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Advocacy News
Newborn Screening Recommended for Pompe Disease
05/17/2013
MDA and ALSA Urge FDA to Take Action on Groundbreaking ALS Hearing
03/25/2013
FDA Hearing Highlights ALS Drug Development Concerns
02/25/2013
MD CARE Partner Sign On Letter
02/11/2013
FDA Convenes ALS Public Hearing February 25
01/30/2013
MDA and ALSA Partner to Nominate ALS as Disease Area for FDA’s Patient-Focused Drug Development Initiative
11/02/2012
MDA Champions Nomination of Pediatric-Onset Neuromuscular Diseases as a Critical Disease Area for FDA's Patient-Focused Drug Development Initiative
11/02/2012
Third Annual Becker Muscular Dystrophy Conference
07/20/2011
National Institute of Child Health and Human Development at the NIH Funds a Pilot Study of Newborn Screening for Spinal Muscular Atrophy
05/06/2011
Advocacy Update for SMA Community — Priorities for 112th Congress
04/28/2011
Funding Extension Brings Hope for Resolution
03/11/2011
Take 5! Call to Action — Federal Research Spending in Jeopardy
02/16/2012
SMA Grassroots Update
10/26/2010
FDA/NIH Meeting Announcement
06/04/2010
SMA Treatment Acceleration Act Update
04/20/2010
Congenital Muscular Dystrophy Now Included in Compassionate Allowances Conditions
02/11/2010
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Newborn Screening Recommended for Pompe Disease
05/17/2013
MDA and ALSA Urge FDA to Take Action on Groundbreaking ALS Hearing
03/25/2013
FDA Hearing Highlights ALS Drug Development Concerns
02/25/2013
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