The passage of the MD CARE Act in 2001 was a "game changer" for MDA's muscular dystrophy community, and since that time, MDA has "moved the needle" in clinical care and therapy development. The MD community worked hard to ensure that the MD CARE Act would become law, and MDA's efforts paid off.
Every day, scientists in some of the world’s best research facilities are making exciting discoveries, developing new drugs for the treatment of muscular dystrophies, and improving the quality of therapeutic treatment and clinical efforts — all at an unprecedented pace. Since 2001, there have been 67 clinical trials of drugs or therapies for muscular dystrophy, and currently 37 clinical trials are under way. But, a great deal of work still needs to be done, and increased federal support is needed to ensure that researchers can continue making progress toward finding a cure. A stronger commitment from the federal government also will help to ensure that MDA's life-changing momentum continues.
That’s why we’re asking you — and your neighbors, co-workers and others in your spheres of influence — to take five minutes and contact your local elected officials. We need your help by encouraging your elected officials to support The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD CARE) Amendments Act of 2013 (H.R. 594/S. 315) by signing on as a co-sponsor.
The MD community is building tremendous momentum as new co-sponsors are signing on in support of the MD CARE Act of 2013 every day. With 85 co-sponsors in the House and 21 in the Senate, we’re off to a strong start.
H.R. 594 (85 co-sponsors)
Rep Burgess, Michael [TX] – 2/8/2013
Rep Engel, Eliot L. [NY-16] - 2/8/2013
S. 315 (21 co-sponsors)
Sen Amy Klobuchar [MN] – 2/12/2013
Sen Wicker, Roger F. [MS] - 2/13/2013
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