BMD Conference Meeting Agenda
| Check In | ||||
| 9:30 a.m. | – | 10:00 a.m. | ||
| Welcome and Introduction | ||||
| 10:00 a.m. | – | 10:10 a.m. | ||
| Functional Treatment Considerations: OT-PT and Orthotics | ||||
| 10:10 a.m. | – | 10:30 a.m. |
Pat Casey OTR/L, CCRC |
|
| Nutritional Needs in Neuromuscular Disease | ||||
| 10:30 a.m. | – | 10:50 a.m. |
Megan Paul, RD, LDN, CNSD Walgreens Infusion Services |
|
| Everything You Need to Know About Genetics of BMD: Why Your Mutation Matters | ||||
| 10:50 a.m. | – | 11:10 a.m. |
Lisa Dellafave-Castillo, MS, CGC University of Chicago |
|
| Lung Health in Neuromuscular Disease | ||||
| 11:10 a.m. | – | 11:30 a.m. |
Lisa Wolfe, MD Northwestern University |
|
| Cardiac Complications and Management in BMD | ||||
| 11:30 a.m. | – | 11:50 a.m. |
Elizabeth McNally, MD, PhD University of Chicago |
|
| Transitional Freedom: From Consciousness to Culture to Comprehensive Care | ||||
| 11:50 a.m. | – | 12:10 p.m. |
Chris Rosa, PhD Dean for Student Affairs,City University of New York (CUNY) |
|
| Questions and Discussion | ||||
| 12:10 p.m. | – | 12:30 p.m. | ||
| Lunch | ||||
| 12:30 p.m. | – | 2:00 p.m. | Lunch Break Out Session – Q&A Session w/adults living with BMD | |
| Taking the reins of your Medical Care and Participating in Clinical Trials | ||||
| 2:00 p.m. | – | 2:20 p.m. |
Brian Tseng, MD, PhD Massachusetts General Hospital/Novartis Institute |
|
| Preclinical Testing in Animal Models of Muscular Dystrophy | ||||
| 2:20 p.m. | – | 2:40 p.m. |
Melissa Spencer, PhD University of California Los Angeles |
|
| From Targets to Clinical Trials in Muscle Disease | ||||
| 2:40 p.m. | – | 3:00 p.m. |
Lee Sweeney, PhD University of Pennsylvania |
|
| Break | ||||
| 3:00 p.m. | – | 3:20 p.m. | ||
| Imaging Muscle Dystrophy | ||||
| 3:20 p.m. | – | 3:40 p.m. |
Glenn Walter, PhD University of Florida |
|
| PDE Inhibitors in Becker Muscular Dystrophy | ||||
| 3:40 p.m. | – | 4:00 p.m. |
Ronald Victor, MD Cedars-Sinai |
|
| Questions and discussion (Panel Discussion with Speakers) | ||||
| 4:00 p.m. | – | 4:30 p.m. | ||
| Reception/Meet and Greet with Presenters | ||||
| 4:30 p.m. | – | 5:00 p.m. | ||
Connect with MDA
Muscular Dystrophy Association — USA
National Headquarters
3300 E. Sunrise Drive
Tucson, AZ 85718
(800) 572-1717
©2013, Muscular Dystrophy Association Inc. All rights reserved.
