Practice Gaps in Physician Knowledge, Competence, or Patient Outcomes
With more than 40 diseases under the MDA umbrella, all of them rare, physicians and allied health professionals must try to keep abreast of evolving standards of care for neuromuscular disorders. Clinicians caring for individuals with neuromuscular diseases must have a sound working knowledge of genetics for diagnosis, and potentially for implementation of therapies. Genetic testing and other diagnostic testing strategies for neuromuscular diseases are evolving rapidly.
In addition, despite standards of care and clinical care guidelines being in place for some neuromuscular diseases, there remains variability in care across the country. An emerging issue is the need for education of health care providers in caring for young adults who are transitioning from pediatric to adult care – i.e., Transitional Services. Due to advances in medical management, individuals with pediatric neuromuscular disorders, such as Duchenne muscular dystrophy, spinal muscular atrophy and the congenital muscular dystrophies, are living longer, often well into adulthood. In addition to medical care, such individuals need guidance on psychosocial issues as well as sexuality.
Evaluation forms from MDA’s most recent Clinical Conference, which was held in March 2012, along with opinions of experts, including members of MDA’s Clinical Advisory Committee and some MDA clinic directors, were used to identify practice gaps that could be addressed through the 2014 MDA Clinical Conference. Three major topics were identified as gaps: 1] best practices in neuromuscular diseases; 2] medical care and psychosocial services for young adults transitioning from pediatric to adult care; and, 3] genetics and neuromuscular diseases.
Description of Activity
The over-arching goals of this conference are 1] to provide a review of selected aspects of diagnosis and medical, rehabilitative and psychosocial management for the muscular dystrophies, inherited neuropathies, motor neuron disorders and immune-mediated neuromuscular disorders, and 2] to provide an update on the status of emerging therapies for genetically-caused muscle diseases, spinal muscular atrophy, amyotrophic lateral sclerosis and related disorders.
Target Audience and Methodology
The target audience for this conference is MDA clinic directors, primarily specialists in neurology and physical medicine & rehabilitation, along with cardiologists, pulmonologists and other physicians and allied health professionals that care for individuals with neuromuscular diseases. Educational methods will include didactic lecture, panel discussions, case presentations, demonstrations and Q&A sessions.
ACCME/AMA PRA Accreditation
This live activity has been planned and implemented in accordance with the Essential Areas and Policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint sponsorship of the University of Minnesota and Muscular Dystrophy Association USA. The University of Minnesota is accredited by the ACCME to provide continuing medical education for physicians.
This live activity has been approved for AMA PRA Category 1 Credit™. Determination of exact number of credits is pending.
American Nurses Credentialing Center
The University of Minnesota School of Nursing, Office of Practice, Partnerships and Professional Development, is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.
American Academy of Physician Assistants
AAPA accepts certificates of participation for educational activities certified for AMA PRA Category 1 Credit™ from organizations accredited by ACCME or a recognized state medical society. Physician assistants may receive Category I credit for completing this program. Determination of exact number of credits is pending.
Other Healthcare Professionals Statement
Other healthcare professionals who participate in this CME activity may submit their Statements of Attendance to their appropriate accrediting organizations or state boards for consideration of credit. The participant is responsible for determining whether this activity meets the requirements for acceptable continuing education.
It is the policy of the University of Minnesota to ensure balance, independence, objectivity and scientific rigor in all of its sponsored educational activities. All participating speakers, course directors, and planning committee members are required to disclose to the program audience any financial relationships related to the subject matter of this program. Relationships of spouse/partner with proprietary entities producing health care goods or services should be disclosed if they are of a nature that may influence the objectivity of the individual in a position to control the content of the CME/CNE activity. Disclosure information is reviewed in advance in order to manage and resolve any possible conflicts of interest. Specific disclosure information for each speaker, course director, and planning committee member will be shared with the audience prior to the speaker’s presentation.
American with Disabilities Act
Persons with disability may request a reasonable accommodation, such as sign language interpreter, by contacting the Muscular Dystrophy Association at (520) 529-2000 or by e-mail at firstname.lastname@example.org. Requests should be made as early as possible to allow time to arrange the accommodation.