 2009 8:58:53 PM)
he loved it
brit (Oct 26, 2009 8:58:56 PM)
Oh, all is OK with me and my housing now.......they relented and said we'd work it out
froglady (Oct 26, 2009 8:59:11 PM)
That is great news Brit.
paper (Oct 26, 2009 8:59:15 PM)
good brit
wolflady (Oct 26, 2009 8:59:15 PM)
good to hear, Brit
brit (Oct 26, 2009 8:59:23 PM)
I am so relieved
brit (Oct 26, 2009 8:59:36 PM)
I really love yhis place
gypsy (Oct 26, 2009 8:59:41 PM)
i rarely go out or have much contact with peolpe
brit (Oct 26, 2009 8:59:42 PM)
This
froglady (Oct 26, 2009 8:59:42 PM)
That just made me sick when you told us about it last week Brit, so this really is uplifting news
gypsy (Oct 26, 2009 9:00:02 PM)
that's good brit
paper (Oct 26, 2009 9:00:05 PM)
i am happy for u brit
froglady (Oct 26, 2009 9:00:07 PM)
I know you do Brit. You have said that before
brit (Oct 26, 2009 9:00:14 PM)
Right Froglady
wolflady (Oct 26, 2009 9:00:29 PM)
talk about housing, the gal who thinks she needs to run my life, gave m her famous lecture on moving to the retirement center because i said my hip was acting up lol
paper (Oct 26, 2009 9:00:47 PM)
gesh
brit (Oct 26, 2009 9:00:48 PM)
G
brit (Oct 26, 2009 9:00:57 PM)
oops!
froglady (Oct 26, 2009 9:01:01 PM)
Wolf, you will get more and more advice like that as time goes on. Believe me!
brit (Oct 26, 2009 9:01:20 PM)
Froglady is so right about that
froglady (Oct 26, 2009 9:01:28 PM)
We can get very disabled and still cope in our way
wolflady (Oct 26, 2009 9:01:44 PM)
she said then i didn't have to worry about mowing my grass, i said winter is coming, i'm not worried about mowing it :-0
wolflady (Oct 26, 2009 9:01:57 PM)
:-)
paper (Oct 26, 2009 9:01:57 PM)
lol
froglady (Oct 26, 2009 9:01:57 PM)
LOL
brit (Oct 26, 2009 9:02:18 PM)
That is how we worked things out here........give a little, work togewther
froglady (Oct 26, 2009 9:02:19 PM)
That is one worry we don't have. We have a dirt yard
gypsy (Oct 26, 2009 9:02:27 PM)
so you don't think going some where like that is the right things to do wolflady ?
froglady (Oct 26, 2009 9:02:31 PM)
That is the way it should be brit
paper (Oct 26, 2009 9:02:58 PM)
i am surprised she didnt say well in the winter you wont have to worry about snow removal
froglady (Oct 26, 2009 9:03:01 PM)
Wolf, I think you have a good sense of humor
gypsy (Oct 26, 2009 9:03:11 PM)
plnety of grass here
gypsy (Oct 26, 2009 9:03:25 PM)
i am wondering if i should look at going into care ?
wolflady (Oct 26, 2009 9:03:28 PM)
i like mow9ing and as long as i can still stand and get on and off the riding mower, i'm going to do it, that's what keeps me going in the summer
froglady (Oct 26, 2009 9:03:40 PM)
That is one thing about here that I don't like. I would love to have green grass
froglady (Oct 26, 2009 9:04:05 PM)
Oh my gypsy. Are you seriously considering it?
paper (Oct 26, 2009 9:04:12 PM)
grass - pollen and work lol
brit (Oct 26, 2009 9:04:16 PM)
And you should do it Wolflady, as long as you take safety precautions
gypsy (Oct 26, 2009 9:04:18 PM)
i got way too much gress grass at the monment
gypsy (Oct 26, 2009 9:04:32 PM)
i dont' know froglady i don't know what to do
wolflady (Oct 26, 2009 9:04:48 PM)
oh she has, paper, i already ask the guy who did my snow plowing last year and he said yes he'd be happy to do it again this winter
gypsy (Oct 26, 2009 9:04:52 PM)
i was wondering how you make that decssion ?
paper (Oct 26, 2009 9:05:06 PM)
lol good wolf
kayden (Oct 26, 2009 9:05:07 PM)
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paper (Oct 26, 2009 9:05:17 PM)
hi kayden
froglady (Oct 26, 2009 9:05:19 PM)
It is funny to come to AZ after being in a really green place, like up where Jo lives. when you get off the plane it is such a contrast in scenery that it is shocking
kayden (Oct 26, 2009 9:05:26 PM)
hi paper
froglady (Oct 26, 2009 9:05:27 PM)
Helly Kayden. Welcome aboard
wolflady (Oct 26, 2009 9:05:27 PM)
Hi Kayden
brit (Oct 26, 2009 9:05:35 PM)
It's probably different for each of us Gypsy
kayden (Oct 26, 2009 9:05:55 PM)
how is everyone tonight
paper (Oct 26, 2009 9:06:01 PM)
ok here
gypsy (Oct 26, 2009 9:06:07 PM)
i am tired and stressed all the time and can't do anything i want too
wolflady (Oct 26, 2009 9:06:08 PM)
what decision, gypsy?
gypsy (Oct 26, 2009 9:06:10 PM)
hi kayden
froglady (Oct 26, 2009 9:06:16 PM)
I am not sure we have met Kayden. do you have FSH?
gypsy (Oct 26, 2009 9:06:17 PM)
moving into care
kayden (Oct 26, 2009 9:06:22 PM)
thats good what does everyone have im hear getting to know peole cause of my son
brit (Oct 26, 2009 9:06:31 PM)
I just realized my wife was going to wear herself out.....I also wanted more independence
froglady (Oct 26, 2009 9:06:57 PM)
Kayden, we have FSH Muscular Dystrophy. What does your son have?
brit (Oct 26, 2009 9:07:12 PM)
Good evenibg Kayden........welcome to this chat
kayden (Oct 26, 2009 9:07:17 PM)
he has sma what us fsh
paper (Oct 26, 2009 9:07:20 PM)
not me any way i have central core
wolflady (Oct 26, 2009 9:07:26 PM)
i just make myself do things, i figure since i hurt whether i'm sitting or standing, 24/7, i may as well do something, it's not going to make a difference
paper (Oct 26, 2009 9:07:44 PM)
i hear that wolf
froglady (Oct 26, 2009 9:07:51 PM)
Kayden have you been to the SMA chat?
kayden (Oct 26, 2009 9:07:59 PM)
yes i have
froglady (Oct 26, 2009 9:08:14 PM)
FSH is short for Facioscapulohumeral MD.
froglady (Oct 26, 2009 9:08:50 PM)
You are welcome to be here though Kayden. If we can offer any support to you we would be happy to do so.
brit (Oct 26, 2009 9:09:12 PM)
Not all of us have FSH Kayden........but anyone is welcome here
kayden (Oct 26, 2009 9:09:19 PM)
what kkind of symtums do you guys have?
gypsy (Oct 26, 2009 9:09:27 PM)
ho does everyone manage showering ?
gypsy (Oct 26, 2009 9:09:38 PM)
i have lgmd kayden
paper (Oct 26, 2009 9:09:40 PM)
i posted a pic of my painting on mymda community if anyone want to see it
gypsy (Oct 26, 2009 9:09:41 PM)
how
froglady (Oct 26, 2009 9:09:58 PM)
With great difficulty Gypsy. I am going to have to rely on some help here soon.
brit (Oct 26, 2009 9:09:59 PM)
Oh that's cool paper
gypsy (Oct 26, 2009 9:10:02 PM)
thanks paper i had another look at the gruop still can't wrok it out
froglady (Oct 26, 2009 9:10:14 PM)
Oh great paper. I would love to see it
kayden (Oct 26, 2009 9:10:18 PM)
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paper (Oct 26, 2009 9:10:20 PM)
i dont get in the shower with out eather my kids of hubby home it is just to risky other wise
gypsy (Oct 26, 2009 9:10:27 PM)
think it's too big to work properly on dial up
froglady (Oct 26, 2009 9:10:34 PM)
The same with me paper
gypsy (Oct 26, 2009 9:10:51 PM)
i can' wash myself my arms don't work well enough
froglady (Oct 26, 2009 9:10:56 PM)
That may be right gypsy.
paper (Oct 26, 2009 9:11:05 PM)
do any of you guys have one anothers email addy we can just pass it around if you want to
wolflady (Oct 26, 2009 9:11:19 PM)
a girl i know, (she calls me mom, since i knew her since she was 12, now she is 30) called and ask me if i would help her write a paper, she is going to school to become a LPN and has to write about a disease. She wants to do it on either ALS or FSH. Yes I'm going to help her
gypsy (Oct 26, 2009 9:11:20 PM)
and things like cleaning my teeth brusing my hear and eating are getting very hard
gypsy (Oct 26, 2009 9:12:00 PM)
i never pass on anyone else email paper
brit (Oct 26, 2009 9:12:07 PM)
That's great Wolflady
froglady (Oct 26, 2009 9:12:09 PM)
Paper, that is something that is not recommended, but if you want to take a chance it is, of course, up to you
paper (Oct 26, 2009 9:12:17 PM)
can you get homehealth gypsy
froglady (Oct 26, 2009 9:12:24 PM)
Paper, some do and others do not
gypsy (Oct 26, 2009 9:12:29 PM)
that's great wolflady
paper (Oct 26, 2009 9:13:18 PM)
no i mean do any of you have someone elses email and i can give my email and
paper (Oct 26, 2009 9:13:24 PM)
ok great
paper (Oct 26, 2009 9:13:39 PM)
mine is laustin316@yahoo.com
wolflady (Oct 26, 2009 9:13:48 PM)
gypsy, for showering, i have a shower chair and a hand held shower because i can't stand and wash up
gypsy (Oct 26, 2009 9:14:12 PM)
i tired the chair i couldn't get off it wolflady i was stuck there
gypsy (Oct 26, 2009 9:14:42 PM)
even sitting i can't use my arms back towards my body this it really starting to scare me
wolflady (Oct 26, 2009 9:14:45 PM)
for brushing my teeth, i got one of thoes eletric (battery operated) thooth brush
gypsy (Oct 26, 2009 9:15:04 PM)
i have had on for years i can barly manage that either
wolflady (Oct 26, 2009 9:15:26 PM)
i had grab bars put in the shower, gypsy to grab on too in order to stand up
gypsy (Oct 26, 2009 9:15:42 PM)
i don't know if my phyical health is really getting that bad i just really don't know what to do
froglady (Oct 26, 2009 9:15:45 PM)
When you guys type, how do you handle your arms
gypsy (Oct 26, 2009 9:16:06 PM)
i had bar wolflady but my feet just keep stilling on the wet mat
wolflady (Oct 26, 2009 9:16:21 PM)
i use 1 finger, froglady with my elbow up in the air lol
froglady (Oct 26, 2009 9:16:26 PM)
I have to prop my arms to type
paper (Oct 26, 2009 9:16:30 PM)
ok brit it is on itsway
gypsy (Oct 26, 2009 9:16:30 PM)
i have to rest mine on the talbe and just move my fingers
gypsy (Oct 26, 2009 9:16:58 PM)
often bruse and mark my arms from leaning to hard on them
froglady (Oct 26, 2009 9:17:20 PM)
That is kinda what I do gypsy, only on the arms of my wheel chair
gypsy (Oct 26, 2009 9:17:34 PM)
wow wolf i couldn't ever manage that i can't lift my elbows at all
brit (Oct 26, 2009 9:17:37 PM)
I have very poor hand and finger control.........I type one letter at a time
froglady (Oct 26, 2009 9:17:57 PM)
Yeah, gypsy, I know what you mean. I have callises (sp) on my arms
wolflady (Oct 26, 2009 9:18:02 PM)
me too brit, one finger , one letter lol
paper (Oct 26, 2009 9:18:14 PM)
my fingers spasm if i do sometihing to long
brit (Oct 26, 2009 9:18:24 PM)
My right elbow is inside my right thigh and forearm on edge of desk
froglady (Oct 26, 2009 9:18:48 PM)
I am a good typist, so I am thankful for that
wolflady (Oct 26, 2009 9:19:13 PM)
my thumb holds my second finger straight so i can hit only one letter instead of 2 at once and really being type some foriegn lanuage :-)
paper (Oct 26, 2009 9:19:14 PM)
anyone else want to see my painting
gypsy (Oct 26, 2009 9:19:18 PM)
you peolpe type very fast foronly isuing one fingure i must use about 6
froglady (Oct 26, 2009 9:19:19 PM)
I have been typing a song book for a friend who eyesight is getting bad. Using a large font
brit (Oct 26, 2009 9:19:31 PM)
Same here Wolflady
brit (Oct 26, 2009 9:19:40 PM)
:-)
gypsy (Oct 26, 2009 9:19:55 PM)
it was recently suggest i should take typing classes
froglady (Oct 26, 2009 9:19:59 PM)
Paper, I am going on to myspace to see it
froglady (Oct 26, 2009 9:20:08 PM)
I mean myMDA
gypsy (Oct 26, 2009 9:20:13 PM)
that is nice of you frolgady
paper (Oct 26, 2009 9:20:13 PM)
oh ok
froglady (Oct 26, 2009 9:20:37 PM)
Thanks gypsy. It gives me something to do
paper (Oct 26, 2009 9:20:39 PM)
why gypsy
gypsy (Oct 26, 2009 9:20:42 PM)
wolflady that must be a really difficult way to have to type i don't think i would be persavering
gypsy (Oct 26, 2009 9:20:51 PM)
what about voice reconitong
gypsy (Oct 26, 2009 9:21:08 PM)
cause i type of poorly paper
froglady (Oct 26, 2009 9:21:12 PM)
I am just happy that all of you can type anyway you can
brit (Oct 26, 2009 9:21:25 PM)
Right Froglady
froglady (Oct 26, 2009 9:21:38 PM)
Wolf, weren't you going to a MD seminar somewhere?
wolflady (Oct 26, 2009 9:21:52 PM)
its the only way i can do it, gypsy,,,,, after a while, i will admit, my shoulder and arm does get sore and tired
paper (Oct 26, 2009 9:21:52 PM)
so we dont care do we guys how gyspy types as long as gyspy comes in to chat with us
brit (Oct 26, 2009 9:21:59 PM)
I have voice recog. software, but am not very confident with it
froglady (Oct 26, 2009 9:22:09 PM)
Right on paper
brit (Oct 26, 2009 9:22:12 PM)
Right paper
gypsy (Oct 26, 2009 9:22:27 PM)
some peolpe find my bad typing frustating
paper (Oct 26, 2009 9:22:30 PM)
hell i screw up all the time lol
gypsy (Oct 26, 2009 9:22:49 PM)
do many of you use lots of other gruops froums and chats ?
brit (Oct 26, 2009 9:22:55 PM)
Not to us Gypsy
paper (Oct 26, 2009 9:23:05 PM)
ya screw them gyspy yuo are just fine
wolflady (Oct 26, 2009 9:23:18 PM)
i was going to go to a meeting on Oct. 5th, but i didn't make it, they scheduled me to go PT at the hospital the same day, and it was very windy and rainy
brit (Oct 26, 2009 9:23:22 PM)
This is the only one I use
paper (Oct 26, 2009 9:23:27 PM)
i use this chat and yahoo sometimes
froglady (Oct 26, 2009 9:23:44 PM)
Oh that was too bad Wolf. I was in hopes of hearing the outcome of that event
gypsy (Oct 26, 2009 9:24:17 PM)
what do you do to fill in the time brit i get so bored
gypsy (Oct 26, 2009 9:24:28 PM)
sorry wolflady
wolflady (Oct 26, 2009 9:24:35 PM)
well, they said they want me there next year for their big seminar/ meeting, i think that one will be in july
paper (Oct 26, 2009 9:24:44 PM)
i go to the E N T tomarrow to see about my choking issues
wolflady (Oct 26, 2009 9:24:54 PM)
that one i will attend
gypsy (Oct 26, 2009 9:25:13 PM)
it never really accured to me when they told me i had md that i wouldn't be able to do my carfts and spin thought i did expect to be in a wheelchair
brit (Oct 26, 2009 9:25:15 PM)
I have many things Gypsy........I tead a lot, watch favorite shows and movies, play cards, etc.
paper (Oct 26, 2009 9:25:28 PM)
i listen to books on tape
froglady (Oct 26, 2009 9:25:29 PM)
We have an FSH support group in Tucson. At their last meeting they had a PT there that discussed back braces. The guy will give us a free eval to see what we think about them. I intend to go after Jim gets through with radiation
paper (Oct 26, 2009 9:25:45 PM)
i can read but i cant hold a heavy book for very long
gypsy (Oct 26, 2009 9:25:46 PM)
they are no doing things brit i don't like just looking
brit (Oct 26, 2009 9:26:00 PM)
I meant read....sorry
gypsy (Oct 26, 2009 9:26:13 PM)
i can't even seem to hold a magazine much now
wolflady (Oct 26, 2009 9:26:15 PM)
gypsy, i do a lot of jigsaw puzzles
wolflady (Oct 26, 2009 9:26:32 PM)
or word finds,
paper (Oct 26, 2009 9:26:46 PM)
so i down load books from the libary in indaianpolis
froglady (Oct 26, 2009 9:27:00 PM)
It takes me a long time to get two meals a day and get the kitchen cleaned up. I simply don't have time to get bored
gypsy (Oct 26, 2009 9:27:00 PM)
i am not sure i would have the arm control for them wolflady i think i would knock all the prieces off all the tiem
brit (Oct 26, 2009 9:27:05 PM)
It's hard somewtimes Gypsy, but I just do it
gypsy (Oct 26, 2009 9:27:25 PM)
sister started me doing suduko i am too dumb i get frsutrated at it
froglady (Oct 26, 2009 9:27:38 PM)
Oh gypsy, sudoko is great. I love it
gypsy (Oct 26, 2009 9:27:42 PM)
you peolpe seem to persaver so much better than i do
paper (Oct 26, 2009 9:27:56 PM)
ya i cant do suduko eather takes to much brain power lol
gypsy (Oct 26, 2009 9:27:58 PM)
i get to frstrated casue i am too dumb to work it out
froglady (Oct 26, 2009 9:28:24 PM)
I got a book of mind games from my daughter for my birthday. I am realizing that I am not all that smart. lol
brit (Oct 26, 2009 9:28:24 PM)
You're not dumb Gypsy.......not at all
paper (Oct 26, 2009 9:28:26 PM)
you are not dumb gypsy
gypsy (Oct 26, 2009 9:28:27 PM)
i have no brain power at all and no strenght to fight this any more
paper (Oct 26, 2009 9:28:51 PM)
well at least you are not like my gyspy
gypsy (Oct 26, 2009 9:28:52 PM)
froglady if you are not smart there is no hope at all for me
froglady (Oct 26, 2009 9:28:54 PM)
Gypsy, what you need is an electronic sudoko game. Much more fun
froglady (Oct 26, 2009 9:29:01 PM)
You can erase easier
paper (Oct 26, 2009 9:29:04 PM)
my memory is failing
paper (Oct 26, 2009 9:29:14 PM)
i have to make list and notes
gypsy (Oct 26, 2009 9:29:34 PM)
i have to do that all the time paper i can do anythign with out lists
gypsy (Oct 26, 2009 9:29:46 PM)
gto about 10 here beside me now
froglady (Oct 26, 2009 9:29:50 PM)
Oh gracious gypsy, you just need to get the electronic game then you would see how smart you are
paper (Oct 26, 2009 9:29:51 PM)
i even have a note on the coffee maker telling me how many sweetn lows and creamer i like in my coffee
brit (Oct 26, 2009 9:29:51 PM)
We don't really fight Gypsy...I feel it's more like coping and adapting
paper (Oct 26, 2009 9:30:28 PM)
ya adapting
froglady (Oct 26, 2009 9:30:30 PM)
LOL Paper, that is too funny
paper (Oct 26, 2009 9:30:38 PM)
hell itis the truth
paper (Oct 26, 2009 9:30:55 PM)
besides the md i have a brain tumor
froglady (Oct 26, 2009 9:31:11 PM)
Oh my paper. Is it operable?
paper (Oct 26, 2009 9:31:17 PM)
on my puitary gland and i have sesures
paper (Oct 26, 2009 9:31:21 PM)
nope
froglady (Oct 26, 2009 9:31:31 PM)
Sorry about that
paper (Oct 26, 2009 9:31:36 PM)
i think the damn thing is making me stupid
gypsy (Oct 26, 2009 9:31:43 PM)
there doesn't seem to be any way of addapting what i want to do
paper (Oct 26, 2009 9:31:49 PM)
it is ok i have came to terms with it
gypsy (Oct 26, 2009 9:31:50 PM)
i am sorry paper
brit (Oct 26, 2009 9:31:56 PM)
Is it growing paper?
wolflady (Oct 26, 2009 9:31:59 PM)
froglady, i had a back brace back when i was cleaning the post office, i got it in 96 used it uuntil 03, i went to a spine surgeon during that time and he said my back got weak faster because i got dependent on the brace from waring it all the time like i was told to do, now i lost weight and it is to big, i asked to have a new one made 4 years ago and was told that my back is to bad to have one made now that i could put on without lying on the bed, then i can't sit up to stand up
paper (Oct 26, 2009 9:32:00 PM)
nope
brit (Oct 26, 2009 9:32:24 PM)
Wolflady.......one finger did all that!?
paper (Oct 26, 2009 9:33:00 PM)
gesh she types good lol
gypsy (Oct 26, 2009 9:33:11 PM)
wolflady that is why my physio doesn't want me using any sort of brace she things that will happen ot me too
gypsy (Oct 26, 2009 9:33:29 PM)
i have to do pretty much everthing lieing on the bed now
wolflady (Oct 26, 2009 9:33:34 PM)
lol yes, Brit it did
gypsy (Oct 26, 2009 9:33:44 PM)
wolf that is very good typing
gypsy (Oct 26, 2009 9:33:50 PM)
wolflady
paper (Oct 26, 2009 9:33:57 PM)
man i use all my finger and she ccan beat me lol
froglady (Oct 26, 2009 9:34:07 PM)
that is interesting Wolf. I do wonder if it wouldn't be too confining. I will have to have a look at it before I make up my mind what I think
paper (Oct 26, 2009 9:34:14 PM)
that one little fing3er can fly lol
gypsy (Oct 26, 2009 9:34:20 PM)
just scared of what will happen whne i can't get back up by myself
wolflady (Oct 26, 2009 9:34:48 PM)
lol paper you funny
paper (Oct 26, 2009 9:35:10 PM)
ok
gypsy (Oct 26, 2009 9:35:19 PM)
my physio is very against usning anything that will make my muscles weaker froglady but i am guessing when you get older you do what you have to
wolflady (Oct 26, 2009 9:35:42 PM)
it depends on the brace, i think gypsy
gypsy (Oct 26, 2009 9:36:09 PM)
i hurt my knee some time back and we never used anything on it for that reason
froglady (Oct 26, 2009 9:36:21 PM)
In the FSH publication it shows a picture of a woman with a back brace. I think it looks interesting.
gypsy (Oct 26, 2009 9:36:34 PM)
can anyone get up off the ground ?
wolflady (Oct 26, 2009 9:36:51 PM)
i , myself don't like them, because i've adjusted as my muscles weaken then like froglady said, i find them to confining and can move as good as i do without them
gypsy (Oct 26, 2009 9:36:54 PM)
fshd affect the back more than lgmd too
paper (Oct 26, 2009 9:37:15 PM)
not with out big effort gypsy and sometimes not even then
brit (Oct 26, 2009 9:37:15 PM)
No Gypsy, but I've only been down once in two years
froglady (Oct 26, 2009 9:37:34 PM)
Gypsy, if I fell I could never, not ever get up by myself
gypsy (Oct 26, 2009 9:37:52 PM)
sorry that must be so scary
froglady (Oct 26, 2009 9:38:36 PM)
Even when I was young and didn't know I had FSH it was difficult getting up from the ground, but I could do it back when
wolflady (Oct 26, 2009 9:38:42 PM)
off the ground, not i, but off the floor, i scoot myself on my butt to the couch and "roll" from my knees onto the couch to sit up then, grab the computer chair to stand up
brit (Oct 26, 2009 9:38:55 PM)
I couldn't even twitch a muscle if I was on the ground
gypsy (Oct 26, 2009 9:39:31 PM)
do you think you avoided it back then casue it was diffiult froglady ?
froglady (Oct 26, 2009 9:39:34 PM)
Every once in a while when I stand up I get myself in a bind and am paralyzed by fear and can't move. Jim has to come to my rescue
froglady (Oct 26, 2009 9:39:47 PM)
Gypsy, I am sure I did a lot
brit (Oct 26, 2009 9:39:59 PM)
Me too Froglady
gypsy (Oct 26, 2009 9:40:11 PM)
i have been that problem in the wind forglady i get stuck and just can't move
brit (Oct 26, 2009 9:40:25 PM)
Then I yell for an aide!
gypsy (Oct 26, 2009 9:40:25 PM)
ok that is intersing casue i have theory on that
paper (Oct 26, 2009 9:40:25 PM)
brb
gypsy (Oct 26, 2009 9:40:44 PM)
cause i know healthy peolpe my age that won't even get on the gruond
froglady (Oct 26, 2009 9:40:47 PM)
We are supposed to get 35 mph winds tomorrow, gypsy, so you can be sure I am not going outside, not even in my chair
wolflady (Oct 26, 2009 9:40:55 PM)
oh out in the wind, gypsy, i freeze every time from fear, the wind can blow me right over
froglady (Oct 26, 2009 9:41:30 PM)
The one thing we have to contend with is balance or lack of it I should say
brit (Oct 26, 2009 9:41:32 PM)
Wing and gravity.......our worst enemies
gypsy (Oct 26, 2009 9:41:33 PM)
it nearly has me many times wolfady
brit (Oct 26, 2009 9:41:58 PM)
winD!
wolflady (Oct 26, 2009 9:42:16 PM)
i check my flag before i go oit, if its moving fairly good, i stay in lol
brit (Oct 26, 2009 9:42:33 PM)
Good idea Froglady
brit (Oct 26, 2009 9:42:35 PM)
LOL
froglady (Oct 26, 2009 9:42:44 PM)
LOL Wolf, I check the leaves on a tree that is by the LR window
gypsy (Oct 26, 2009 9:43:09 PM)
i have no choice but to go out i do get scared some days
gypsy (Oct 26, 2009 9:43:54 PM)
i think once i can't get up that i might have to think abuot going into care
wolflady (Oct 26, 2009 9:43:58 PM)
i get terrified in the winter, gypsy, because of snow and ice, so i stay in the house for 6 months lol
froglady (Oct 26, 2009 9:44:01 PM)
Brit, is it next week that the time will change?
paper (Oct 26, 2009 9:44:01 PM)
ok bk
wolflady (Oct 26, 2009 9:44:49 PM)
wb paper
paper (Oct 26, 2009 9:44:53 PM)
ty
brit (Oct 26, 2009 9:45:18 PM)
Yes..next Sat.
paper (Oct 26, 2009 9:45:23 PM)
ya when does the stupid time get changed again
gypsy (Oct 26, 2009 9:45:24 PM)
i would be terrifed of that two wolfady i couldn't live there i need to be outside every day
froglady (Oct 26, 2009 9:45:33 PM)
Paper, I was trying to figure out what bk meant until Wolf said wb. Now that is not smart
wolflady (Oct 26, 2009 9:45:34 PM)
i think it is, froglady
gypsy (Oct 26, 2009 9:45:34 PM)
os next weeks chat is later for me ?
paper (Oct 26, 2009 9:45:35 PM)
ugg i hate time change
paper (Oct 26, 2009 9:45:50 PM)
lol
gypsy (Oct 26, 2009 9:46:07 PM)
i think getting up 5 or 6 times a day helps
paper (Oct 26, 2009 9:46:11 PM)
i guess i have been in chats to long i know all those little thingys
froglady (Oct 26, 2009 9:46:12 PM)
Wolf, it takes me a while to get things figured out. lol
paper (Oct 26, 2009 9:46:41 PM)
ok how about TTFN
wolflady (Oct 26, 2009 9:46:43 PM)
no that was for the time change froglady
paper (Oct 26, 2009 9:46:53 PM)
ta ta for now lol
brit (Oct 26, 2009 9:47:03 PM)
LOL
wolflady (Oct 26, 2009 9:47:25 PM)
that one i didn't know i do know ttys though lol
froglady (Oct 26, 2009 9:47:28 PM)
LOL No, paper, I did not know what that was either
paper (Oct 26, 2009 9:47:30 PM)
or ROTFLMAF
brit (Oct 26, 2009 9:47:31 PM)
Getting up several times a day does help Gypsy
paper (Oct 26, 2009 9:47:59 PM)
rolling on the floor laughing my a== off lol
wolflady (Oct 26, 2009 9:48:00 PM)
that one is rolling on the floor laughing my a-- off
froglady (Oct 26, 2009 9:48:10 PM)
Getting out of my chair in the restroom many times a day is good for me I think
paper (Oct 26, 2009 9:48:11 PM)
heheh
brit (Oct 26, 2009 9:48:29 PM)
One hour earlier Gypsy........or is it later! Help!
gypsy (Oct 26, 2009 9:48:44 PM)
i think it's later brit
paper (Oct 26, 2009 9:48:51 PM)
spring foward fall back lol
wolflady (Oct 26, 2009 9:48:54 PM)
i half to get up about every 1 1/2 - 2 hours or i get really stiff
gypsy (Oct 26, 2009 9:48:59 PM)
i was 1pm today i think it would be 2pm next week
froglady (Oct 26, 2009 9:49:14 PM)
As long as everyone remembers the time to come on the chat next week. I have to come on an hour later because we do not change time here
gypsy (Oct 26, 2009 9:49:30 PM)
i may not be able to come agian for a while now anyway
froglady (Oct 26, 2009 9:49:52 PM)
Sorry to hear that Gypsy. We miss you when you aren't here
gypsy (Oct 26, 2009 9:50:15 PM)
i am rarely home on a tueday i miss this cha
wolflady (Oct 26, 2009 9:50:16 PM)
once we change the clock on sat. night the clockl still say 9 p.m. on monday
gypsy (Oct 26, 2009 9:50:16 PM)
t
paper (Oct 26, 2009 9:50:18 PM)
it is in the spring you put clocks 1 hr ahead and in fall it is 1 hr ahead
brit (Oct 26, 2009 9:50:21 PM)
We do indeed Gypsy
paper (Oct 26, 2009 9:50:41 PM)
back i mean lol
wolflady (Oct 26, 2009 9:50:50 PM)
fall is back 1 hour paper
wolflady (Oct 26, 2009 9:50:55 PM)
lol
froglady (Oct 26, 2009 9:50:57 PM)
Well guys I think I got beat at Fantasy this week. I was ahead last night but my opponent had Santana Moss tonight and I think he will cause me to lose. :(
paper (Oct 26, 2009 9:50:59 PM)
gesh
gypsy (Oct 26, 2009 9:51:03 PM)
we had to put ours on last month i so hate daylight saving
paper (Oct 26, 2009 9:51:05 PM)
i hate that lol
wolflady (Oct 26, 2009 9:51:36 PM)
oopps sorry
paper (Oct 26, 2009 9:51:48 PM)
i dont get fantasy football
paper (Oct 26, 2009 9:51:58 PM)
is it a game or what
wolflady (Oct 26, 2009 9:52:31 PM)
i don't understand the one froglady plays so i don't play it
froglady (Oct 26, 2009 9:52:45 PM)
Paper it is a game you play on the nfl.com web site
paper (Oct 26, 2009 9:53:13 PM)
oh ok i thought maybe it was like betting on footbal or something
froglady (Oct 26, 2009 9:53:15 PM)
You pick your lineup from among the many teams and you get their points when they play
paper (Oct 26, 2009 9:53:15 PM)
lol
gypsy (Oct 26, 2009 9:53:40 PM)
i don't use any one line games a here enough as it is
froglady (Oct 26, 2009 9:53:43 PM)
I really work at winning
gypsy (Oct 26, 2009 9:53:54 PM)
none of you got to many of the other chats do you
froglady (Oct 26, 2009 9:54:04 PM)
My grandson got me to doing Fantasy and I have been at it for nine seasons
wolflady (Oct 26, 2009 9:54:14 PM)
wow
froglady (Oct 26, 2009 9:54:14 PM)
No, I don't gypsy
paper (Oct 26, 2009 9:54:30 PM)
i go in to yahoo chats but not much i hate all the spammers and porn bots
froglady (Oct 26, 2009 9:54:42 PM)
Wolf, as much as you like football you might want to try it. It is fun
gypsy (Oct 26, 2009 9:54:55 PM)
i have never used those paper
wolflady (Oct 26, 2009 9:55:14 PM)
if someone explains it to me so i know what i'm doing, i might next year
froglady (Oct 26, 2009 9:55:32 PM)
My hubby is very particular which sites I visit. He doesn't ever ever want me visiting facebook or any of those
paper (Oct 26, 2009 9:55:38 PM)
i do the football pick on the local news web site where you pick who wins and get standings
gypsy (Oct 26, 2009 9:55:59 PM)
i don't use face book either frolgady
froglady (Oct 26, 2009 9:56:00 PM)
Oh, I hadn't heard of that Paper
steve-k (Oct 26, 2009 9:56:04 PM)
(This user has entered FSHD Chat)
gypsy (Oct 26, 2009 9:56:09 PM)
i do use msn a lot now
gypsy (Oct 26, 2009 9:56:18 PM)
i need ot have peolpe to talk ot
froglady (Oct 26, 2009 9:56:18 PM)
Hello Steve-k. Welcome to the FSHD chat
gypsy (Oct 26, 2009 9:56:23 PM)
hi steve
wolflady (Oct 26, 2009 9:56:31 PM)
i used to do the "pro pick em" on yahoo with my brother and 1 sister but they quit doing it 2 years ago
steve-k (Oct 26, 2009 9:56:35 PM)
Hello all. Newbie here.
wolflady (Oct 26, 2009 9:56:46 PM)
hi steve
gypsy (Oct 26, 2009 9:56:48 PM)
think i would totally lose it with out my computer
brit (Oct 26, 2009 9:56:49 PM)
Hi Steve-k......welcome to this chat
paper (Oct 26, 2009 9:56:54 PM)
and who ever gets the most picks at the end they get put in a pool and they pick for prizes at the end
froglady (Oct 26, 2009 9:56:54 PM)
Would you like to tell us about yourself Steve?
paper (Oct 26, 2009 9:57:08 PM)
hi steve
paper (Oct 26, 2009 9:57:49 PM)
i get a lot right ihave never really won anything but a free dinner at steaknshake lol
brit (Oct 26, 2009 9:58:10 PM)
That's ok paper! LOL
wolflady (Oct 26, 2009 9:58:21 PM)
oh no, froggy did you scare him now that all eyes are on Steve, just joking
froglady (Oct 26, 2009 9:58:49 PM)
We don't win anything in Fantasy only just the fun of winning. However there are paid games, but I get the free ones
paper (Oct 26, 2009 9:58:49 PM)
i think it is fixed lol i want that 42 inch plazms tv this year but i highly dought it
wolflady (Oct 26, 2009 9:58:50 PM)
free dinner isn't bad
steve-k (Oct 26, 2009 9:58:54 PM)
Sure. I think... In short 57 yr old guy living in MD w/ FSH. Onset in mid-teens and now use scooter and motorized chair to get around.
brit (Oct 26, 2009 9:59:12 PM)
Some of us have FSHMD steve, but not all.......anyone is werlcome
wolflady (Oct 26, 2009 9:59:18 PM)
wher you from?
paper (Oct 26, 2009 9:59:37 PM)
ya it was wolf it was in the big city where i hardly ever go
froglady (Oct 26, 2009 9:59:39 PM)
You are in the right crowd Steve. Happy to have you on board. What part of the country do you hail from?
steve-k (Oct 26, 2009 9:59:40 PM)
Orig in NY but now live near DC
steve-k (Oct 26, 2009 10:00:14 PM)
Not much hail, but quite a bit of rain lately. (:-)
paper (Oct 26, 2009 10:00:21 PM)
lol
wolflady (Oct 26, 2009 10:00:26 PM)
i'm 44 onset of FSH at age 7 i use a scooter oitside, otherwise i walk indoor, house is to small for a w/c
froglady (Oct 26, 2009 10:00:58 PM)
Oh wow, we don't have anyone near DC. Tonight we have Australia, Michigan, Indiana, Minnesota and Arizona present. I am Arizona
wolflady (Oct 26, 2009 10:01:21 PM)
i'm the Minnesota one
brit (Oct 26, 2009 10:01:24 PM)
It sounds like you are about where I was when I was 57 Steve, 13 years ago....not terribly much worse now
paper (Oct 26, 2009 10:01:31 PM)
wow frog do you have that wrote down or something lol
froglady (Oct 26, 2009 10:02:03 PM)
Sure do paper. I couldn't remember it otherwise. lol
paper (Oct 26, 2009 10:02:08 PM)
lol
froglady (Oct 26, 2009 10:02:27 PM)
Steve, can you walk at all?
paper (Oct 26, 2009 10:02:30 PM)
i think i need to start a list so i can rember everyone lol
froglady (Oct 26, 2009 10:02:42 PM)
That is what I do paper
gypsy (Oct 26, 2009 10:02:46 PM)
i am easy one to remember paper
paper (Oct 26, 2009 10:03:02 PM)
yep gypsy u are unique
wolflady (Oct 26, 2009 10:03:05 PM)
yep, gypsy is our aussie gal
froglady (Oct 26, 2009 10:03:18 PM)
Our gypsy girl from AU
brit (Oct 26, 2009 10:03:26 PM)
I'm Michigan Steve, but hail from Iowa
paper (Oct 26, 2009 10:03:35 PM)
indiana here
steve-k (Oct 26, 2009 10:03:44 PM)
Used to have a good support group nearby, but the lead person passed on. Sorry if that sounds bad, but it happens.
paper (Oct 26, 2009 10:04:15 PM)
that \sok steve we all have to die it is the only time we are with out pain
gypsy (Oct 26, 2009 10:04:23 PM)
its good you had a support gruop steve nothing like that around here why i am on this chat i have alot of great support here
froglady (Oct 26, 2009 10:04:30 PM)
We have a pretty new support group in Tucson, but I haven't been to it yet, but I do get the news about the meetings from the MDA person at the local office
brit (Oct 26, 2009 10:04:32 PM)
I think we all know persons like that Steve
paper (Oct 26, 2009 10:04:37 PM)
glad you found us though
wolflady (Oct 26, 2009 10:04:37 PM)
that is what i wish i had here, the closest support group for me is 1 1/2 hour drive away
steve-k (Oct 26, 2009 10:05:17 PM)
Oh, nice to meet ya all!!
froglady (Oct 26, 2009 10:05:24 PM)
Steve, do you go to an MDA Clinic?
brit (Oct 26, 2009 10:05:28 PM)
About an hour for me Wolflady
paper (Oct 26, 2009 10:05:33 PM)
there is no specific support group any where for me i am a rare jewel lol
froglady (Oct 26, 2009 10:05:42 PM)
LOL Paper, I guess you are
paper (Oct 26, 2009 10:05:46 PM)
lol
wolflady (Oct 26, 2009 10:05:49 PM)
so all these wonderful people here are my support every monday night, can't beat them they are the best
paper (Oct 26, 2009 10:05:56 PM)
and a smarty pants lol
paper (Oct 26, 2009 10:06:03 PM)
heheheh
gypsy (Oct 26, 2009 10:06:10 PM)
i got more like 5 hours wolflady and i am not sure anyone even goes last time i inquiered no one did
steve-k (Oct 26, 2009 10:06:14 PM)
Yeah. They've been very good to me.
froglady (Oct 26, 2009 10:06:18 PM)
I must remind you all that we have seven minutes left for tonight's chat. Remember that the time will change for next week's chat depending on where you live
brit (Oct 26, 2009 10:06:24 PM)
You come back next week Steve........we start at 9:45 Eastern
paper (Oct 26, 2009 10:07:03 PM)
ya steve come bk so we can grill you some more heheheh
froglady (Oct 26, 2009 10:07:34 PM)
Steve, do you have children?
wolflady (Oct 26, 2009 10:07:35 PM)
oh paper, you are great, you just keep me laughing
paper (Oct 26, 2009 10:07:49 PM)
we need to get to know u
paper (Oct 26, 2009 10:07:53 PM)
i try
froglady (Oct 26, 2009 10:07:55 PM)
I have children and two of them have FSH
brit (Oct 26, 2009 10:07:58 PM)
I'm gonna sign off now........you all have a blessed week...OK?
gypsy (Oct 26, 2009 10:08:03 PM)
night brit tc
paper (Oct 26, 2009 10:08:05 PM)
by brit
paper (Oct 26, 2009 10:08:14 PM)
huggles brit
brit (Oct 26, 2009 10:08:18 PM)
LOL
wolflady (Oct 26, 2009 10:08:22 PM)
you have a great one too Brit tc good night
froglady (Oct 26, 2009 10:08:25 PM)
You too Brit. Happy that your living situation has stableized
brit (Oct 26, 2009 10:08:41 PM)
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gypsy (Oct 26, 2009 10:08:48 PM)
i best get going too bye tc
paper (Oct 26, 2009 10:08:50 PM)
i have a halo but it is a bit crooked
paper (Oct 26, 2009 10:08:58 PM)
seeeeeeeeeeOOOOO
wolflady (Oct 26, 2009 10:09:10 PM)
tc gypsy, see you next week goodnight
steve-k (Oct 26, 2009 10:09:26 PM)
g'night all
paper (Oct 26, 2009 10:09:27 PM)
<___>
wolflady (Oct 26, 2009 10:09:36 PM)
i thought it looked a tad different, paper
paper (Oct 26, 2009 10:09:44 PM)
hehehhe
wolflady (Oct 26, 2009 10:09:50 PM)
good night steve
froglady (Oct 26, 2009 10:09:51 PM)
Steve, if you have any subject that you would like to discuss we will be happy to talk about it. We are a good support group here.
paper (Oct 26, 2009 10:09:56 PM)
if you cant laugh you will cry
paper (Oct 26, 2009 10:10:05 PM)
i perfer to laugh
wolflady (Oct 26, 2009 10:10:12 PM)
exactly, paper, my thought too
paper (Oct 26, 2009 10:10:15 PM)
allthough i cry some too
froglady (Oct 26, 2009 10:10:48 PM)
I am going to say my goodnights now in case you leave and I don't catch you
gypsy (Oct 26, 2009 10:11:11 PM)
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steve-k (Oct 26, 2009 10:11:15 PM)
(This user has left DigiChat)
paper (Oct 26, 2009 10:11:16 PM)
and with the type of md i have i dont really talk about it cause no one else knows what i am going through
wolflady (Oct 26, 2009 10:11:47 PM)
i'm going to sign off too, my arm is sore see you all next week, have a great week and Happy Ghost and Goblins Day
paper (Oct 26, 2009 10:11:48 PM)
so i crack up when i can and cry when no one else is around
paper (Oct 26, 2009 10:12:02 PM)
hehe by wolf
froglady (Oct 26, 2009 10:12:14 PM)
Paper, we all have similar situations even though each is a little different. I hope you find this to be good support for you
paper (Oct 26, 2009 10:12:23 PM)
oh ya
wolflady (Oct 26, 2009 10:12:40 PM)
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froglady (Oct 26, 2009 10:12:47 PM)
I am signing off now too. Goodnight all
paper (Oct 26, 2009 10:12:50 PM)
well i am going to frog ttfm
paper (Oct 26, 2009 10:13:00 PM)
night frog
froglady (Oct 26, 2009 10:13:03 PM)
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paper (Oct 26, 2009 10:13:18 PM)
(This user has left DigiChat)