Living with ALS

Jim_VA (Dec 19, 2007 7:04:44 PM)
(This user has entered Living with ALS)

Jim_VA (Dec 19, 2007 7:05:01 PM)
hi Al

aeras (Dec 19, 2007 7:06:05 PM)
Hi jim

Jim_VA (Dec 19, 2007 7:06:25 PM)
how are you

aeras (Dec 19, 2007 7:06:43 PM)
Doing pretty good and you

Jim_VA (Dec 19, 2007 7:07:06 PM)
great ty

aeras (Dec 19, 2007 7:07:44 PM)
Is it cold up your way

Jim_VA (Dec 19, 2007 7:08:17 PM)
anything exciting going on

Jim_VA (Dec 19, 2007 7:08:24 PM)
41

Jim_VA (Dec 19, 2007 7:09:13 PM)
how about there

aeras (Dec 19, 2007 7:09:36 PM)
well my wife is out shopping with my daughter and my future son-in-law is here watching tv while I chat with you

aeras (Dec 19, 2007 7:09:54 PM)
about 40 right now

Jim_VA (Dec 19, 2007 7:09:59 PM)
nice

aeras (Dec 19, 2007 7:10:37 PM)
I had a session with my speech therapist

aeras (Dec 19, 2007 7:10:42 PM)
today

Jim_VA (Dec 19, 2007 7:11:09 PM)
I have my shopping done

aeras (Dec 19, 2007 7:11:11 PM)
got another tommorrow

Jim_VA (Dec 19, 2007 7:11:26 PM)
excellent

Jim_VA (Dec 19, 2007 7:13:03 PM)
Did the speech therapist help

aeras (Dec 19, 2007 7:13:21 PM)
well not with the speech

aeras (Dec 19, 2007 7:13:23 PM)
lol

Jim_VA (Dec 19, 2007 7:13:33 PM)
lol

aeras (Dec 19, 2007 7:13:47 PM)
but she helps with my swallowing

Jim_VA (Dec 19, 2007 7:14:12 PM)
yes

Jim_VA (Dec 19, 2007 7:14:50 PM)
I have talked to them

aeras (Dec 19, 2007 7:16:15 PM)
I find I can talk fairly well when I talk slowly

Jim_VA (Dec 19, 2007 7:16:35 PM)
how is the sigma group

aeras (Dec 19, 2007 7:16:49 PM)
my wife saya I sound like my old voice when I sing

Jim_VA (Dec 19, 2007 7:17:14 PM)
I can't talk at all

aeras (Dec 19, 2007 7:17:42 PM)
they are doing pretty good last I talked with them, haven't been there today

Jim_VA (Dec 19, 2007 7:17:53 PM)
never could sing

aeras (Dec 19, 2007 7:18:14 PM)
I was bass in the choir

aeras (Dec 19, 2007 7:18:35 PM)
can't keep up anymore

Jim_VA (Dec 19, 2007 7:19:17 PM)
ah I will try to go in there tomorrow

Jim_VA (Dec 19, 2007 7:19:48 PM)
my wife was a singer

aeras (Dec 19, 2007 7:20:12 PM)
I will try to talk with you in there

Jim_VA (Dec 19, 2007 7:20:22 PM)
ok

Jim_VA (Dec 19, 2007 7:21:33 PM)
she sang in nightclubs for 15 years

aeras (Dec 19, 2007 7:21:46 PM)
the trouble with this sight is, it doesn't allow for my english friends to join in here time wise

aeras (Dec 19, 2007 7:22:03 PM)
oh a pro

Jim_VA (Dec 19, 2007 7:22:42 PM)
I guess

Jim_VA (Dec 19, 2007 7:23:58 PM)
brb got to go br

aeras (Dec 19, 2007 7:24:13 PM)
iwas only ever an amature

Jim_VA (Dec 19, 2007 7:28:51 PM)
she did ok

Jim_VA (Dec 19, 2007 7:31:14 PM)
sung blues and ragtime mostly

Jim_VA (Dec 19, 2007 7:31:46 PM)
some country

aeras (Dec 19, 2007 7:31:46 PM)
how about now

Jim_VA (Dec 19, 2007 7:33:03 PM)
no she doesn't sing anymore

Jim_VA (Dec 19, 2007 7:33:51 PM)
she likes gospel now

aeras (Dec 19, 2007 7:34:33 PM)
good I'm sure your church like her intreir choir

aeras (Dec 19, 2007 7:35:02 PM)
in their

Jim_VA (Dec 19, 2007 7:35:53 PM)
yes but she stays here with me

aeras (Dec 19, 2007 7:36:30 PM)
oh you can't get out

Jim_VA (Dec 19, 2007 7:37:02 PM)
we get tapes from the church

aeras (Dec 19, 2007 7:37:17 PM)
that is good

Jim_VA (Dec 19, 2007 7:37:23 PM)
nor much

Jim_VA (Dec 19, 2007 7:37:39 PM)
not

aeras (Dec 19, 2007 7:37:41 PM)
i forget sometimes how lucky I am

Jim_VA (Dec 19, 2007 7:39:01 PM)
son is working on my wheelchair now

aeras (Dec 19, 2007 7:39:50 PM)
whats wrong with it

Jim_VA (Dec 19, 2007 7:40:36 PM)
we are modify it

aeras (Dec 19, 2007 7:41:27 PM)
souping up?

Jim_VA (Dec 19, 2007 7:42:03 PM)
lol

aeras (Dec 19, 2007 7:42:07 PM)
lol

Jim_VA (Dec 19, 2007 7:43:32 PM)
trying every fix it so I can drive it

aeras (Dec 19, 2007 7:43:54 PM)
cool

Jim_VA (Dec 19, 2007 7:44:30 PM)
yes that would be nice

aeras (Dec 19, 2007 7:45:03 PM)
I just bet, give a bit more freedom

Jim_VA (Dec 19, 2007 7:45:24 PM)
might make it to church

Jim_VA (Dec 19, 2007 7:46:28 PM)
shock everyone

aeras (Dec 19, 2007 7:48:38 PM)
that would be good, people need that time to congregate

Jim_VA (Dec 19, 2007 7:48:54 PM)
yes

aeras (Dec 19, 2007 7:49:44 PM)
I'm sure everyone in the church would love to see you

Jim_VA (Dec 19, 2007 7:50:23 PM)
yes

aeras (Dec 19, 2007 7:54:51 PM)
I missed the Cantatta this past Sunday, and my old boss from about 4 years ago was at it. Monday he came over to my house and yelled at me for not calling him to tell him I was sick.

aeras (Dec 19, 2007 7:56:33 PM)
now he wants to come over and visit from time to time and to take me to lunch once in a while

Jim_VA (Dec 19, 2007 7:56:42 PM)
sounds like a nice guy

aeras (Dec 19, 2007 7:56:59 PM)
real nice

Jim_VA (Dec 19, 2007 7:57:03 PM)
great

Jim_VA (Dec 19, 2007 7:57:59 PM)
I have a few visitors

aeras (Dec 19, 2007 7:58:42 PM)
visitors are nice, it breaks up the day

Jim_VA (Dec 19, 2007 8:00:20 PM)
yes but I am not much fun

Jim_VA (Dec 19, 2007 8:01:05 PM)
cannot talk

aeras (Dec 19, 2007 8:01:39 PM)
can't you get a synthesizer

Jim_VA (Dec 19, 2007 8:03:14 PM)
I am not interested in that

Jim_VA (Dec 19, 2007 8:03:53 PM)
rather be boring

aeras (Dec 19, 2007 8:04:34 PM)
well you still

aeras (Dec 19, 2007 8:04:52 PM)
can communicate by typing

Jim_VA (Dec 19, 2007 8:05:01 PM)
I type whenever somebody comes by

Jim_VA (Dec 19, 2007 8:06:01 PM)
and make the print large

Jim_VA (Dec 19, 2007 8:06:27 PM)
works well

Jim_VA (Dec 19, 2007 8:06:44 PM)
just slow

Jim_VA (Dec 19, 2007 8:07:59 PM)
I have a couple talking programs

aeras (Dec 19, 2007 8:08:38 PM)
that works

Jim_VA (Dec 19, 2007 8:08:46 PM)
but don't care for them

aeras (Dec 19, 2007 8:09:15 PM)
what do they do use the puters speakers

Jim_VA (Dec 19, 2007 8:09:31 PM)
yes

Jim_VA (Dec 19, 2007 8:09:57 PM)
not good

aeras (Dec 19, 2007 8:10:07 PM)
I see

aeras (Dec 19, 2007 8:11:44 PM)
how about extrnal speakers

Jim_VA (Dec 19, 2007 8:12:35 PM)
actually my typing program will talk also but I keep it turned off

Jim_VA (Dec 19, 2007 8:13:27 PM)
I have external speakers

Jim_VA (Dec 19, 2007 8:14:13 PM)
not expensive ones

MichaelJ (Dec 19, 2007 8:14:43 PM)
(This user has entered Living with ALS)

Jim_VA (Dec 19, 2007 8:15:39 PM)
that are made to travel

Jim_VA (Dec 19, 2007 8:15:57 PM)
hi Mike

MichaelJ (Dec 19, 2007 8:16:56 PM)
Hello Jim

aeras (Dec 19, 2007 8:17:00 PM)
Hi mike

Jim_VA (Dec 19, 2007 8:17:18 PM)
how are you

MichaelJ (Dec 19, 2007 8:18:13 PM)
Doing pretty good, how about yourself?

Jim_VA (Dec 19, 2007 8:18:38 PM)
great ty

Jim_VA (Dec 19, 2007 8:19:05 PM)
you remember Al?

MichaelJ (Dec 19, 2007 8:20:41 PM)
Aeras, what is yor name? I am still learning who is who.

MichaelJ (Dec 19, 2007 8:21:04 PM)
What is AI?

Jim_VA (Dec 19, 2007 8:21:28 PM)
areas

Jim_VA (Dec 19, 2007 8:21:46 PM)
= Al

MichaelJ (Dec 19, 2007 8:22:07 PM)
Hello Areas

aeras (Dec 19, 2007 8:23:04 PM)
Hello Mike

aeras (Dec 19, 2007 8:23:20 PM)
I am Al

aeras (Dec 19, 2007 8:23:46 PM)
My wife set up my account here

aeras (Dec 19, 2007 8:24:19 PM)
I would have put Al_NC

Jim_VA (Dec 19, 2007 8:24:45 PM)
you can change it

aeras (Dec 19, 2007 8:25:46 PM)
but then you might have figured I couldn't make up my mind between Alabama or North Carolina

aeras (Dec 19, 2007 8:26:13 PM)
lol

Jim_VA (Dec 19, 2007 8:26:41 PM)
you would have to send Penny a note

Jim_VA (Dec 19, 2007 8:27:18 PM)
lol AL_AL

aeras (Dec 19, 2007 8:27:35 PM)
lol

MichaelJ (Dec 19, 2007 8:28:28 PM)
dHow abput ALAL....Like STUDDER?

Jim_VA (Dec 19, 2007 8:29:00 PM)
lol

Jim_VA (Dec 19, 2007 8:30:00 PM)
did you have any questions Mike

MichaelJ (Dec 19, 2007 8:31:07 PM)
Any subject matter?

aeras (Dec 19, 2007 8:31:18 PM)
lol

Jim_VA (Dec 19, 2007 8:31:39 PM)
lol

aeras (Dec 19, 2007 8:31:48 PM)
within reason

Jim_VA (Dec 19, 2007 8:32:14 PM)
just ask

MichaelJ (Dec 19, 2007 8:33:00 PM)
I should have said Any subject matter regarding ALS?

MichaelJ (Dec 19, 2007 8:33:38 PM)
I need a good seat cushion

Jim_VA (Dec 19, 2007 8:33:43 PM)
anything

Jim_VA (Dec 19, 2007 8:34:39 PM)
what kind of chair

MichaelJ (Dec 19, 2007 8:36:38 PM)
I don't have my power chair yet, I am using a Roo cushion on an Invacare power chair

Jim_VA (Dec 19, 2007 8:37:56 PM)
I use a Roho quadair high profile

MichaelJ (Dec 19, 2007 8:39:41 PM)
Is that the one with the valve in front?

Jim_VA (Dec 19, 2007 8:40:14 PM)
I have several gel cushions also

Jim_VA (Dec 19, 2007 8:41:05 PM)
yes red and green

MichaelJ (Dec 19, 2007 8:42:11 PM)
How are the gel cushions?

Jim_VA (Dec 19, 2007 8:43:27 PM)
ok but I like the air better

Vikings70 (Dec 19, 2007 8:44:24 PM)
(This user has entered Living with ALS)

Vikings70 (Dec 19, 2007 8:44:29 PM)
(This user has entered Living with ALS)

Vikings70 (Dec 19, 2007 8:44:29 PM)
(This user has moved to Living with ALS)

Vikings70 (Dec 19, 2007 8:44:31 PM)
(This user has entered Living with ALS)

Vikings70 (Dec 19, 2007 8:44:31 PM)
(This user has moved to Living with ALS)

Vikings70 (Dec 19, 2007 8:44:55 PM)
(This user has entered Living with ALS)

Vikings70 (Dec 19, 2007 8:44:55 PM)
(This user has moved to Living with ALS)

Vikings70 (Dec 19, 2007 8:45:26 PM)
(This user has entered Living with ALS)

Vikings70 (Dec 19, 2007 8:45:26 PM)
(This user has moved to Living with ALS)

Jim_VA (Dec 19, 2007 8:45:42 PM)
for me getting my butt all of the way back is most important

Jim_VA (Dec 19, 2007 8:47:57 PM)
slouch in the chair = pita

aeras (Dec 19, 2007 8:49:30 PM)
the first thing you said in a while I understand

aeras (Dec 19, 2007 8:49:35 PM)
pita

aeras (Dec 19, 2007 8:49:49 PM)
lol

Jim_VA (Dec 19, 2007 8:50:04 PM)
lol

Vikings70 (Dec 19, 2007 8:50:41 PM)
(This user has left DigiChat)

aeras (Dec 19, 2007 8:51:26 PM)
Gudt yule Lars

Jim_VA (Dec 19, 2007 8:52:01 PM)
where was vikings

aeras (Dec 19, 2007 8:53:13 PM)
who knows he wasn't here

aeras (Dec 19, 2007 8:54:01 PM)
(This user has moved to Living with CMT)

aeras (Dec 19, 2007 8:54:23 PM)
(This user has entered Living with ALS)

aeras (Dec 19, 2007 8:54:40 PM)
(This user has moved to Myotonic Chat Group)

aeras (Dec 19, 2007 8:55:08 PM)
(This user has entered Living with ALS)

Jim_VA (Dec 19, 2007 8:55:14 PM)
voyeur

Jim_VA (Dec 19, 2007 8:55:30 PM)
lol

aeras (Dec 19, 2007 8:55:40 PM)
I was trying to find Vicking

aeras (Dec 19, 2007 8:55:42 PM)
lol

Jim_VA (Dec 19, 2007 8:56:43 PM)
are the other rooms busy

aeras (Dec 19, 2007 8:57:28 PM)
Myotonic and us

Jim_VA (Dec 19, 2007 8:57:47 PM)
ah

aeras (Dec 19, 2007 8:58:05 PM)
three have only 1 person in it

Jim_VA (Dec 19, 2007 8:58:18 PM)
wow

aeras (Dec 19, 2007 8:58:19 PM)
Myotonic chat has 6

Jim_VA (Dec 19, 2007 8:58:47 PM)
a lot

Jim_VA (Dec 19, 2007 8:58:54 PM)
brb

Jim_VA (Dec 19, 2007 9:05:53 PM)
Mike how long before you get your chair

MichaelJ (Dec 19, 2007 9:06:42 PM)
I should get it this week, or next week

Jim_VA (Dec 19, 2007 9:07:36 PM)
good what kind is it

MichaelJ (Dec 19, 2007 9:08:38 PM)
Permobil

Jim_VA (Dec 19, 2007 9:08:51 PM)
nice

MichaelJ (Dec 19, 2007 9:09:09 PM)
do you know anything about it??

Jim_VA (Dec 19, 2007 9:10:26 PM)
the dealer should give you a choice of seats

Jim_VA (Dec 19, 2007 9:10:59 PM)
I have one

MichaelJ (Dec 19, 2007 9:11:53 PM)
yeah, he did give me a choice, but recommended from a company that makes a seat cushion that combines air, gel, and foam

MichaelJ (Dec 19, 2007 9:12:20 PM)
which model?

Jim_VA (Dec 19, 2007 9:12:51 PM)
tell them that you want flat free tires

MichaelJ (Dec 19, 2007 9:13:07 PM)
yes that was included

Jim_VA (Dec 19, 2007 9:13:16 PM)
C2 K

MichaelJ (Dec 19, 2007 9:13:41 PM)
they orders the c500 for me

Jim_VA (Dec 19, 2007 9:14:37 PM)
i think mine is an old c500

MichaelJ (Dec 19, 2007 9:15:15 PM)
how has it worked out for you??

Jim_VA (Dec 19, 2007 9:15:32 PM)
big chair

MichaelJ (Dec 19, 2007 9:16:15 PM)
hows that?

Jim_VA (Dec 19, 2007 9:17:42 PM)
not to good crappy dealer but getting better

Jim_VA (Dec 19, 2007 9:18:38 PM)
my son is working on it

MichaelJ (Dec 19, 2007 9:18:50 PM)
have you had any problems??

Jim_VA (Dec 19, 2007 9:19:53 PM)
just configuration not mechanical

MichaelJ (Dec 19, 2007 9:23:07 PM)
well its good to know there are no mechanical problems

Jim_VA (Dec 19, 2007 9:24:07 PM)
yes good chair

MichaelJ (Dec 19, 2007 9:25:20 PM)
when you say the chair is large, is it difficult maneuvering

Jim_VA (Dec 19, 2007 9:26:24 PM)
mine has a vent tray and a battery tray

Jim_VA (Dec 19, 2007 9:28:26 PM)
yes with those additions difficult to maneuver

Jim_VA (Dec 19, 2007 9:31:05 PM)
I have 2 extra batteries for my ventilator

Jim_VA (Dec 19, 2007 9:33:00 PM)
do you have a van

MichaelJ (Dec 19, 2007 9:35:32 PM)
i dont have a van yet, but i know i need one

Jim_VA (Dec 19, 2007 9:35:59 PM)
yes

Jim_VA (Dec 19, 2007 9:37:48 PM)
I have a rear entrance minivan

Jim_VA (Dec 19, 2007 9:45:43 PM)
are you in a wheelchair Al

aeras (Dec 19, 2007 9:46:11 PM)
no

aeras (Dec 19, 2007 9:46:23 PM)
I am still

aeras (Dec 19, 2007 9:46:27 PM)
mobile

Jim_VA (Dec 19, 2007 9:47:15 PM)
good

Jim_VA (Dec 19, 2007 9:48:30 PM)
I don't. like wheelchairs

MichaelJ (Dec 19, 2007 9:48:46 PM)
wha kind of mini van do you have??

aeras (Dec 19, 2007 9:48:54 PM)
yeah I am just getting weaker in my hands and arms

Jim_VA (Dec 19, 2007 9:49:22 PM)
but unfortunately necessary

Jim_VA (Dec 19, 2007 9:51:10 PM)
dodge grand caravan

Jim_VA (Dec 19, 2007 9:53:37 PM)
have to lean back a little going in

MichaelJ (Dec 19, 2007 9:54:13 PM)
How is it other wise?

Jim_VA (Dec 19, 2007 9:55:24 PM)
but once inside plenty of headroom

Jim_VA (Dec 19, 2007 9:56:03 PM)
fine so far

MichaelJ (Dec 19, 2007 9:56:54 PM)
I was told to look at the Toyota and Honda, then the Dodge

Jim_VA (Dec 19, 2007 9:57:45 PM)
I have a 1500 watt inverter in it

Jim_VA (Dec 19, 2007 9:59:45 PM)
I think that the Honda is probably best of the three

MichaelJ (Dec 19, 2007 10:00:20 PM)
Do you have a ramp, or lift?

Jim_VA (Dec 19, 2007 10:03:38 PM)
I have a full conversion with a lowered floor the ramp folds out automatically

Jim_VA (Dec 19, 2007 10:07:11 PM)
gtg it is trach care time see y'all later take care

aeras (Dec 19, 2007 10:07:31 PM)
bye Jim

Jim_VA (Dec 19, 2007 10:07:41 PM)
bye

aeras (Dec 19, 2007 10:07:42 PM)
see you tomorrow

aeras (Dec 19, 2007 10:07:49 PM)
in als

MichaelJ (Dec 19, 2007 10:07:54 PM)
Are you going to thr Wheelchsir gsng chat?

aeras (Dec 19, 2007 10:07:57 PM)
chat

Jim_VA (Dec 19, 2007 10:07:59 PM)
ok

Jim_VA (Dec 19, 2007 10:08:34 PM)
not tonight

Jim_VA (Dec 19, 2007 10:08:44 PM)
(This user has left DigiChat)

aeras (Dec 19, 2007 10:08:44 PM)
I'll be leaving too goodnight Mikre

aeras (Dec 19, 2007 10:09:04 PM)
Mike

aeras (Dec 19, 2007 10:09:18 PM)
(This user has left DigiChat)

MichaelJ (Dec 19, 2007 10:10:23 PM)
(This user has left DigiChat)