Abbey Umali

Abbey Umali
Charcot-Marie-Tooth Disease (CMT)

My name is Abbey, I’m 9 years old, and I live in Redlands, Calif., with my mom and dad.

I attend Montessori School in Redlands, and I love school. Most of all, I like reading, math and geography (and recess, of course). One of my favorite things is learning state capitals.

After school, I stay very busy reading, singing, swimming, dancing, riding my bike and spending time with my friends. I also play the piano, love to act, and I like to play lots of games. I have pet bunnies (someday I hope to have a kitty or a hamster), and I have lots of stuffed animals like Lily, Aggie, Priscilla, Bluey and Pandia.

I have a form of Charcot-Marie-Tooth disease, one of the disorders covered by MDA. It affects my nerves and muscles. I don’t make enough myelin, which means that my muscles don’t hear the message from my nerves quite loud enough. My muscles are weak so I use braces to help me walk. I also have trouble balancing so I fall down a lot. I work really hard in physical therapy to make my muscles stronger and my balance better.

There are lots of different things I think about becoming when I grow up, but right now I’d like to become a veterinarian.