DMD Parent Chat
momma (Dec 20, 2007 8:47:20 PM)
momma (Dec 20, 2007 8:55:21 PM)
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momma (Dec 20, 2007 8:55:31 PM)
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momma (Dec 20, 2007 8:55:48 PM)
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momma (Dec 20, 2007 9:08:09 PM)
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sanany (Dec 20, 2007 9:14:29 PM)
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sanany (Dec 20, 2007 9:14:40 PM)
hi momma
sanany (Dec 20, 2007 9:15:01 PM)
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momma (Dec 20, 2007 9:15:07 PM)
hi
sanany (Dec 20, 2007 9:17:37 PM)
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momma (Dec 20, 2007 9:17:47 PM)
wb
sanany (Dec 20, 2007 9:18:59 PM)
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sanany (Dec 20, 2007 9:19:07 PM)
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sanany (Dec 20, 2007 9:19:34 PM)
hello
momma (Dec 20, 2007 9:19:52 PM)
how are ya
sanany (Dec 20, 2007 9:20:02 PM)
im doing good today
momma (Dec 20, 2007 9:20:21 PM)
good to hear
sanany (Dec 20, 2007 9:20:48 PM)
i went to the gym for the first time in a while,it was very relaxing
sanany (Dec 20, 2007 9:21:04 PM)
how was your day today?
momma (Dec 20, 2007 9:21:06 PM)
i need too
sanany (Dec 20, 2007 9:21:19 PM)
me too im out of shape
momma (Dec 20, 2007 9:21:28 PM)
kent and i went shopping
momma (Dec 20, 2007 9:21:38 PM)
im tired
momma (Dec 20, 2007 9:22:12 PM)
i had lost some weight but i have gained a few back
momma (Dec 20, 2007 9:22:28 PM)
and im not liking it
sanany (Dec 20, 2007 9:22:35 PM)
i know how that is im a jo jo dieter
momma (Dec 20, 2007 9:22:54 PM)
so i guess i better do something about it
sanany (Dec 20, 2007 9:23:14 PM)
yes and you will feel batter too
momma (Dec 20, 2007 9:23:22 PM)
i do weight watchers it awesome whrn i work the program
momma (Dec 20, 2007 9:23:32 PM)
when
sanany (Dec 20, 2007 9:23:35 PM)
i never tried them
momma (Dec 20, 2007 9:24:08 PM)
i like it cause you can eat regular food just watch portions
sanany (Dec 20, 2007 9:24:11 PM)
i called for that cd
momma (Dec 20, 2007 9:24:23 PM)
did ya
sanany (Dec 20, 2007 9:24:44 PM)
is it expensive?
momma (Dec 20, 2007 9:25:11 PM)
i do a monthly plan it 36.00 a month
momma (Dec 20, 2007 9:25:28 PM)
so like 9 dollars a week
sanany (Dec 20, 2007 9:25:36 PM)
thats not bad,do they provide any food
momma (Dec 20, 2007 9:25:42 PM)
no food
sanany (Dec 20, 2007 9:26:01 PM)
they just give you a chart
sanany (Dec 20, 2007 9:26:21 PM)
im not good with points
momma (Dec 20, 2007 9:26:34 PM)
they even have online program to help with food tips and recipies so on
momma (Dec 20, 2007 9:27:02 PM)
well they do have a core program you dont have to count points
momma (Dec 20, 2007 9:27:13 PM)
it like no carbs
sanany (Dec 20, 2007 9:27:26 PM)
i love carbs
liisau (Dec 20, 2007 9:27:29 PM)
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liisau (Dec 20, 2007 9:27:49 PM)
good evening
sanany (Dec 20, 2007 9:27:52 PM)
hi lisau
liisau (Dec 20, 2007 9:28:08 PM)
hi, sanany
momma (Dec 20, 2007 9:28:10 PM)
hi lisa
liisau (Dec 20, 2007 9:28:15 PM)
hi momma
liisau (Dec 20, 2007 9:28:21 PM)
what's the topic so far?
momma (Dec 20, 2007 9:28:33 PM)
diet
sanany (Dec 20, 2007 9:28:40 PM)
exersise
momma (Dec 20, 2007 9:28:55 PM)
how i need both
sanany (Dec 20, 2007 9:29:01 PM)
lol me too
liisau (Dec 20, 2007 9:29:03 PM)
lol, I know i do too!
momma (Dec 20, 2007 9:29:26 PM)
how was your day
liisau (Dec 20, 2007 9:29:42 PM)
good for the most part.
liisau (Dec 20, 2007 9:29:49 PM)
I have some questions and things to share
liisau (Dec 20, 2007 9:29:54 PM)
you?
momma (Dec 20, 2007 9:29:58 PM)
go ahead
liisau (Dec 20, 2007 9:30:03 PM)
you? = how was your day? ;-)
momma (Dec 20, 2007 9:30:04 PM)
good day here
liisau (Dec 20, 2007 9:30:34 PM)
can anyone tell me what kind of tests were run when you were first notified? Such as...
sanany (Dec 20, 2007 9:30:42 PM)
same here a actually had a good day,untill my mother started her crazyness
liisau (Dec 20, 2007 9:30:45 PM)
cardio, pulmonology
sanany (Dec 20, 2007 9:30:51 PM)
dna
liisau (Dec 20, 2007 9:30:56 PM)
mother's are wonderful and crazy =)
liisau (Dec 20, 2007 9:31:13 PM)
any tests to show baselines of heart and lungs
liisau (Dec 20, 2007 9:31:14 PM)
?
sanany (Dec 20, 2007 9:31:19 PM)
lol.....yes that are im glad im not the only one
liisau (Dec 20, 2007 9:31:29 PM)
lol
sanany (Dec 20, 2007 9:31:39 PM)
they are
momma (Dec 20, 2007 9:31:49 PM)
as in and lungsyour sons heart
momma (Dec 20, 2007 9:32:21 PM)
how old is your son ?lisa
liisau (Dec 20, 2007 9:32:54 PM)
yes... mine's 2. I ask because another family's son who is 3 had that stuff done already
liisau (Dec 20, 2007 9:33:05 PM)
in fact they already found his heart to be having problems
momma (Dec 20, 2007 9:33:25 PM)
was he having symptoms already?
liisau (Dec 20, 2007 9:33:34 PM)
nope.. they wanted to baseline him
momma (Dec 20, 2007 9:34:03 PM)
kent didnt even see heart or even plumonary till i think he was 11
momma (Dec 20, 2007 9:34:06 PM)
or so
liisau (Dec 20, 2007 9:34:28 PM)
ok
momma (Dec 20, 2007 9:34:41 PM)
but kent is now almost 22 so mabey things are differant
liisau (Dec 20, 2007 9:35:03 PM)
ah. true. well, some other parents from NC and I have been talking
sanany (Dec 20, 2007 9:35:07 PM)
there is different severities
liisau (Dec 20, 2007 9:35:19 PM)
mine's 2, their's are 3 and 4
sanany (Dec 20, 2007 9:35:33 PM)
brb
momma (Dec 20, 2007 9:35:37 PM)
ok
liisau (Dec 20, 2007 9:35:46 PM)
so the severity is certainly understandable, but the 3 year old didn't really show much more symptoms then mine
momma (Dec 20, 2007 9:36:02 PM)
hmm not sure
liisau (Dec 20, 2007 9:36:44 PM)
Mainly we got into the subject of standard treatment protocols and were wondering if the medical community have started this.
liisau (Dec 20, 2007 9:37:08 PM)
we know that each child presents uniquely but not too far off that there isn't some sort of protocol that can be established
liisau (Dec 20, 2007 9:37:27 PM)
i'm getting into the advocate mode LOL
momma (Dec 20, 2007 9:37:53 PM)
i dont think thier is a standard with i think they should have some kind of guidelines
momma (Dec 20, 2007 9:38:06 PM)
with mad i mean
momma (Dec 20, 2007 9:38:11 PM)
mda
liisau (Dec 20, 2007 9:38:14 PM)
lol
momma (Dec 20, 2007 9:38:29 PM)
to much shopping today lol
liisau (Dec 20, 2007 9:38:37 PM)
tired fingers
momma (Dec 20, 2007 9:38:48 PM)
yea
momma (Dec 20, 2007 9:38:51 PM)
lol
momma (Dec 20, 2007 9:39:49 PM)
im achey all over tonight it heck getting older lol
liisau (Dec 20, 2007 9:40:09 PM)
lol, hope you are not getting a cold
sanany (Dec 20, 2007 9:40:37 PM)
hello everyone this is Anas sister she steped away from the computer for a min
liisau (Dec 20, 2007 9:40:38 PM)
I started a fundraising page with PPMD and a website for C on caringbridge.or
liisau (Dec 20, 2007 9:40:39 PM)
org
momma (Dec 20, 2007 9:40:46 PM)
hope not had bronchitist a month ago
liisau (Dec 20, 2007 9:40:57 PM)
hello Anas sister
liisau (Dec 20, 2007 9:41:02 PM)
i hope not too momma
sanany (Dec 20, 2007 9:41:04 PM)
hi
momma (Dec 20, 2007 9:41:23 PM)
how are you
sanany (Dec 20, 2007 9:41:25 PM)
Ana and I are new to all this and we apresiate all the information
liisau (Dec 20, 2007 9:41:56 PM)
I'm sorry to hear you have had to join us
liisau (Dec 20, 2007 9:42:06 PM)
but welcome of course
sanany (Dec 20, 2007 9:42:20 PM)
I sometime am not the wises person so I am glad she can come here and unloaded here
momma (Dec 20, 2007 9:42:31 PM)
my son is almost 22 and my best advice is be informed and dont get to caught up in the future
momma (Dec 20, 2007 9:42:56 PM)
enjoy today :)
sanany (Dec 20, 2007 9:43:09 PM)
Ana and I are enjoying Eric on the good day and the bad
sanany (Dec 20, 2007 9:43:15 PM)
one day at a time right
sanany (Dec 20, 2007 9:43:31 PM)
thats all we can all do
liisau (Dec 20, 2007 9:43:34 PM)
My son is 2 and we just found otu in Sept
liisau (Dec 20, 2007 9:43:40 PM)
Here are a few websites:
http://health.groups.yahoo.com/group/dmdsupport/
https://www.duchenneconnect.org/
http://www.dmdpioneers.org/moving.htm/1
http://www.dariusgoeswest.com/AboutDGW.pdf
sanany (Dec 20, 2007 9:43:52 PM)
Wow I am sorry to hear that
liisau (Dec 20, 2007 9:43:55 PM)
www.parentprojectmd.org
sanany (Dec 20, 2007 9:44:10 PM)
We didnt catch it until reseantly
sanany (Dec 20, 2007 9:44:34 PM)
my mom was the one the really realized we all new something was goigin on
sanany (Dec 20, 2007 9:44:48 PM)
but no one wants to admit there son hada problem
liisau (Dec 20, 2007 9:44:52 PM)
cureduchenne.org and http://dystrophy.genetics.utah.edu/
liisau (Dec 20, 2007 9:45:19 PM)
sorry for all this list, but if anyone reads these chat transcripts, I'd love for someone to catcth these valuable resources
liisau (Dec 20, 2007 9:45:36 PM)
that Utah one is another DMD registry for research
liisau (Dec 20, 2007 9:46:09 PM)
the cure duchenne one has a wonderful song on it written just about DMD
momma (Dec 20, 2007 9:46:14 PM)
that what ya gotta do
sanany (Dec 20, 2007 9:46:16 PM)
yeah I thanks you
sanany (Dec 20, 2007 9:46:27 PM)
We have been to many of those sites
sanany (Dec 20, 2007 9:46:39 PM)
except the yahoo one
sanany (Dec 20, 2007 9:47:10 PM)
I know we heard that song the other day
sanany (Dec 20, 2007 9:47:20 PM)
it was very sad yet hopeful
sanany (Dec 20, 2007 9:47:38 PM)
I try not to cry but that mad me releace
sanany (Dec 20, 2007 9:47:56 PM)
sometimes Ana doesnt think i care causei dont cry
momma (Dec 20, 2007 9:47:57 PM)
sometimes ya gotta cry
sanany (Dec 20, 2007 9:48:02 PM)
but i dont cry for here
sanany (Dec 20, 2007 9:48:07 PM)
i want to be strong
liisau (Dec 20, 2007 9:48:12 PM)
I cry then eat ice cream LOL
sanany (Dec 20, 2007 9:48:23 PM)
lol
liisau (Dec 20, 2007 9:48:25 PM)
it's very therapeutic
sanany (Dec 20, 2007 9:48:29 PM)
yeah i sry when i am alone
momma (Dec 20, 2007 9:48:30 PM)
sometime even when your stong it ok to cry
liisau (Dec 20, 2007 9:48:47 PM)
good for the soul and healing
liisau (Dec 20, 2007 9:49:00 PM)
it's hard not to be consumed by this
sanany (Dec 20, 2007 9:49:20 PM)
Yeah but we grew up with people telling us we were weak if we cryed
momma (Dec 20, 2007 9:49:25 PM)
belive me i have had to be strong along this path but you better belive i have had LOTS of tears
sanany (Dec 20, 2007 9:49:30 PM)
and not to feel sorry for our selfs
sanany (Dec 20, 2007 9:49:55 PM)
Ana crys to but I keep it in
liisau (Dec 20, 2007 9:49:56 PM)
momma, it's good of you to share
momma (Dec 20, 2007 9:50:07 PM)
np
sanany (Dec 20, 2007 9:50:11 PM)
it hurts inside when i dont cry but its building in there
liisau (Dec 20, 2007 9:50:15 PM)
Ana, it's good of you to share too.
liisau (Dec 20, 2007 9:50:28 PM)
sounds like you are having one of your tough days
sanany (Dec 20, 2007 9:50:45 PM)
Anas right here
sanany (Dec 20, 2007 9:50:55 PM)
I got the laptop know
sanany (Dec 20, 2007 9:50:57 PM)
my turn
sanany (Dec 20, 2007 9:50:58 PM)
lol
liisau (Dec 20, 2007 9:51:00 PM)
lol
sanany (Dec 20, 2007 9:51:25 PM)
Sometime i dont say the rigth thing
sanany (Dec 20, 2007 9:51:43 PM)
even thouhg erics not my son we had our children together
sanany (Dec 20, 2007 9:51:55 PM)
they are 3 months apart
momma (Dec 20, 2007 9:51:56 PM)
we all guilty of that some time or another
liisau (Dec 20, 2007 9:51:58 PM)
the entire family is affected
liisau (Dec 20, 2007 9:52:08 PM)
extended and all
sanany (Dec 20, 2007 9:52:16 PM)
so my daughter is very close to Eric
momma (Dec 20, 2007 9:52:17 PM)
not saying the right thing i mean
liisau (Dec 20, 2007 9:52:19 PM)
how old is Eric
sanany (Dec 20, 2007 9:52:20 PM)
she will suffer too
sanany (Dec 20, 2007 9:52:23 PM)
6
sanany (Dec 20, 2007 9:52:32 PM)
just turned 6
liisau (Dec 20, 2007 9:52:47 PM)
fun age
sanany (Dec 20, 2007 9:52:57 PM)
yeah full of smiles
liisau (Dec 20, 2007 9:52:58 PM)
they are so full of wonderful spirit
sanany (Dec 20, 2007 9:53:07 PM)
and laughter
sanany (Dec 20, 2007 9:53:32 PM)
even when we are sad if we see a smile from is innocent face it always makes us feel better
momma (Dec 20, 2007 9:54:02 PM)
we learn alot from our dmd boys
sanany (Dec 20, 2007 9:54:16 PM)
Icant pretend to know whatanyof you are going thouhg but I love Eric as if he was my own
sanany (Dec 20, 2007 9:54:28 PM)
but he also teaches me
liisau (Dec 20, 2007 9:54:29 PM)
i'm sorry everyone... my cold is getting the best of me. Let me leave with one thought... No one is promised a tomorrow, live life with that in mind...
momma (Dec 20, 2007 9:54:35 PM)
about love life and exceptance
liisau (Dec 20, 2007 9:54:45 PM)
www.caringbridge.org/visit/ourconnor
sanany (Dec 20, 2007 9:54:58 PM)
Thanks Mom that was beautiful
liisau (Dec 20, 2007 9:55:13 PM)
night and Merry Christmas/Happy Holidays
liisau (Dec 20, 2007 9:55:17 PM)
hugs hugs hugs
momma (Dec 20, 2007 9:55:30 PM)
same to you lisau
liisau (Dec 20, 2007 9:55:38 PM)
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sanany (Dec 20, 2007 9:56:03 PM)
So lise
sanany (Dec 20, 2007 9:56:26 PM)
do you know what i can do to support Ana more?
sanany (Dec 20, 2007 9:56:50 PM)
I try to make feel better but most of the time i stick my foot in my mouth
momma (Dec 20, 2007 9:56:55 PM)
just be thier to listen and support her she gonna need it
sanany (Dec 20, 2007 9:56:57 PM)
and console her
sanany (Dec 20, 2007 9:57:17 PM)
I try I know theres nothing i can say
sanany (Dec 20, 2007 9:57:26 PM)
or do
momma (Dec 20, 2007 9:58:01 PM)
it put great stress on a person when my son was diaganosed i went through depression anxiety and so on
sanany (Dec 20, 2007 9:58:21 PM)
is your som the 2 year old?
momma (Dec 20, 2007 9:58:35 PM)
mabey you guys get involved with mda they have support groups that might be a good start
momma (Dec 20, 2007 9:58:42 PM)
22
sanany (Dec 20, 2007 9:58:59 PM)
22 I see how is he if you dont mind me asking
momma (Dec 20, 2007 9:59:07 PM)
well 21 he will 22 in march
momma (Dec 20, 2007 9:59:21 PM)
he doing good
sanany (Dec 20, 2007 9:59:30 PM)
What kind does he have?
momma (Dec 20, 2007 9:59:45 PM)
he uses a vent 24/7
momma (Dec 20, 2007 9:59:48 PM)
dmd
sanany (Dec 20, 2007 9:59:54 PM)
like Eric
momma (Dec 20, 2007 10:00:05 PM)
yes
sanany (Dec 20, 2007 10:00:12 PM)
so your goign thouhg the hardest part right know
sanany (Dec 20, 2007 10:00:24 PM)
you have been though all this
momma (Dec 20, 2007 10:00:31 PM)
yes
sanany (Dec 20, 2007 10:00:38 PM)
do you have supporrt from your family
momma (Dec 20, 2007 10:00:43 PM)
but we still have a lot of good days
sanany (Dec 20, 2007 10:01:04 PM)
I am sure eeryday you have with him is a blessing
momma (Dec 20, 2007 10:01:06 PM)
yea some support but i have the best suport here
sanany (Dec 20, 2007 10:01:07 PM)
like Eric
sanany (Dec 20, 2007 10:01:29 PM)
Well i am sure people understand here and dont judge
sanany (Dec 20, 2007 10:01:44 PM)
I see how people look at Eric even the ones in our family
momma (Dec 20, 2007 10:01:44 PM)
nothing like chatting with people that have walked in the same shoes
sanany (Dec 20, 2007 10:01:51 PM)
it makes my blood boil
momma (Dec 20, 2007 10:02:18 PM)
yea you will have that some people will never undserstand
sanany (Dec 20, 2007 10:02:21 PM)
Like I told Ana I am goign to be here every step of the way
sanany (Dec 20, 2007 10:02:35 PM)
yeah and dont try to either
sanany (Dec 20, 2007 10:02:54 PM)
ignorence is bliss but for whom right
momma (Dec 20, 2007 10:02:55 PM)
thats what she needs to hear
momma (Dec 20, 2007 10:03:07 PM)
that yu will help her
sanany (Dec 20, 2007 10:03:31 PM)
I moved here just to be with her and Eric
momma (Dec 20, 2007 10:03:54 PM)
do you guys know anyone else that has dmd
sanany (Dec 20, 2007 10:03:58 PM)
My daughter Jasmeen is like his sister
momma (Dec 20, 2007 10:04:05 PM)
thats nice
sanany (Dec 20, 2007 10:04:06 PM)
No
momma (Dec 20, 2007 10:04:11 PM)
oh
sanany (Dec 20, 2007 10:04:12 PM)
not at all
sanany (Dec 20, 2007 10:04:18 PM)
not in the family
sanany (Dec 20, 2007 10:04:20 PM)
or outside
sanany (Dec 20, 2007 10:04:22 PM)
it
momma (Dec 20, 2007 10:04:37 PM)
it helps to see other it makes you feel you rnot alone
sanany (Dec 20, 2007 10:04:54 PM)
I didnt even know what it was until Eric was dignosed
sanany (Dec 20, 2007 10:05:12 PM)
when she told me i was like ok know what
momma (Dec 20, 2007 10:05:22 PM)
you ll have to check out mda clinic they have support groups
sanany (Dec 20, 2007 10:05:26 PM)
but I went o work that night and readabout it on the interents
sanany (Dec 20, 2007 10:05:36 PM)
and had a nervice brake down
sanany (Dec 20, 2007 10:05:44 PM)
we will
momma (Dec 20, 2007 10:05:50 PM)
ok
sanany (Dec 20, 2007 10:05:51 PM)
once we getmore settled
sanany (Dec 20, 2007 10:06:23 PM)
I walked out of work that night and parked on the side of the road crying
sanany (Dec 20, 2007 10:06:25 PM)
screaming
momma (Dec 20, 2007 10:06:29 PM)
yea i'll bet it would help the group here even had a group for kids
sanany (Dec 20, 2007 10:06:32 PM)
yellig
sanany (Dec 20, 2007 10:06:42 PM)
but i never told Ana
momma (Dec 20, 2007 10:06:47 PM)
yea
sanany (Dec 20, 2007 10:06:55 PM)
it was hard but i wanted to be positive
sanany (Dec 20, 2007 10:07:12 PM)
wow
sanany (Dec 20, 2007 10:07:18 PM)
really for children
momma (Dec 20, 2007 10:07:23 PM)
yea positive is good but i guess we all have bad days
sanany (Dec 20, 2007 10:07:24 PM)
I think Eric would like that
sanany (Dec 20, 2007 10:07:35 PM)
yeah
sanany (Dec 20, 2007 10:07:47 PM)
To see other boy like him
momma (Dec 20, 2007 10:07:54 PM)
they had music and art theraphy
sanany (Dec 20, 2007 10:07:59 PM)
I sure thats why he always says Alien
sanany (Dec 20, 2007 10:08:07 PM)
he must feel arienated
sanany (Dec 20, 2007 10:08:15 PM)
from other children
momma (Dec 20, 2007 10:08:16 PM)
once thier 5 or 6 thay can go to camp
sanany (Dec 20, 2007 10:08:33 PM)
yeah i heard about the camp
sanany (Dec 20, 2007 10:08:39 PM)
its really nice
sanany (Dec 20, 2007 10:08:54 PM)
but not long enough right
momma (Dec 20, 2007 10:09:00 PM)
my son went like 6 time s or so
momma (Dec 20, 2007 10:09:42 PM)
it was long enough 6 days
sanany (Dec 20, 2007 10:09:45 PM)
wow and it must be the highlite of the summer
sanany (Dec 20, 2007 10:09:55 PM)
oh ok
sanany (Dec 20, 2007 10:10:02 PM)
thats not bad
sanany (Dec 20, 2007 10:10:07 PM)
is it sleep over?
momma (Dec 20, 2007 10:10:17 PM)
yea
sanany (Dec 20, 2007 10:10:21 PM)
oh wow
sanany (Dec 20, 2007 10:10:25 PM)
parent too?
momma (Dec 20, 2007 10:10:29 PM)
no
sanany (Dec 20, 2007 10:10:33 PM)
oh
momma (Dec 20, 2007 10:10:39 PM)
the have a lot of helpers
momma (Dec 20, 2007 10:10:59 PM)
they have a doc here and nurses at all times
sanany (Dec 20, 2007 10:11:10 PM)
wow that must be some project
momma (Dec 20, 2007 10:11:21 PM)
yea im sure it is
sanany (Dec 20, 2007 10:11:25 PM)
amasing that they do that for the childen
momma (Dec 20, 2007 10:11:35 PM)
yea
sanany (Dec 20, 2007 10:11:35 PM)
iT A BLESSING
momma (Dec 20, 2007 10:11:46 PM)
yea
sanany (Dec 20, 2007 10:12:08 PM)
Eric is having some diffiulty with stairs
momma (Dec 20, 2007 10:12:15 PM)
is he
sanany (Dec 20, 2007 10:12:26 PM)
and we want to keep him on the bus with my daughter
sanany (Dec 20, 2007 10:12:43 PM)
but it doesnt look good
sanany (Dec 20, 2007 10:13:06 PM)
they called the other day and said they think he need specail transportation
momma (Dec 20, 2007 10:13:09 PM)
yea it hard i remember when my son could no longer ride the bus with his sister
momma (Dec 20, 2007 10:13:22 PM)
he wasnt happy
sanany (Dec 20, 2007 10:13:32 PM)
yeah i dont know how he will take it
momma (Dec 20, 2007 10:13:52 PM)
mabey you can some how make it fun?
sanany (Dec 20, 2007 10:14:06 PM)
yeah a super hero bus
sanany (Dec 20, 2007 10:14:14 PM)
he loves power rangers
sanany (Dec 20, 2007 10:14:17 PM)
and superman
sanany (Dec 20, 2007 10:14:35 PM)
He was in a nother school before
sanany (Dec 20, 2007 10:14:46 PM)
for mental ill children
momma (Dec 20, 2007 10:14:48 PM)
tell him that only special kids can ride his bus
sanany (Dec 20, 2007 10:14:50 PM)
and he hated it
sanany (Dec 20, 2007 10:15:01 PM)
thats good too
momma (Dec 20, 2007 10:15:21 PM)
how old is his sister
sanany (Dec 20, 2007 10:15:24 PM)
but this school is an elementry school with all kinds of kids
sanany (Dec 20, 2007 10:15:34 PM)
he doesnt have a sister
sanany (Dec 20, 2007 10:15:38 PM)
is my daughte
sanany (Dec 20, 2007 10:15:46 PM)
I am Anas sister
momma (Dec 20, 2007 10:15:46 PM)
yea my son went to regular school
sanany (Dec 20, 2007 10:16:08 PM)
oh yeah
sanany (Dec 20, 2007 10:16:18 PM)
Eric loves this school
sanany (Dec 20, 2007 10:16:31 PM)
so a change right know scares us
momma (Dec 20, 2007 10:16:43 PM)
eric sister is how old?
sanany (Dec 20, 2007 10:16:44 PM)
we dont want him to start not liking this scool
sanany (Dec 20, 2007 10:17:01 PM)
Erics Cousin is goign to be 6 in Jan
momma (Dec 20, 2007 10:17:08 PM)
my son went to school to be social
sanany (Dec 20, 2007 10:17:26 PM)
yeah he loves other kids
sanany (Dec 20, 2007 10:17:38 PM)
so is ther eany place for him to be social now
momma (Dec 20, 2007 10:17:50 PM)
i had thought about home school but he would of missed interaction with peers
sanany (Dec 20, 2007 10:17:52 PM)
or does he have friends that viste
sanany (Dec 20, 2007 10:18:17 PM)
yeah it good for children to have a connection with other there age
momma (Dec 20, 2007 10:18:21 PM)
well they dont come as much as they use too
sanany (Dec 20, 2007 10:18:53 PM)
is that hard on him
momma (Dec 20, 2007 10:19:13 PM)
but kents at that age where his peers are in college or have girlfriends
sanany (Dec 20, 2007 10:19:39 PM)
yeah it hard when they move on
sanany (Dec 20, 2007 10:19:45 PM)
and he cant
momma (Dec 20, 2007 10:19:49 PM)
he doesnt complain much but im sure it bothers him
sanany (Dec 20, 2007 10:20:01 PM)
how is his mental state
momma (Dec 20, 2007 10:20:09 PM)
good
sanany (Dec 20, 2007 10:20:14 PM)
Eric is a bit delaid
sanany (Dec 20, 2007 10:20:23 PM)
is alot of areas
sanany (Dec 20, 2007 10:20:29 PM)
mostly speach
momma (Dec 20, 2007 10:20:31 PM)
he has a slight learning disablity
sanany (Dec 20, 2007 10:20:40 PM)
yeah Eric too
sanany (Dec 20, 2007 10:20:49 PM)
he says the funniest thing
sanany (Dec 20, 2007 10:20:55 PM)
it cute
momma (Dec 20, 2007 10:21:06 PM)
but i always said he was much smarter than they gave hime credit for
sanany (Dec 20, 2007 10:21:06 PM)
everyone gets tickled by him
momma (Dec 20, 2007 10:21:16 PM)
thats cool
sanany (Dec 20, 2007 10:21:23 PM)
yeah Eric too he comeout wit hte most intelegent things
sanany (Dec 20, 2007 10:22:02 PM)
she says stuff like
sanany (Dec 20, 2007 10:22:25 PM)
i a bit thurty mom
sanany (Dec 20, 2007 10:22:43 PM)
it was just so clear and proper
sanany (Dec 20, 2007 10:22:51 PM)
we were laughing our butt off
momma (Dec 20, 2007 10:22:58 PM)
yea
sanany (Dec 20, 2007 10:23:15 PM)
there mind work diffrent to i guess
twinglema (Dec 20, 2007 10:23:29 PM)
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momma (Dec 20, 2007 10:23:29 PM)
yea
sanany (Dec 20, 2007 10:23:34 PM)
is he talented in art or anythign like that
twinglema (Dec 20, 2007 10:23:36 PM)
hi there
momma (Dec 20, 2007 10:23:39 PM)
hello twingle
sanany (Dec 20, 2007 10:23:43 PM)
hi
momma (Dec 20, 2007 10:23:53 PM)
not much going on
sanany (Dec 20, 2007 10:24:18 PM)
cause i know that the boys develp in other areas more at times
sanany (Dec 20, 2007 10:24:31 PM)
like art or music
momma (Dec 20, 2007 10:24:31 PM)
how was your christmas program?
twinglema (Dec 20, 2007 10:24:48 PM)
tonight was cookie exchange-i feel fat!
sanany (Dec 20, 2007 10:24:55 PM)
lol
twinglema (Dec 20, 2007 10:25:05 PM)
just looking at em puts em on my hips
momma (Dec 20, 2007 10:25:06 PM)
but were they good
momma (Dec 20, 2007 10:25:12 PM)
lo
twinglema (Dec 20, 2007 10:25:13 PM)
oh, yes
momma (Dec 20, 2007 10:25:14 PM)
lol
sanany (Dec 20, 2007 10:25:46 PM)
ok guy I am goign to finish folding cloth it was nice talkin to you momma
sanany (Dec 20, 2007 10:25:55 PM)
thanks for sharing with me
momma (Dec 20, 2007 10:26:01 PM)
ok have a goodnight
momma (Dec 20, 2007 10:26:05 PM)
np
momma (Dec 20, 2007 10:26:10 PM)
anytime
sanany (Dec 20, 2007 10:26:14 PM)
I am sure you will se more of me soon i am goign to creT MY OWN ACCOUNT
momma (Dec 20, 2007 10:26:24 PM)
ok
sanany (Dec 20, 2007 10:26:25 PM)
Bye
momma (Dec 20, 2007 10:26:28 PM)
bye
sanany (Dec 20, 2007 10:26:33 PM)
And God bless you all
twinglema (Dec 20, 2007 10:26:37 PM)
u 2
sanany (Dec 20, 2007 10:26:37 PM)
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momma (Dec 20, 2007 10:26:56 PM)
my hubbie baked cookies again
twinglema (Dec 20, 2007 10:27:01 PM)
hows she doing
momma (Dec 20, 2007 10:27:22 PM)
ana?
twinglema (Dec 20, 2007 10:27:26 PM)
yes
twinglema (Dec 20, 2007 10:27:35 PM)
what kind did he make
sanany (Dec 20, 2007 10:27:36 PM)
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twinglema (Dec 20, 2007 10:27:39 PM)
wb
sanany (Dec 20, 2007 10:27:46 PM)
hi im back this is ana now
momma (Dec 20, 2007 10:27:49 PM)
sugar
twinglema (Dec 20, 2007 10:27:53 PM)
im confused
twinglema (Dec 20, 2007 10:27:57 PM)
yummo
momma (Dec 20, 2007 10:28:03 PM)
her sister was here
twinglema (Dec 20, 2007 10:28:13 PM)
oh, i see how did that go???
momma (Dec 20, 2007 10:28:49 PM)
sounds like she gonna try to help and understand ? right ana
sanany (Dec 20, 2007 10:28:57 PM)
i was making a milkshake and she took over the laptop
sanany (Dec 20, 2007 10:29:08 PM)
yes finally
momma (Dec 20, 2007 10:29:11 PM)
brb
sanany (Dec 20, 2007 10:29:25 PM)
k sweety
twinglema (Dec 20, 2007 10:29:26 PM)
good to hear
twinglema (Dec 20, 2007 10:29:40 PM)
hope this is the start of understanding
twinglema (Dec 20, 2007 10:30:04 PM)
found out today hubys mom may have alzheimers
sanany (Dec 20, 2007 10:30:07 PM)
yea i think its sinking in now
twinglema (Dec 20, 2007 10:30:16 PM)
that is really good news ana
sanany (Dec 20, 2007 10:30:56 PM)
wow im sorry to hear that
twinglema (Dec 20, 2007 10:31:03 PM)
me too
sanany (Dec 20, 2007 10:31:08 PM)
thats a tough illness to deal with
sanany (Dec 20, 2007 10:31:53 PM)
i use to work with alzheimers patients,its sad
twinglema (Dec 20, 2007 10:32:10 PM)
me too we have noticed problems for awhile
sanany (Dec 20, 2007 10:32:43 PM)
only 3 of us tonight?
twinglema (Dec 20, 2007 10:33:16 PM)
looks like it prob xmas rush i can only stay a few hubby is gonna check email
sanany (Dec 20, 2007 10:33:44 PM)
ok well you have a good night
twinglema (Dec 20, 2007 10:33:50 PM)
wanted to pop in and tell everyone merry christmas
sanany (Dec 20, 2007 10:34:29 PM)
mary christmas to you too sweety
sanany (Dec 20, 2007 10:34:52 PM)
i hope we all have a good one this year
twinglema (Dec 20, 2007 10:35:02 PM)
merry christmas to you to momma-whereever you are-give kent a hug a nd kiss for me even if he dont want one :o)
twinglema (Dec 20, 2007 10:35:18 PM)
ty ana have a good christmas and enjoy your boy
sanany (Dec 20, 2007 10:35:37 PM)
i always do and you enjoy your family as well
twinglema (Dec 20, 2007 10:35:45 PM)
merry christmas to all and to all a good nite!
sanany (Dec 20, 2007 10:35:49 PM)
lol
momma (Dec 20, 2007 10:43:19 PM)
ok twingle
momma (Dec 20, 2007 10:43:38 PM)
trying to get him in bed
momma (Dec 20, 2007 10:44:59 PM)
he needed to go to the library first so it takes about 1 hr to get him to bed lol
sanany (Dec 20, 2007 10:45:12 PM)
HEY
momma (Dec 20, 2007 10:45:24 PM)
hhey what?
momma (Dec 20, 2007 10:45:30 PM)
hey*
sanany (Dec 20, 2007 10:45:44 PM)
LOL I WAS AWAY FOR A WHILE
momma (Dec 20, 2007 10:46:13 PM)
well im gonna go ttyl ok happy holidays
sanany (Dec 20, 2007 10:46:37 PM)
you too momma sweet dreams
sanany (Dec 20, 2007 10:47:06 PM)
hugs and kisses all
momma (Dec 20, 2007 10:47:29 PM)
same to ya byes
momma (Dec 20, 2007 10:47:32 PM)
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sanany (Dec 20, 2007 10:49:21 PM)
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twinglema (Dec 20, 2007 10:54:39 PM)
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