| MDA's H1N1 Update |
It's no secret that more than one kind of flu virus is spreading through our communities — seasonal influenza and the H1N1 flu. Because individuals affected by neuromuscular disease are at increased risk of serious and possibly devastating complications from H1N1, it's important that we stay informed, and take steps to protect ourselves and our families.
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| Rare Disease Clinical Research Network Expansion |
The National Institutes of Health (NIH) has announced a $117 million expansion of its Rare Diseases Clinical Research Network, adding 14 research groups to the Network's second phase and will continue funding the five original groups.
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| MDA Champion: |
| Meet Vance Taylor |
Vance Taylor |
For Vance Taylor, the key to being an effective advocate is not only having a “voice,” but using one's voice to articulate thoughts, concerns, priorities and ideas to federal decision-makers. “Taking action” and speaking with members of Congress about issues of importance to the MDA community ensures success, as progress in MDA's legislative efforts translates into success for people affected by muscle diseases and their families. If elected officials aren’t aware of what matters to the MDA community, they can't represent effectively.
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