DMD Parent Chat

twinglema (Dec 18, 2007 9:12:51 PM)
(This user has entered DMD Parent Chat)

twinglema (Dec 18, 2007 9:13:20 PM)
merry christmas eve eve eve eve eve eve

momma (Dec 18, 2007 9:13:44 PM)
hello twingle same to ya lol

twinglema (Dec 18, 2007 9:13:59 PM)
how are you tonight?

momma (Dec 18, 2007 9:14:07 PM)
good how about you

twinglema (Dec 18, 2007 9:14:16 PM)
good

momma (Dec 18, 2007 9:14:29 PM)
got lots of snow here

twinglema (Dec 18, 2007 9:14:34 PM)
found out von maur is opening thursday

momma (Dec 18, 2007 9:14:52 PM)
oh yea

twinglema (Dec 18, 2007 9:14:54 PM)
us too, the old stuff hasn't melted and we keep getting more

twinglema (Dec 18, 2007 9:15:14 PM)
seems too soon but we have to move on

momma (Dec 18, 2007 9:15:52 PM)
yea i'd bee a little hesitant to go in store yet

twinglema (Dec 18, 2007 9:16:12 PM)
been quiet tonight here?

momma (Dec 18, 2007 9:16:19 PM)
yea

twinglema (Dec 18, 2007 9:16:22 PM)
i was remebering last time i was in there

twinglema (Dec 18, 2007 9:16:31 PM)
employees say they want to go back

twinglema (Dec 18, 2007 9:16:49 PM)
ive been to the mall a couple of times and left flowers once

twinglema (Dec 18, 2007 9:17:00 PM)
its surreal

momma (Dec 18, 2007 9:17:11 PM)
yea i guess it will part of getting over mabey not forgetting but move on?

twinglema (Dec 18, 2007 9:19:29 PM)
i think so

twinglema (Dec 18, 2007 9:19:54 PM)
we are expecting more snow sat so looks like white christmas

momma (Dec 18, 2007 9:19:55 PM)
are you ready for christmas?

twinglema (Dec 18, 2007 9:19:59 PM)
yes

twinglema (Dec 18, 2007 9:20:07 PM)
i did last things today

momma (Dec 18, 2007 9:20:18 PM)
sounds like rain for us :(

twinglema (Dec 18, 2007 9:20:24 PM)
shopped for mom in law for my kids and got stuff for class xmas party

momma (Dec 18, 2007 9:20:26 PM)
hope there wrong

twinglema (Dec 18, 2007 9:20:30 PM)
me too

twinglema (Dec 18, 2007 9:20:43 PM)
its white xmas not wet xmas!

twinglema (Dec 18, 2007 9:20:59 PM)
you been alone all night?

momma (Dec 18, 2007 9:21:06 PM)
i just finished on sat i got my parents and mother in law a digital picture frames

momma (Dec 18, 2007 9:21:13 PM)
yep

twinglema (Dec 18, 2007 9:21:14 PM)
oh cool

momma (Dec 18, 2007 9:21:59 PM)
thier both hard to buy for so i got createtive

twinglema (Dec 18, 2007 9:22:21 PM)
dad in law is worse for us

momma (Dec 18, 2007 9:22:42 PM)
now just gotta take the picture

twinglema (Dec 18, 2007 9:23:21 PM)
i guess they hold alot of pics

momma (Dec 18, 2007 9:24:15 PM)
well the one i got is a cheaper version you just put a 4x6 picture in it and record a message

twinglema (Dec 18, 2007 9:24:24 PM)
oh i see

twinglema (Dec 18, 2007 9:24:28 PM)
that will be cute

momma (Dec 18, 2007 9:24:37 PM)
yea i hope so

twinglema (Dec 18, 2007 9:24:55 PM)
take a pic of the dogs and put that dog barking jingle bells song on it!

momma (Dec 18, 2007 9:25:16 PM)
thier ya go lol

twinglema (Dec 18, 2007 9:26:35 PM)
waht is kent getting?

momma (Dec 18, 2007 9:26:42 PM)
ps3

twinglema (Dec 18, 2007 9:26:55 PM)
oo la la

momma (Dec 18, 2007 9:27:12 PM)
thats all hes talked about i couldnt not get it i guess im a softy

twinglema (Dec 18, 2007 9:27:37 PM)
as they get older they get less cuz what they want costs more

momma (Dec 18, 2007 9:27:45 PM)
more than i usaully spend but oh well he's worth it

twinglema (Dec 18, 2007 9:27:52 PM)
how true

twinglema (Dec 18, 2007 9:29:03 PM)
if my boys dont stop arguing they aren't going to get anything!

momma (Dec 18, 2007 9:29:21 PM)
lump of coal! lol

momma (Dec 18, 2007 9:29:37 PM)
or raindeer poop

twinglema (Dec 18, 2007 9:29:53 PM)
convinced daughter that is what shes getting cuz she touched my xmas shopping list!

twinglema (Dec 18, 2007 9:29:59 PM)
ewww

twinglema (Dec 18, 2007 9:30:15 PM)
kids school program was tonight

momma (Dec 18, 2007 9:30:55 PM)
we have plastic deer that raisens come out the back

twinglema (Dec 18, 2007 9:31:08 PM)
yucko

momma (Dec 18, 2007 9:34:34 PM)
kents got dr appt tommrow our family doc leaving the county for awhile and she just wanted to see him before she leaves she delivered him she mat leave for good sometime soon:(

momma (Dec 18, 2007 9:34:46 PM)
might *

twinglema (Dec 18, 2007 9:34:58 PM)
that is nice she wants to see him

momma (Dec 18, 2007 9:35:10 PM)
yes she is awesome

momma (Dec 18, 2007 9:35:20 PM)
she would do anything to help kent

twinglema (Dec 18, 2007 9:35:26 PM)
she has been seeing him for long time

twinglema (Dec 18, 2007 9:35:44 PM)
our pediatrician cryed when she found out about luke

twinglema (Dec 18, 2007 9:35:54 PM)
i'll hate leaving her

sanany (Dec 18, 2007 9:36:08 PM)
(This user has entered DMD Parent Chat)

momma (Dec 18, 2007 9:36:23 PM)
she began seeing us when i was 6-7 monthes pregnant

sanany (Dec 18, 2007 9:36:37 PM)
hello

momma (Dec 18, 2007 9:36:44 PM)
our other doc retired

momma (Dec 18, 2007 9:36:49 PM)
hi sanany

twinglema (Dec 18, 2007 9:36:54 PM)
hi ana (is that right?)

sanany (Dec 18, 2007 9:37:00 PM)
yes hi

momma (Dec 18, 2007 9:37:08 PM)
no anna not here yet

sanany (Dec 18, 2007 9:37:09 PM)
how are you doing?

twinglema (Dec 18, 2007 9:37:14 PM)
memory not so hot

twinglema (Dec 18, 2007 9:37:16 PM)
good

momma (Dec 18, 2007 9:37:16 PM)
doing good here

sanany (Dec 18, 2007 9:37:19 PM)
my name is ana also

momma (Dec 18, 2007 9:37:25 PM)
oh ok

momma (Dec 18, 2007 9:37:27 PM)
lol

momma (Dec 18, 2007 9:37:29 PM)
sorry

twinglema (Dec 18, 2007 9:37:31 PM)
we just got home little bit ago from kids christmas program

sanany (Dec 18, 2007 9:37:33 PM)
thats ok

sanany (Dec 18, 2007 9:37:45 PM)
thats nice

momma (Dec 18, 2007 9:37:48 PM)
how did the program go ?

momma (Dec 18, 2007 9:37:59 PM)
were you kids the angles

twinglema (Dec 18, 2007 9:38:07 PM)
they did good job-even on the "baby" song they did not like

twinglema (Dec 18, 2007 9:38:29 PM)
it was kinda childish for 6th and 5th

momma (Dec 18, 2007 9:38:32 PM)
thats good

momma (Dec 18, 2007 9:38:44 PM)
no that they did good

twinglema (Dec 18, 2007 9:38:50 PM)
ha ha-nowhere near angels! lol

twinglema (Dec 18, 2007 9:39:14 PM)
how are you ana

sanany (Dec 18, 2007 9:39:28 PM)
im very stressed out

twinglema (Dec 18, 2007 9:39:34 PM)
family?

sanany (Dec 18, 2007 9:39:40 PM)
yes

twinglema (Dec 18, 2007 9:39:44 PM)
sorry

momma (Dec 18, 2007 9:39:45 PM)
so to hear

twinglema (Dec 18, 2007 9:39:50 PM)
did talking to them help?

sanany (Dec 18, 2007 9:40:03 PM)
thats ok i have to learn to live with it

sanany (Dec 18, 2007 9:40:08 PM)
a little

twinglema (Dec 18, 2007 9:40:16 PM)
did you orger the ppmd dvd?

twinglema (Dec 18, 2007 9:40:20 PM)
order

momma (Dec 18, 2007 9:40:24 PM)
tell them to come here we will have a chat with them wink wink:)

sanany (Dec 18, 2007 9:40:30 PM)
no i need the number again

twinglema (Dec 18, 2007 9:40:34 PM)
yes! good idea

twinglema (Dec 18, 2007 9:41:04 PM)
brb i will get it

sanany (Dec 18, 2007 9:41:05 PM)
i told them to come and chat but they dont have time for that i guess

momma (Dec 18, 2007 9:41:08 PM)
of course i have family that dont have a clue about things

twinglema (Dec 18, 2007 9:41:25 PM)
1-513-424-0696

momma (Dec 18, 2007 9:41:49 PM)
whats the video?

sanany (Dec 18, 2007 9:42:06 PM)
my sister got mad at me thew other day because i was having an axiety atack and she told me that mabee god is teaching me a lesson

twinglema (Dec 18, 2007 9:42:12 PM)
giving a face to duchenne muscular dystrophy

momma (Dec 18, 2007 9:42:21 PM)
i have family that would like to learn all they can

twinglema (Dec 18, 2007 9:42:42 PM)
it is good dvd and comes witha stretches for dmd boys dvd and is free

momma (Dec 18, 2007 9:42:51 PM)
cool

sanany (Dec 18, 2007 9:43:03 PM)
wow thats nice ill call them

twinglema (Dec 18, 2007 9:43:14 PM)
they also have an awsomebook for school

twinglema (Dec 18, 2007 9:43:45 PM)
its called education matters and it has seperate sections for parents, teachers and pe teachers

twinglema (Dec 18, 2007 9:44:00 PM)
i got 2-one for me and one for the school

twinglema (Dec 18, 2007 9:44:20 PM)
i believe it was free too

momma (Dec 18, 2007 9:44:27 PM)
have you talked to a dr about your anxiety ana

momma (Dec 18, 2007 9:44:45 PM)
i have had issues with that in the past

sanany (Dec 18, 2007 9:44:52 PM)
yes i have back in new york he gave me welbutrin

sanany (Dec 18, 2007 9:45:01 PM)
and seraquil

momma (Dec 18, 2007 9:45:02 PM)
did it help?

twinglema (Dec 18, 2007 9:45:04 PM)
i had anxiety attacks w/ my depression-my happy pill has done wonders

twinglema (Dec 18, 2007 9:45:15 PM)
i take celexa

sanany (Dec 18, 2007 9:45:33 PM)
yes it helpd but i have to get insurance here then go see a doctor

momma (Dec 18, 2007 9:45:34 PM)
i tried some meds but didnt help much

momma (Dec 18, 2007 9:45:40 PM)
prozac

sanany (Dec 18, 2007 9:45:58 PM)
my mom use to take prozac,she dident like it

momma (Dec 18, 2007 9:46:14 PM)
i didnt think it helped me

twinglema (Dec 18, 2007 9:46:17 PM)
call old dr and he may give you script for meantime if yopu need it

momma (Dec 18, 2007 9:46:24 PM)
yeah

sanany (Dec 18, 2007 9:46:24 PM)
i suffer from severe depression and anxiety

momma (Dec 18, 2007 9:46:41 PM)
at one point i wouldnt even drive

twinglema (Dec 18, 2007 9:46:53 PM)
and tell your sister God does not punish people through their kids

sanany (Dec 18, 2007 9:46:58 PM)
i cant drive now from my bad panic attacks

twinglema (Dec 18, 2007 9:47:05 PM)
sorry to hear

momma (Dec 18, 2007 9:47:06 PM)
but i have worked though it

twinglema (Dec 18, 2007 9:47:16 PM)
me too-pills, couseling etc

sanany (Dec 18, 2007 9:47:22 PM)
i know she is just ignorant and heartless sometimes

twinglema (Dec 18, 2007 9:47:24 PM)
*counseling

sanany (Dec 18, 2007 9:47:35 PM)
she gets mad and says the most hurtfull things

momma (Dec 18, 2007 9:47:45 PM)
i decided i was going to conqer my fears i did counciling too

twinglema (Dec 18, 2007 9:47:50 PM)
and you live in same house w/ her right?

sanany (Dec 18, 2007 9:47:59 PM)
yes i do

twinglema (Dec 18, 2007 9:48:21 PM)
maybe soon you will be able to move out

momma (Dec 18, 2007 9:48:27 PM)
how does she treat your kids if she thats mean to you ?

sanany (Dec 18, 2007 9:49:12 PM)
well shes ok ,but she has her own issues

momma (Dec 18, 2007 9:49:22 PM)
oh

sanany (Dec 18, 2007 9:49:22 PM)
with her daughter

sanany (Dec 18, 2007 9:49:30 PM)
she had add

twinglema (Dec 18, 2007 9:49:35 PM)
had?

momma (Dec 18, 2007 9:49:38 PM)
oh

sanany (Dec 18, 2007 9:49:39 PM)
has

twinglema (Dec 18, 2007 9:49:44 PM)
k

sanany (Dec 18, 2007 9:49:46 PM)
lol

sanany (Dec 18, 2007 9:51:02 PM)
i feel so alone sometimes

twinglema (Dec 18, 2007 9:51:11 PM)
well guys hate to poop out so early but i am exhausted and hubbys gonna do shower etc etc

twinglema (Dec 18, 2007 9:51:17 PM)
you are not alone ana

momma (Dec 18, 2007 9:51:18 PM)
ok

sanany (Dec 18, 2007 9:51:19 PM)
ok goodnight

sanany (Dec 18, 2007 9:51:32 PM)
i know im not

momma (Dec 18, 2007 9:51:55 PM)
is thier a church or someplace you can find someone to talk to

momma (Dec 18, 2007 9:52:27 PM)
and of course we'er here to help any way we can

twinglema (Dec 18, 2007 9:52:36 PM)
did you get my email address ana?

sanany (Dec 18, 2007 9:52:36 PM)
yes i go to a chuech

twinglema (Dec 18, 2007 9:52:46 PM)
yep we are

sanany (Dec 18, 2007 9:52:47 PM)
yes i did thank you

twinglema (Dec 18, 2007 9:52:52 PM)
no prob

sanany (Dec 18, 2007 9:53:08 PM)
church

momma (Dec 18, 2007 9:53:09 PM)
does the preacher do any counciling?

momma (Dec 18, 2007 9:53:26 PM)
i know ours does

sanany (Dec 18, 2007 9:53:33 PM)
im not sure

sanany (Dec 18, 2007 9:53:38 PM)
ill have to ask

twinglema (Dec 18, 2007 9:53:44 PM)
take care and havbe marry christmas if i dont see you before

momma (Dec 18, 2007 9:53:45 PM)
good idea

momma (Dec 18, 2007 9:53:59 PM)
see ya you too twingle

sanany (Dec 18, 2007 9:54:03 PM)
you too marry christmas

twinglema (Dec 18, 2007 9:54:08 PM)
night ty

twinglema (Dec 18, 2007 9:54:11 PM)
(This user has left DigiChat)

momma (Dec 18, 2007 9:54:41 PM)
what state are you in again

sanany (Dec 18, 2007 9:54:49 PM)
houston tx

momma (Dec 18, 2007 9:55:11 PM)
mabey some through mda clinic could help ya find help ?

momma (Dec 18, 2007 9:55:20 PM)
i'm ohio

sanany (Dec 18, 2007 9:55:33 PM)
i know im waiting

momma (Dec 18, 2007 9:55:56 PM)
for mda clinic?

sanany (Dec 18, 2007 9:55:56 PM)
i need to get registerd still

sanany (Dec 18, 2007 9:56:01 PM)
yes

momma (Dec 18, 2007 9:56:06 PM)
oh i see

sanany (Dec 18, 2007 9:56:57 PM)
im sorry if i dont remember,but how old is your son?

momma (Dec 18, 2007 9:57:12 PM)
np he's 21

sanany (Dec 18, 2007 9:57:26 PM)
how is he

momma (Dec 18, 2007 9:57:45 PM)
he's doing quit well right now

sanany (Dec 18, 2007 9:58:11 PM)
how old was he when he stoped walking?

momma (Dec 18, 2007 9:58:31 PM)
he was 8ish

sanany (Dec 18, 2007 9:59:12 PM)
does it bother you when i ask questions?

momma (Dec 18, 2007 9:59:20 PM)
no way ask away

momma (Dec 18, 2007 9:59:28 PM)
that what were here for

sanany (Dec 18, 2007 9:59:33 PM)
what about his breathing?

momma (Dec 18, 2007 9:59:46 PM)
he use help 24/7

momma (Dec 18, 2007 10:00:16 PM)
he uses a bipap at night and a nonivasive vent during the day

sanany (Dec 18, 2007 10:00:26 PM)
when did he start having breathing problems

momma (Dec 18, 2007 10:00:59 PM)
they wanted to trach him bu8t i fought for him and he uses this vent very sucessfully

sanany (Dec 18, 2007 10:01:37 PM)
so traches are not good

momma (Dec 18, 2007 10:01:37 PM)
he 17 when he started useing bipap at night

momma (Dec 18, 2007 10:02:08 PM)
well if all else fails then trach has to be

sanany (Dec 18, 2007 10:02:58 PM)
how do you cope ?

momma (Dec 18, 2007 10:03:08 PM)
day to day

sanany (Dec 18, 2007 10:03:16 PM)
sometimes i feel like i cANT make it

momma (Dec 18, 2007 10:03:17 PM)
dont look to far ahead

sanany (Dec 18, 2007 10:03:29 PM)
i try not to

momma (Dec 18, 2007 10:03:35 PM)
it is overwhelming but hang in thier

sanany (Dec 18, 2007 10:03:39 PM)
i just want to get prepared

momma (Dec 18, 2007 10:03:54 PM)
yea nothing wrong with that but...

momma (Dec 18, 2007 10:04:39 PM)
dont get so caught up in the furture you dont forgett to live for today

sanany (Dec 18, 2007 10:04:58 PM)
i know,i tell myself that every morning

momma (Dec 18, 2007 10:05:36 PM)
do things now you may not be able to do

sanany (Dec 18, 2007 10:05:37 PM)
i get alo\\\

sanany (Dec 18, 2007 10:05:40 PM)
sorry

sanany (Dec 18, 2007 10:06:11 PM)
i do ,i actually do alot more now

sanany (Dec 18, 2007 10:06:50 PM)
in a way it has made me stronger,i guess i just need some meds for my anxiet

momma (Dec 18, 2007 10:06:59 PM)
yes

sanany (Dec 18, 2007 10:07:10 PM)
then ill feel more relaxd

momma (Dec 18, 2007 10:07:23 PM)
it is hard but ya gotta do it for you and your son:)

momma (Dec 18, 2007 10:08:30 PM)
have you ever been hypnotised i also have relaxation cd helps

sanany (Dec 18, 2007 10:08:51 PM)
really,i thaught of that did you do that

momma (Dec 18, 2007 10:08:58 PM)
but it sounds like yu need counciling

sanany (Dec 18, 2007 10:09:07 PM)
yes i do

momma (Dec 18, 2007 10:10:03 PM)
i do a lot of praying

momma (Dec 18, 2007 10:10:21 PM)
i need all the help i can get :) sometimes

sanany (Dec 18, 2007 10:10:31 PM)
i prey all the time,it does help

momma (Dec 18, 2007 10:10:46 PM)
is thier any way you can get away from your sister

sanany (Dec 18, 2007 10:11:03 PM)
i wish i could

momma (Dec 18, 2007 10:11:11 PM)
it sounds like she may be a big cause of stress

momma (Dec 18, 2007 10:11:19 PM)
that you dont need

sanany (Dec 18, 2007 10:11:21 PM)
she is

momma (Dec 18, 2007 10:11:46 PM)
are you able to work?

sanany (Dec 18, 2007 10:12:14 PM)
it will be a while before we live seperatly ,she has no income right now and i need to help her get on her feet

sanany (Dec 18, 2007 10:12:43 PM)
once she gets a job we have to live seperatlly

momma (Dec 18, 2007 10:12:53 PM)
well someone needs to have a talk with her

sanany (Dec 18, 2007 10:13:06 PM)
she does not listen to anyone

sanany (Dec 18, 2007 10:13:14 PM)
she is stubbern

sanany (Dec 18, 2007 10:13:34 PM)
i told her she needed to get on some meds

sanany (Dec 18, 2007 10:13:52 PM)
my whole family is crazy

momma (Dec 18, 2007 10:13:55 PM)
tell her to shape up or ship out make her realize your trying to help her and she bringing you down

momma (Dec 18, 2007 10:13:58 PM)
oh

sanany (Dec 18, 2007 10:14:09 PM)
lol

sanany (Dec 18, 2007 10:14:56 PM)
thank you so much for chatting with me ,but i have to put eric to bed

sanany (Dec 18, 2007 10:15:07 PM)
he got up

momma (Dec 18, 2007 10:15:07 PM)
ok hang in thier

sanany (Dec 18, 2007 10:15:12 PM)
thanks sweety

momma (Dec 18, 2007 10:15:19 PM)
kepp praying :)

momma (Dec 18, 2007 10:15:23 PM)
keep

sanany (Dec 18, 2007 10:15:28 PM)
i will

momma (Dec 18, 2007 10:15:32 PM)
night

sanany (Dec 18, 2007 10:15:34 PM)
good night

momma (Dec 18, 2007 10:15:38 PM)
(This user has left DigiChat)

sanany (Dec 18, 2007 10:15:38 PM)
(This user has left DigiChat)