Every day in the United States, about 13 people receive a diagnosis of ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease).
That’s 5,000 Americans a year who are new to this disease. MDA's ALS Division wants to reach out to these people and their families, encourage and support them, and most importantly, let them know they’re not alone.
On Wednesday, May 25, 2011, MDA’s ALS Division will present an expert-hosted webinar for people recently diagnosed with ALS.
"ALS Starter Kit: Important Things to Know When New to the ALS Community," will take place at 5 p.m. Eastern, 2 p.m. Pacific.
Shortly after it's presented, the webinar will be archived and available for viewing on the MDA website's Advocacy page under Public Webinar Series.
The webinar will be hosted by Peggy Allred, physical therapist and genetics program coordinator at the MDA/ALS Center at Washington University in St. Louis, and Rebecca Axline, clinical social worker with the MDA/ALS Center at Methodist Hospital in Houston.
Allred and Axline will take questions and discuss important information for those who have recently received an ALS diagnosis, including equipment evaluations, who's who on your health care team, Medicare and more.
Event Address: https://mdaevents1.webex.com/mdaevents1/onstage/g.php?t=a&d=660748171
Event Password: mdawebex2011
Teleconference Access code: 660 748 171
Log on by clicking on the event address link above and entering the requested information. Once you're logged on, connect to the conference call by calling (650) 429-3300. Enter the password and access code above when prompted to do so. Standard long distance phone charges will apply to the call.
The webinar is part of MDA’s ongoing series of public education webinars, which feature experts discussing and answering questions about subjects of interest to people affected by ALS and other neuromuscular diseases.
ALS-specific webinars that are archived on the Advocacy page under Public Webinar Series include: "ALS Medical Management,""ALS Advocacy Town Hall,""ALS Research Update,""National ALS Registry Update" and "The Importance of Nutrition for Individuals with ALS."